See You in Chicago 2019`
The 2019 National Patient Education Conference will be July 19-21 in Chicago! Will you join us?

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Stepping Out to Cure Scleroderma
Take a Step for Scleroderma

Find a "Stepping Out to Cure Scleroderma" walk/run near you today!

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Thu 18 Oct 2018 09:43:47 PM CDT: This site is about to be upgraded to a new software release. During this upgrade you may experience interruptions or delays when entering information. We apologize for any inconvenience this may cause and thank you for your patience during this required update.

Who We Are

The Scleroderma Foundation is a federally qualified 501(c)(3) nonprofit dedicated to serving the needs of the scleroderma community.  Our primary goal is to raise funds and awareness for our three-fold mission of support, education and research.  All donations are qualified charitable donations to the fullest extent of the law.  Our federal tax identification number is 52-1375827.  All donations are gratefully accepted. 

What is Scleroderma?

Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. The word “scleroderma” comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Hardening of the skin is one of the most visible manifestations of the disease.

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Download Our Free Scleroderma Information Packet

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News

Visit the eLetter Archive to read the stories behind these headlines.  Submit your email address to receive the eLetter every week.

eLetter #783; October 12, 2018
  • Conference Videos:  "Your Child has been Diagnosed with Scleroderma. Now What?"
  • Support Group Volunteer of the Year
  • Kids Get Scleroderma Too: October 26 & 27, Aurora, Colorado
  • PHA on the Road:  October 27, Milwaukee, Wisconsin
  • "Who here has Diffuse?", Inspire.com
  • Research & Treatment Centers: Duke Scleroderma Research Center Clinic
  • Step Out to Cure Scleroderma in Oklahoma
  • Reach for the Cure
  • Winter Voice Published Online Only
  • CLINICAL TRIAL PARTICIPATION
    • Scleroderma Lung Study III

 

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