Remember to use the hashtag #scleroaware13 on Twitter this month!
Education is key to spreading more awareness about scleroderma. This year, we'd like our followers to reach out to various influential individuals on social media networks to make them aware that more support and resources are needed for the scleroderma community. Each day this month, we would like you to contact a different person -- we've organized the month into theme weeks: TV Personalities, Entertainers, News Media and Movers/Shakers. The combined "likes" on Facebook for these individuals is more than 325 million and on Twitter they have a combined total of nearly 290 million followers!
We hope a unified effort will make our message stronger!
Week 1 -- TV Personalities
Week 2 -- Music and Movie Personalities
Week 3 -- News Anchors and Reporters
Week 4 -- Movers and Shakers
Pope Francis: Twitter
Twitter Followers: 2,456,707
June 29 - World Scleroderma Day
June 30 - Contact your local media!
On this downloadable document, you will find contact information and other important facts about the day’s influential individual to contact. Just click the link(s) in the download to visit their Facebook or Twitter pages. Please share your scleroderma story with these social media power users online. Also, be sure to let them know to check out www.sclerodermaawareness.org for more info!
30 More Ways to Help
Check out these 30 additional ways below that you can help spread scleroderma awareness or help someone living with the disease. These are great ideas for Scleroderma Awareness Month (or any day of the year). Try to complete one activity on each day if you can.
What You Can Do
a Scleroderma Foundation member.
|Find a “Stepping Out to Cure Scleroderma” walk-a-thon in your area.|
your congressional representative and urge him/her to support the “Scleroderma
Research and Awareness Act.”
|Share your special scleroderma story with us by becoming a Scleroderma Foundation Champion.|
a ‘letter to the editor’ to your local newspaper to TV station.
|Share your scleroderma story with your Facebook friends.|
Scleroderma Awareness Month gear featuring our 2013 Sclerodoodle artwork.
|Sign up for the Scleroderma Foundation’s National Patient Education Conference.|
|Make a gift in honor of someone special to the Scleroderma Foundation.|
|Offer old issues of “Scleroderma Voice” to your local library for their magazine rack.|
|Contact your local newspaper’s health editor, and ask him/her to write a piece about scleroderma.|
old “Stepping Out to Cure Scleroderma” walk-a-thon T-shirts to the gym. (Don't have a shirt, get one here)
|When visiting loved ones in the hospital, share your scleroderma story with the medical staff.|
|Ask to post the Scleroderma Foundation info cards at local businesses like coffee shops or boutiques.|
|Tweet about Scleroderma Awareness Month. Use the hashtag #scleroaware13.|
|Join our online support community through Inspire.|
|Get a friend to like us on Facebook.|
|Schedule your echocardiogram.|
|Join a Scleroderma Foundation support group. No support group in your area? Form one!|
to show your scleroderma support. (Get your bracelet here!)
|Join the University of Texas Scleroderma Family Registry and DNA Repository to help aid research.|
|Send Scleroderma Foundation info to your doctor’s office so other patients may benefit.|
|Call another scleroderma patient just to see how they are doing today!|
|Text your friends the Scleroderma Foundation website.|
|Share your skills and talents – volunteer at one of our special events.|
|Knit or crochet a hat and mittens for someone to help with the Raynaud Phenomenon symptoms.
|Follow our Pinterest page to access news articles and resources about scleroderma.
|Let someone who lives with scleroderma know about our toll-free helpline at (800) 722-HOPE.
|Become a scleroderma Hope Raiser and start your own "friend"-raising website!
| Sign-up for our weekly email newsletter to stay up-to-date!