National Scleroderma Foundation

Our Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
This is the default image
featured news Read the latest news and information from the Foundation.
April 9, 2024 The National Scleroderma Foundation Welcomes a Director of Communications

Please join us in welcoming Brian Perkins as the Director of Communications. In this role, he will oversee all…
April 3, 2024 The National Scleroderma Foundation Welcomes New Senior Director of Philanthropy

Please welcome Jean Martinho to the Foundation as our Senior Director, Philanthropy! In this role, she will lead the…
March 26, 2024 The National Scleroderma Foundation Pacific Northwest Chapter Welcomes a New Executive Director

Please join us in welcoming Kryston Skinner as the Executive Director of the Pacific Northwest Chapter. Kryston joins the…
March 25, 2024 The National Scleroderma Foundation Florida & Puerto Rico Chapter Welcomes a New Executive Director

Please join us in welcoming Lorraine Biaggi as the Executive Director of the Florida & Puerto Rico Chapter. Lorraine…
This is the default image
Sign Up for a Foundation Event Upcoming Events
April 24, 2024; 6 p.m. ET Teens and Parents Scleroderma Support Group
April 24, 2024; 7 p.m. ET LGBTQ+ Support Group
April 24, 2024; 7 p.m. ET The 20%: A Virtual Support Group for Males Living with Scleroderma
April 25, 2024; 7 p.m. ET Caregivers Support Group
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation