2018 National Conference Save the Date
The 2018 National Patient Education Conference will be held July 27-29 in Philadelphia! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.


Download Our Free Scleroderma Information Packet

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Click the image above to access a copy of our FY 2015-16 Annual Report



Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

December 8, 2017; eLetter #740
  • Video: “Coping with a Chronic Disease”: Elaine Furst, R.N.
  • Open Enrollment Ends Dec. 15 for 2018 Health Insurance Under ACA
  • Video: “Scleroderma Research: Year in Review,” Tracy M. Frech, M.D.
  • Legislative Advocacy, Grassroots Advocacy Training, Webinar No. 3, 12/11/17
  • Anabasum Shows Acceptable Safety, Tolerability for Diffuse Systemic Sclerosis
  • Tocilizumab Benefits Persist in SSc
  • Plan Ahead for 2018 for Stepping Out to Cure Scleroderma
  • 2018 National Patient Education Conference
  • Support - Education – Research

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Click on image above to access our FY 2015-16 Annual Report!

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