How You Can Help

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Remember to use the hashtag #scleroaware13 on Twitter this month!

Education is key to spreading more awareness about scleroderma. This year, we'd like our followers to reach out to various influential individuals on social media networks to make them aware that more support and resources are needed for the scleroderma community. Each day this month, we would like you to contact a different person -- we've organized the month into theme weeks: TV Personalities, Entertainers, News Media and Movers/Shakers. The combined "likes" on Facebook for these individuals is more than 325 million and on Twitter they have a combined total of nearly 290 million followers!

We hope a unified effort will make our message stronger!

Saturday, June 1 - Contact the Network Morning Shows
Today Show (NBC) - Facebook | Twitter
Good Morning America (ABC) - Facebook | Twitter
CBS This Morning - Facebook | Twitter  

Week 1 -- TV Personalities

Week 2 -- Music and Movie Personalities

Week 3 -- News Anchors and Reporters

Week 4 -- Movers and Shakers

On this downloadable document, you will find contact information and other important facts about the day’s influential individual to contact. Just click the link(s) in the download to visit their Facebook or Twitter pages. Please share your scleroderma story with these social media power users online. Also, be sure to let them know to check out www.sclerodermaawareness.org for more info!

30 More Ways to Help

Check out these 30 additional ways below that you can help spread scleroderma awareness or help someone living with the disease. These are great ideas for Scleroderma Awareness Month (or any day of the year). Try to complete one activity on each day if you can.

THANK YOU!

Complete

What You Can Do
empty checkbox Become a Scleroderma Foundation member.
empty checkbox Find a “Stepping Out to Cure Scleroderma” walk-a-thon in your area.
empty checkbox Call your congressional representative and urge him/her to support the “Scleroderma Research and Awareness Act.”
empty checkbox Share your special scleroderma story with us by becoming a Scleroderma Foundation Champion.
empty checkbox Write a ‘letter to the editor’ to your local newspaper to TV station.
empty checkbox Share your scleroderma story with your Facebook friends.
empty checkbox Order Scleroderma Awareness Month gear featuring our 2013 Sclerodoodle artwork.
empty checkbox Sign up for the Scleroderma Foundation’s National Patient Education Conference.
empty checkbox Make a gift in honor of someone special to the Scleroderma Foundation. 
empty checkbox Offer old issues of “Scleroderma Voice” to your local library for their magazine rack.
empty checkbox Contact your local newspaper’s health editor, and ask him/her to write a piece about scleroderma.
empty checkbox Wear your old “Stepping Out to Cure Scleroderma” walk-a-thon T-shirts to the gym. (Don't have a shirt, get one here)
empty checkbox When visiting loved ones in the hospital, share your scleroderma story with the medical staff.
empty checkbox Ask to post the Scleroderma Foundation info cards at local businesses like coffee shops or boutiques.
empty checkbox Tweet about Scleroderma Awareness Month. Use the hashtag #scleroaware13.
empty checkbox Join our online support community through Inspire.
empty checkbox Get a friend to like us on Facebook. 
empty checkbox Schedule your echocardiogram.
empty checkbox Join a Scleroderma Foundation support group. No support group in your area? Form one!
empty checkbox Wear teal to show your scleroderma support. (Get your bracelet here!)
empty checkbox Join the University of Texas Scleroderma Family Registry and DNA Repository to help aid research. 
empty checkbox Send Scleroderma Foundation info to your doctor’s office so other patients may benefit.
empty checkbox Call another scleroderma patient just to see how they are doing today!
empty checkbox Text your friends the Scleroderma Foundation website. 
empty checkbox Share your skills and talents – volunteer at one of our special events.
empty checkbox Knit or crochet a hat and mittens for someone to help with the Raynaud Phenomenon symptoms.
empty checkbox Follow our Pinterest page to access news articles and resources about scleroderma.
empty checkbox Let someone who lives with scleroderma know about our toll-free helpline at (800) 722-HOPE.
empty checkbox Become a scleroderma Hope Raiser and start your own "friend"-raising website!
empty checkbox  Sign-up for our weekly email newsletter to stay up-to-date!