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Support Groups

The use of contact information (email addresses and phone numbers) on our website is strictly for persons interested in contacting chapter and support group volunteers and staff for support and informational purposes only. This contact information SHOULD NOT be taken from our website for solicitation or commercial use.

Please click on a state to find a support group near you. We are working diligently to expand our network of support groups and are always interested in motivated, dedicated volunteers to assist us in that endeavor. To find out how you can help, please contact our the national office at (800) 722-4673.

*Phone contacts are individuals who would like to offer phone and email support, but do not run a support group.


Alabama | Arizona | Arkansas | California | Colorado | Connecticut | District of Columbia | Delaware | Florida | Georgia | Hawaii | Idaho | Illinois | Indiana | Iowa | Kansas | Louisiana | Maine | Massachusetts | Michigan | Minnesota | Missouri | Nebraska | Nevada | New Hampshire | New Jersey | New Mexico | New York | North Carolina | Ohio | Oklahoma | Oregon | Pennsylvania | Puerto Rico | Rhode Island | South Carolina |
South Dakota | Tennessee | Texas | Utah | Vermont | Virginia | Washington | West Virginia | Wisconsin

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Alabama  

Calera Area Support Group
Calera Public Library
9700 Hwy. 25
Calera, AL 35040
For more information, please contact Support Group Leader Jo Ann Bokenkamp
Email: JoAnnBokenkamp@yahoo.com
Phone: (334) 730-1363
Assistant Support Group Leader: Clarissa Hallowell
Email: bhmsclerofriends@yahoo.com
Phone: 205-492-7482

Florence  (Telephone Support)
Contact: Sarah Logan, 256-332-0048

Huntsville
Meetings are held at 4900 Meridian Street, Morrison Building, Room 101-A, Huntsville, AL 35762
Meetings go from 1 p.m. - 3 p.m. For information and direction, please call 256-323-0715.

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Arizona

Mohave Valley (Bullhead City) Support Group
Support Group Leader: Carol Hayward, 928-768-9323

Southern Arizona (Tucson) Support Group

Casas Adobes Congregational Church
6801 N. Oracle Rd.
Tucson, AZ 85704
Park in the East lot, off of Oracle Road
Support Group Leader: Pat Gould, (after 1 p.m.) 520-742-0199, pag90az@comcast.net
Support Group Leader: Matty Heenan 520-749-4709 or mattyh42@q.com

Please join us on the second Tuesday of the month from 1-3 p.m. Check below for the dates:
January 10
February 14
March 14
April 11
May 9
No meetings in June, July and August
September 12
October 10
No meetings in November and December

For more information please contact Pat Gould at: (520) 742-0199

Phoenix Support Group
Support Group Co-Leaders:
Holly Roberts, 602-697-7727, hollyroberts@q.com   
Diane Wilson, 615-293-2709, dwsclero@gmail.com 

Next meetings are:

  • October 28, 2017 Annual Potluck
  • January 27, 2018
  • February 24, 2018

We meet on the fourth Saturday of most months (summer off) at Arrowhead Hospital in the Palo Verde Conference Room (North of Walgreens, South side of Hospital), 18701 N. 67th Ave., Glendale, AZ.

Directions: North of Union Hills on 67 Ave, you’ll see main entrance to Abrazo’s Arrowhead Hospital. Turn right and go around right by Endoscopy entrance. -Park and walk to double door entrance south of Endoscopy building. The room is to the right.

Please email us or call between 9 a.m. and 6 p.m. with any questions. Thank you.

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Arkansas

 Benton Support Group
Support Group Leader:
Pam Ray, 501-778-8737, pamray@aol.com

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California

Fresno Support Group
Call for next meeting

Fig Garden Library, Fig Garden Meeting Room
3071 West Bullard Ave, Fresno, CA 93711
Contact: Mary Huckabee
Phone: (209) 852-2870
Email: maryhuckabee_sd@yahoo.com 

Palo Alto Support Group
10:30 a.m. - 12:30 p.m., 2nd Saturday of each month
We will be meeting Saturday, October 24 instead of October 10 because of the Columbus Day holiday.
The Palo Alto Medical Foundation, 2nd Floor, Room N2 Conference Room,
795 El Camino Real, Palo Alto, CA 94301
Contact: Rachel Ho
Phone: (415) 680-4389
Email: rachelhosf@gmail.com

Santa Rosa Support Group

Meeting time:  10 a.m. –12 p.m., fourth Saturday of the month
Location:  
Sutter Medical Center Warrack Campus, 2449 Summerfield Rd, 2nd Floor, Santa Rosa, CA 95405

Support Group meeting dates:
January 28 Support Group Meeting

February 25
March 25
 
April 22
 
May 27
 
June 24

July 21-23
National Scleroderma Patient Conference- Chandler, AZ
July 22

August 26

September 23

October 28
 
November
No Meeting ~ Happy Thanksgiving!
December 2
Holiday Party- Details TBA 

Santa Rosa Support Group Leader:
Cathy Eddy  —  eddyc@sbcglobal.net  —  707-538-9193
Jenene Robinson  —  jenjonrob@att.net  —  707-894-3605

**Schedule, location, topics or speakers subject to change. Please contact Cathy to confirm. 

Turlock Support Group
10 a.m. – 12 p.m. Call for next meeting date.
Raley’s Store, 2900 Geer Road, Turlock, CA
Contact: Mary Huckabee
Phone: (209) 852-2870
Email: maryhuckabee_sd@yahoo.com

 

  • Southern California (Note: The Greater San Diego Chapter is now a part of the Southern California Chapter)

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Colorado

Learn more about support groups in Colorado from our chapter. 

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Connecticut

Learn more about support groups in Connecticut from our Tri-State Chapter.

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District of Columbia

Learn more about support groups in Washington D.C. from our chapter.

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Delaware

Learn more about support groups in Delaware from our Delaware Valley Chapter. 

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Florida

If you live in southeast Florida, learn more about support groups from the Southeast Florida Chapter. For other areas of Florida, look below:

Scleroderma Support Group of Volusia County (Florida)
Meeting location: Coronado Community United Methodist Church, New Smyrna Beach, FL, Room 109

Meeting Dates: Second Sunday every other month: 

January 8, 2017
March 12,2017
May 14, 2017
July 9, 2017
September 10, 2017
November 12, 2017

Time: 2 p.m.
Contact for directions, info: Eileen Savell, 386-689-4431, email: eileensavell.sclero@gmail.com

Jacksonville Florida Support Group

Meetings take place at The Salem Centre, 7235 Bonneval Road, Jacksonville, FL 32256
Meetings will be held from 12 p.m. to 2 p.m. on the following dates in 2017: May 13, June 10, July 8, August 12, September 9, October 14, and November 11

Note: Jacksonville group - September 9 meeting canceled due to weather.

For more information please contact:
Vicky Pina, 904-541-8252, Vicky.Pina@gmail.com

Lady Lake Scleroderma Support Group
Support Group Leader: Jean Clark, 352-753-9500

Central Florida Support Group (Orlando Area)
Meetings take place at Exit Realty Office
401 S. Rosalind Ave.
Orlando, Florida 32801
Our next meeting will be September 9 and November 11, 2017 from10:30 a.m. to 11:30 a.m.
For more information please contact:
Jan Gura - 407-376-3076, JRGura@earthlink.net
Jennifer Scheinberg - 407-257-5908, JPScheinberg@gmail.com

Sarasota Area Support Group
Waldemere Medical Plaza, 1921 Waldemere St. Sarasota, Florida, 2nd Floor, Mimosa Room (located directly across from Sarasota Memorial Hospital on Waldemere Street).
Support Group Leader: Cindy Grantham-Spears, 941-539-4479, cindygrantham941@gmail.com
Please contact the Support Group Leader to confirm future meetings.

Tampa Support Group
Support Group Leader: Lynn Goff, 813-995-2700, jlynnk1@verizon.net

Susan Marie Foundation - Scleroderma Support Group Meeting
Time: Last Saturday of every month at 10 a.m.
Location: Lakes Regional Library, Rm B, 152900 Bass Rd, Ft Myers
RSVP to Sandie at sandie@smsclerodermafoundation.com.

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Georgia
 

Learn more about support groups from our Georgia Chapter.

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Hawaii

Waipahu Support Group
Support Group Leader: Ken Athans, 904-891-3085, hawaiisclerodermanetwork@gmail.com
Kaiser Permanente Clinic, 94-1480 Moaniani Street, Waipahu, Hawaii 96797
Conference room B 6 p.m. - 8 p.m.
Call or email for upcoming dates

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Idaho

Southern Idaho Scleroderma Support Group

For Patients, Family Members and Friends

Location: Anderson Center St. Luke’s Boise, 100 E. Idaho St., Boise, ID 83712
Time: 10 a.m. – 11:30 a.m.

Meeting Schedule:

Saturday, October 14, 2017
Room: Boise Room

Saturday, November 11, 2017
Room: Canyons 1 & 2

Saturday, December 9, 2017
Room: Canyons 1 & 2

Parking is located in the South Tower Parking Garage. Enter from Bannock Street between First and Second Streets. Handicapped parking is located along Bannock Street between Avenue B and 1st Street. Enter the building through the Bannock Street/Anderson Center entrance adjacent to the parking area. Take the elevator to the fifth floor.

For More Information:

EMAIL: SCLERODERMA.IDAHO@GMAIL.COM

Dee Burlile (C) 208-995-1144
JoAnna Harper (C) 520-343-8646
Sean Burlile (C) 208-949-4301

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Illinois
 Learn more about support groups from our Greater Chicago Chapter.

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Indiana

Central Indiana Scleroderma Self Help Group (TWO LOCATIONS)
North Location - 7250 Clearvista Drive, Indianapolis, IN 46256
#CHN 7250,
Visionary Ballpark Conference 
This is on the Community Hospital North campus in the 7250 building, second floor

South Location - Community Hospital South, 1402 East County Line Rd., Indianapolis, IN 46227
Conference Rooms 5 & 6

2017 Schedule

NORTH Location
Saturday, November 11, 2017, to be determined

SOUTH Location
Saturday, October 14, 2017, 1 to 4 p.m.
Saturday, November 11, 2017,time  to be determined

Meetings will include time to meet and greet and share stories and information. Some of the meetings will have guest presenters. The atmosphere is informal and later arrivals are welcome.

Contact: Maureen Hays at mhays85@att.net, 317-781-9726 

 

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Iowa

For more information about support groups in Iowa, contact the Heartland Chapter.

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Kansas   

Topeka Area Support Group
Topeka Shawnee County Library
1515 SW 10th Ave, Topeka, KS 66605
Hughes Room #205
First Meeting will be September 14 from 6 p.m. - 8 p.m.
For more information please contact Support Group Leader Emily Morris at 785-215-1236 or emilymorris0417@hotmail.com

Wichita Support Group
Support Group Leader: Sharon Leiker at 316-683-8335, leikers@cox.net

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Louisiana
 

Baton Rouge Support Group
Support Group Leader: Del Anselmo, 225-756-2452 (home) or 225-324-3666 (cell) delzorah@gmail.com or Rebecca Nugent at 225-270-5590
“The Settlement” Shopping Center, Suite C-1
7809 Jefferson Highway
Baton Rouge, LA 70810
Starting at 5 p.m.
Tuesday, October 10, 2017
Download schedule as a PDF

Many, Louisiana Area Support Group
Beulah Baptist Church
31665 Hwy 191
Many, LA 71449

2017 Dates: TBD

Please contact Support Group Leader Tina Dowden for more info at 936-332-3296 or sclerodermamany@gmail.com

New Orleans Area Support Group
University Medical Office Bldg. (UMOB)
2025 Gravier Street New Orleans, LA 70112

The meeting dates:

Meeting time is 6 p.m. to 8 p.m.

  • October 16, 2017

For more information, please contact the Support Group Leader Joy Mitchell - nolascleroderma@gmail.com or 504-301-7737.

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Maine
For more information about support groups in Maine, contact the New England Chapter.

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Massachusetts

 For more information about support groups in Massachusetts, contact the New England Chapter.

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Michigan

For more information about support groups in Michigan, contact the chapter.

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Minnesota

For more information about support groups in Minnesota, contact the chapter.

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Missouri

For more information about support groups in Missouri, contact the chapter.

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Nebraska

For more information about support groups in Nebraska, contact the Heartland Chapter.

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Nevada

Las Vegas Area Support Group

New location is Claim Jumper Restaurant, 6629 Las Vegas Blvd., Las Vegas, NV 89119 at 11:30 a.m.  

Time to kick off our 2017 meetings. The first meeting will be on Saturday, March 11 at 11:30 a.m. We will be discussing our 2017 calendar, reviewing educational topics and making plans for the Annual Patient Conference

For more information about this group, and to confirm meeting dates, please contact Support Group Leader John Holod at 1-702-233-0783 or jmholod@gmail.com or Pam O’Meara at 1-702-606-9496 or PAMOMEARA@msn.com.  

 

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New Hampshire

For more information about support groups in New Hampshire, contact the New England Chapter.

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New Jersey

For support groups in Burlington/Camden, Warren and Woodbury, contact the Delaware Valley Chapter.

For support groups in Northern New Jersey, contact the Tri-State Chapter.

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New Mexico

Albuquerque/ Rio Rancho support group

Support Group meetings are held at Flying Star Cafe in the hospitality room in the back.
10700 Corrales Rd NW
Albuquerque, NM 87114

The meetings will be every other month on the second Saturday from 1 to 3 p.m.:

  • October 14
  • December 9

For more information, please contact:

Anna Wenger at 505-974-9293 or annawenger91@gmail.com 
Theresa Johnson at 520-248-2235

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New York

For information about support groups in New York, contact the Tri-State Chapter.

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North Carolina

Durham
Triangle Area Support Group
Support Group Leaders: Teresa Stone, 919-596-0560, m. 919-323-9598, stone35@frontier.com
or Jane Pahner, 919-969-7676, japahner@yahoo.com
Bethesda Baptist Church, 1914 South Miami Boulevard, Durham, NC
2 p.m. - 4 p.m.

2017 Meeting Dates

  • November 12
  • No meeting in December

Fayetteville Scleroderma Support Group
The Fayetteville Scleroderma Support Group meets in the Medical Arts Center at 101 Robeson St., Room 106; 10 a.m. to 12 p.m. on the third Saturday of every month except for July and December.
Scleroderma patients and their loved ones are invited for support and information about the disease.
For more information, please contact Support Group Leaders: Donna Thomas 910-308-9792 and Kim Sublett 910-237-2390 or via email at donnat55@embarqmail.com

Forsyth County, Winston-Salem Support Group
First Meeting: Wednesday, November 1, 2017; 6 p.m. - 7:30 p.m.
Public Library - Reynolda Manor Branch
2839 Fairlawn Drive, Winston-Salem, NC  27106
For more information, please contact support group leader: 
Patricia Georges: 336-708-8313, fc.sclerodermasupgroup@gmail.com

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Ohio
 

For more information about support groups in Ohio, contact the chapter.

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Oklahoma

For more information about support groups in Oklahoma, contact the chapter.

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Oregon
 

For more information about support groups in Oregon, contact the chapter.

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Pennsylvania

For more information about support groups in Pennsylvania, contact the Delaware Valley Chapter.

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Puerto Rico
 

San Juan
Contact: Manny & Sylvia Quevedo, 787-792-4038, or 787-792-3882, email lordrealty@lordrealty.com.

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Rhode Island

For more information about support groups in Rhode Island, contact the New England Chapter.

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South Carolina

For more information about support groups in South Carolina, contact the chapter.

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South Dakota

Black Hills Support Group

Rapid City Public Library
610 Quincy Street, Rapid City, SD 57701

The group meets from 5:30 p.m. - 7 p.m. Remaining meeting dates in 2017:

  • November. 1
  • December. 6
  • January 3, 2018

For more information, please contact Support Group Leader Ron Sasso
Email:  BHScleroderma@gmail.com, Phone: 605-593-3759

Sioux Falls Support Group

For information about the Sioux Falls Support Group, contact the Heartland Chapter.

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Tennessee
 

For more information about support groups in Tennessee, contact the chapter.

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Texas

For more information about support groups in Texas, contact the chapter.

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Utah

Northern Utah (Layton) Support Group
Support Group Leader: Sherry Blosch, 801-943-2468, dimples4me@msn.com Co-Leader: Judy Bradshaw, j.l.bradshaw@att.net

Park City Utah Support Group
Support Group Leader- April Torres, 435-881-3016, ScleroPC@gmail.com
Upcoming Meeting Dates:  For more information, contact April

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Vermont
 

For more information about support groups in Vermont, contact the New England Chapter.

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Virginia

Fredricksburg Area Support Group
Support Group Leader: Christine Hamblin, 540-720 -2079, hamblinc@aol.com

Norfolk (Phone Support)
Contact: Audrey Gutterman, 757-855-5200, audgut@aol.com.

Richmond Area Support Group
Support Group Leaders: Christine Hamblin, 540-720 -2079, hamblinc@aol.com; Teresa Crumpler, 804-233-5809, cteresa@comcast.net; or Shirley Hill-Rasberry, 804-329-5223, tacnn@comcast.net

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Washington
 

For more information about support groups in Washington, contact the chapter.

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West Virginia
 

Huntington Area Support Group
River Cities Community Church
4385 Route 60 East
Huntington, WV 25705
Thursday, March 7 at 6:30 p.m. in Room 301
Please park in the RED lot
You will see two doors with canopies, use the second door.
For more info contact Karen Baker
karen_baker69@yahoo.com
1-304-736-9882

Weirton (Telephone Support)
Contact: Sandra Fennych, 304-723-5177, sfennych@comcast.net

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Wisconsin

Green Bay/Northeast Wisconsin
Dates/Times: Second Wednesday of every month, 1-3 p.m. 
Location: Bellin Health Family Medical & Wellness Center Bellevue
3263 Eaton Road
Green Bay, WI 54311
 
Support Group Leader: Valarie Hutchison
920-544-9676
sclerodermawi@gmail.com

 

Milwaukee Area
Dates/Times: Third Saturday of every month, 10 a.m. - 12 p.m.
Location: Froedtert Hospital (Community Conference Room 2)
8700 W. Watertown Plank Rd.
Milwaukee, WI 53226
Community Conference Room 2 located in the Wisconsin Athletic Club building.
Enter building on the 87th Street side and look for Community Conference Room entrance.

Support Group Leader: 
Kelly Kohls, sclerodermamilw@gmail.com
 

For more information about support groups in Wisconsin, please contact the Greater Chicago Chapter.

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Spanish-Speaking Contacts

  • In Los Angeles: Josephine Battyany, (310) 287-0793
  • In NY: Beatriz Nunez, 631-667-2655
  • In Puerto Rico: Manny Quevedo, 787-399-4038 (Monday – Friday 8:30 a.m. – 5 p.m. only), lordrealty@lordrealty.com

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Wilmington area Support Group

Support Group Leader- Betty Hughes- 1-910-231-7925

 

This group meets at the Pender County Public Library

103 S Cowan St, Burgaw, NC  28425

 

For upcoming meeting, please contact the Support Group Leader to confirm times and dates