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Welcome to the Texas Bluebonnet Chapter Website!

We are here to serve you, so please feel free to contact us about our support groups, educational resources and other events.
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Upcoming Fundraisers

2018 Scleroderma Walks: Save the Date

Saturday, October 6, 2018:  Dallas/Fort Worth's "Stomp Out Scleroderma" Walk

  • Location:   Music City Mall (formerly Vista Ridge Mall)
       2401 S. Stemmons Fwy
       Lewisville, TX  75067
  • Registration: 8:30 a.m. (Pre-register or sign up as a "virtual walker" and start raising funds early by visiting www.scleroderma.org/dfwwalk)
  • Raffle begins: 9:00 a.m.  (Tickets available for purchase to enter drawings for great prizes
  • Event time:   10:00 a.m. 
  • For more details and to ask questions, like and/or share, please visit our DFW WALK FACEBOOK EVENT PAGE.

September - November, 2018:  Funds2Orgs Shoe Drive

  • Start saving your shoes, Texas!  Join the TBC in helping organize a Funds2Orgs shoe drive in your community. 
    [...read more here]

November 6, 2018:  You Dine - They Donate! at Fish City Grill in Southlake

  • Location: Fish City Grill
    2750 E. Southlake Blvd. Suite 130
    Southlake, TX  76092
  • Event Time: Tuesday, November 6, 2018 - ALL DAY
  • CLICK HERE for a map, hours of operation, and a full menu for this location.
After hosting our first Fish City Grill in Dallas' Lake Highlands location a few months back, we were excited to raise $933 towards our fight for the cure! 

Please spread the word and join us on Tuesday, November 6th at Fish City Grill in DFW's Southlake location as we strive to BEAT OUR BEST and exceed funds raised from our last dining event.  Fish City Grill has agreed to donate 15% of the day's proceeds toward the Scleroderma Foundation's Texas Bluebonnet Chapter. 

This is an excellent way to show your support and help be a part of the fight, so come hungry and be prepared to leave happy knowing you made a difference for patients and families affected by scleroderma across the state!

Coming in November/December 2018:  Gingerbread House Fundraiser

  • Location, time, and date TBD....  Stay tuned and follow us on FACEBOOK as we continue gathering more information for this exciting upcoming event.  


The TBC has a new YouTube channel

Help us reach 100 subscribers!

We are excited to announce that the Texas chapter has been busy adding excellent content to our new YouTube channel. Here, you will be able to view video content from past patient education events, fundraisers, and more...but we need your help!

We are hoping to boost our numbers by obtaining 100 subscribers. This milestone will grant our page a CUSTOM URL that will make this channel easier to find for those looking to access our library of videos.

Please show your support TODAY by visiting our new page and clicking the "Subscribe" button. We appreciate all the continuous love and support from our social media followers and look forward to finding even more ways to keep you informed on what all the Texas chapter is doing to fight for the cure.

CLICK HERE to visit our channel and subscribe!


"Stomp Out Scleroderma" Art Contest

Submit your original art for our NEW 2018 Slogan Contest for the Texas Bluebonnet Chapter and have your work featured in future sponsorship packages!

RULES TO APPLY:

1.  Anyone can enter his/her drawing or art:  Children, adults, patients, caregivers, family, and friends are all encouraged to submit.

2.  All art work/drawing submission MUST CONTAIN the words "Stomp Out Scleroderma".  

3.  You may use any Texas related images in your submission:  Boots, Texas state shape, bluebonnets, cowboys/girls, etc. 

4.  Must be your ORIGINAL ART:  drawings, illustrations, paintings.  Images from outside sources will not be accepted. 

5.  You accept that by submitting an art piece, you are giving the Scleroderma Foundation permission to post your piece on social media (with attribution), and/or to be used in any future promotion(s).  

6.  Submit a picture of your art, including a good contact name, phone number, and email address, to txchapter@scleroderma.org.

For questions, please email us at txchapter@scleroderma.org OR contact our office at (281) 880-4992.


Patient Education Events

January 26, 2019:  Houston's "Straight Talk: A Patient Perspective" 

  • Time, location, and other details are to be determined and will be posted as soon as they become available.  
For more info and updates, please check back or follow us on Facebook.

Advocacy and Awareness

Sunday, September 30, 2018:  "Jump For Scleroderma" at the YMCA of Greater San Antonio's Siclovia

  • WHAT IS SICLOVIA? <<<----Click to learn more!
  • Location:  Downtown San Antonio   (CLICK HERE for map/route for this event)
  • Event Time: 11:00 a.m. - 3:00 p.m.
  • Tickets: THIS IS A FREE EVENT, FAMILY FRIENDLY!

During September 30th's Siclovia, and in effort to spread Scleroderma awarness, the Texas Chapter invites children/participants will stay active by participating in jump roping as parents will be informed on all that is scleroderma (to include awareness, patient contacts, advocacy, and upcoming fundraiser walks).

Saturday, October 20, 2018:  San Antonio's 12th Annual AccessAbility Fest 2018

  • WHAT IS ACCESSABILITY FEST? <<<----Click to learn more!
  • Location: Market Square
    514 W. Commerce St.
    San Antonio, TX  78207
  • Event Time: 10:00 a.m. - 2:00 p.m.
  • Tickets: THIS IS A FREE EVENT, FAMILY FRIENDLY!

The TBC is excited to take part in this year's AccessAbility Fest held in San Antonio, TX.  This event is a festival focused on providing information, products, recreation, and other programs geared towards individuals facing physical, developmental, sensory and/or mental health challenges.

As a chapter, our participation will include the advocating of all available resources available through the Scleroderma Foundation on both state and national levels.  If you are in the area, we hope you will stop by and say hello!

For questions about these or any other advocacy and awarenss events, please contact Jacob at jdavila@scleroderma.org

Let it be known that June 29th is Texas' NEW Scleroderma Awareness Day!

Join us in celerating this monumental milestone made possible with the support of Governor Greg Abbot [...read full article here]

Let your voice be heard, and JOIN US!  You can help today by writing a letter that will allow us to continue to spread the message of URGENCY for Scleroderma research.  YOU ARE NOT ALONE!

CLICK HERE to get started writing your letter!


Chapter Support Group Meetings

HOUSTON UPDATE:

We now have TWO Houston area Support Groups:  One meeting in Deer Park to cover Houston's Southeast side, and another meeting at our new Texas Chapter office near I-45 and 1960 to cover Houston's North side. 

While you may choose to attend either meeting regardless of your current location, it is our hopes that forming an additional group will help boost attendance and make scheduling and travel a little more managable for our growing number of Greater Houston patients.  

Vist our Support Groups Home Page for Houston's NEW times, dates, and locations of a meeting most convenient for you. 

Want to learn how you can get started hosting support group meetings in your area?
Check out our brochure below and contact Kathy (below) for any questions you might have, OR visit our Texas Support Group page to find a group meeting near you.

NEW SUPPORT GROUP BROCHURE (ENGLISH) DOWNLOAD
NEW SUPPORT GROUP BROCHURE (ESPANOL) DOWNLOAD

Thank you, 
Kathy Baker, 
Support Group Services & Programs
email:  KBaker@scleroderma.org


 

About Membership:

Stay connected with the Scleroderma Foundation all year. Join the foundation today, and you will receive the quarterly national magazine, Scleroderma Voice, plus other news about special events, the latest research updates and more! Become a member today >>


Follow us on Social Media:

FACEBOOK        TWITTER       YOUTUBE

 

Mission

The Scleroderma Foundation has a three-fold mission of support, education, and research.

SUPPORT:  To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information.

EDUCATION:  To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns.

RESEARCH:  To stimulate and support research to improve treatments and, ultimately, find the cause and cure of scleroderma and related diseases. 

 

For more information about our chapter, feel free to download our brochure from a link below:

About Us

Executive Committee
Audrey Brouwer, Chapter President
Kathy Baker, Vice President, (c) Support Group Services/Programs and Services
Peggy Brown, Treasurer, (c) Budget and Finance
Diane Lee, Secretgary, (c) Social Media Volunteers

Board of Directors 
Misti Chapman
Debbi Charlton
Jacob Davila, (c) Public Awareness/Advocacy/Juvenile
Jason Delancy
Jovana Desarden
Jan Wilkerson

Committee Chairs and Office Volunteers (non-Board)
Emily Woods, (c) Medical Advisory Board
Jamie Adams, (c) Newsletter/Website
Cynthia Billings, Office Volunteer Coordinator

Medical Advisory Board
Shervin Assassi, M.D.
Gowri Balachandar, M.D.
Melissa Costner, M.D.
Alexander Duarte, M.D.
Hernando Garcia M.D.
Heidi Jacobe, M.D.
Mark D. Khorsandi, M.D.
Maureen D. Mayes, M.D.
Richard W. McCallum, M.D.
Philip L. Nauert, D.D.S. 
Dipan J. Shah, M.D. 
Matthew Q. Pompeo, M.D.

Contact Information

Audrey Brouwer, President 
Scleroderma Foundation 
Texas Bluebonnet Chapter
110 Cypress Station Drive, Suite 117
Houston, TX 77090

Phone: (281) 880-4992
Fax: (281) 880-4996
TXchapter@scleroderma.org


 

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

video.jpgVideo Gallery

Watch videos pertaining to events held by our chapter and a few fun extras.

 

Check Us Out On The Web!

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Actelion 2018

Boehringer Ingelheim 2018 Platinum National Sponsor          bayer-logo-2018-gold-national.jpg

          reata_horizontal_logo-2018-Bronze Natl

 

 

We now have TWO Houston area Support Groups: one in Deer Park for the Southeast side of Houston and the North Houston group meets at our new Texas Chapter office near I-45 and 1960.