2018 National Conference Registration Open!
The 2018 National Patient Education Conference will be held July 27-29 in Philadelphia! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


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Progress Report FY 2017 cover
Click the image above to access
our FY 2017 Progress Report



Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #767; June 15, 2018
  • Scleroderma Awareness Month:
    Online Social Media Kit
  • National Patient Education Conference
    REGISTER TODAY! July 27-29, Philadelphia
    • Workshop Preview
    • Kids & Teens Program 
  • Celebrate Male Family Caregivers
  • "From Full-Time Patient to Full-Time Student in Less Than 60 Days"
  • "What Would You Want to Tell Someone Newly Diagnosed with Scleroderma?"
    Share on Inspire.com
  • Reach for the Cure
  • Give Others a Chance to Share Your Journey:
    Stepping Out to Cure Scleroderma
  • Support Groups of Tennessee
  • Free Online CME Course:
    "Increasing Physician Awareness of PAH in SSc"
  • Study Participation Opportunity
    • Seeking Young Adults with an
      Autoimmune Rheumatic Condition
      for Research on Fatigue


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