Share Your Story

Become a Scleroderma Foundation Champion

Send Us Your Pictures, Too!

Patients. Family members. Friends. Health care professionals. Researchers. Volunteers. Donors. Sponsors.

No matter what your connection is to scleroderma, you have a story to tell. That’s why we’ve created the Scleroderma Foundation Champions. This group of individuals will inspire others who might be going through a difficult time and build awareness about scleroderma across the country.

It’s easy to become a Scleroderma Foundation Champion! Simply complete the form below to share your story.

Provide us with your personal information (name, age, email, phone contact, etc.)
Continue to Step 2 to share your story. (Note: You will need to log-in to the website to complete this step.)
If you have any difficulty submitting your story, please email it to mystory@scleroderma.org.

Please note: It may take 2-3 business days for your story to appear online. If you have any difficulty submitting your story or do not see it after several business days, please email it to mystory@scleroderma.org.

Here are some of the ways we could use your story:

A profile in the “Scleroderma Voice” magazine or a direct mail piece.
On Capitol Hill for our Advocacy Program.
Share it on our social media channels like Facebook, Twitter or YouTube.
To help promote a chapter or support group special event, like our “Stepping Out to Cure Scleroderma” walk and runs.
And, many more!

We will contact you if we’d like to use your story in the future.

Step One - About You

Please provide your information:

Name:

First Required	Last Required

Email: Required

Street 1:

City:

City	State

Phone Number:

Yes, I would like to receive e-mail from Scleroderma Foundation

Yes, I would like to receive postal mail from Scleroderma Foundation

Remember me.

Question - Not Required - Age:

Question - Not Required - Parents first and last name (if younger than 18):

Question - Required - May we use your story in our marketing and outreach efforts?

Need Help?

If you have any difficulty submitting your story, please contact the Scleroderma Foundation at (800) 722-4673. You also can email mystory@scleroderma.org. Please remember to send a photo along with your story.