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Tri-State Support Groups

Each support group provides a setting which is conducive for sharing concerns, information and feelings, in a confidential environment, where members provide encouragement, coping strategies and mutual support.  Meetings have both a social and an educational component which may include a guest speaker or DVD presentation.

We encourage patients to attend with their caregivers and family members allowing all to come to a better understanding of a patient’s journey with scleroderma, how this journey affects their relationships with others and to voice their own concerns when needed.

For additional information, to verify meeting dates/times (which may change due to inclement weather) contact the support group leader.  There is no charge to attend meetings and all are welcome.  However, solicitations or the conducting of research during meetings is prohibited.

Connecticut

Eastern CT
Leader: Letha Roome
Tel: (860) 933-1344
Email: EasternCT@scleroderma.org
Meeting Place: Day Kimball Hospital, Conference Room 
320 Pomfret St, Putnam, CT 06260
Time: 7:00 pm
Dates: 1/17, 2/21, 3/21, 4/18, 5/16, 6/20, 7/18, 8/15, 9/19, 10/17, 11/21, 12/19
Support Group flyer

Greater Enfield
Co- Leader: Teri Beebe
Tel: (860) 741-5028
Email: EnfieldCT@scleroderma.org
Co-Leader: Debra McMahon
Tel: (860) 299-5502
Meeting Place: Enfield Public Library 
104 Middle Rd, Enfield, CT 06082
Time: 6:00 pm
Dates: 2/7, 3/7, 4/4, 5/2, 6/10, Additional meetings TBA
Support Group flyer

Hartford
Leader: Wendi Jamison
Tel: (860) 335-1102
Email:Hartford@scleroderma.org
Meeting Place: UConn Health Outpatient Pavilion
263 Farmington Ave, Farmington Ct 06030
Time: 10:00 am
Dates: 5/20, 7/15, 9/16, 11/18
Support Group flyer

New Haven
Leader: Kristin Papu, PA
Tel: (203) 785-4163
Email: NewHaven@scleroderma.org
Meeting Place: Yale West Campus – Conf Center #800
100 West Campus Drive, Orange, CT 06477
Time: 1:00 pm
Dates: 4/18, 6/6, August date TBA
Support Group flyer

New Jersey

Bergen County
Leader: Natalie Puccio-Murdolo
Tel: (201) 838-4408
Email: BergenCountyNJ@scleroderma.org
Meeting Place A: Dorthy B. Kraft Center
15 Essex Rd, Paramus, NJ 07652
Meeting Place B: Whole Foods at The Outlets at Bergen Town Center
300 Bergen Town Center, Paramus, NJ 07652
Time & Dates: 2/22 (B 1 pm), 3/22 (B 1 pm), 4/13 (A 7 pm) , 5/11 (A 7 pm), 6/15 (A 7 pm), 7/12 (B 1 pm), 9/13 (TBD), 10/12 (A 7 pm), 11/9 (A 7 pm), 12/14 (A 7 pm)
Support Group flyer

Northern NJ
Leader: Anita Ryan
Tel: (973) 726-0677
Email: NorthernNJ@scleroderma.org
Meeting Place A: Saint Clare’s Dover Hospital 
400 W Blackwell St, Dover, NJ 07801
Meeting Place B: Dover Free Public Library
32 East Clinton St, Dover, NJ  07801
Dates & Time: 1 pm on: 4/14 (A), 4/11 (A), 5/9 (A), 6/13 (A), 9/19 (B), 10/10 (B), 11/14 (B)
Support Group flyer

New York 

Albany Capital District
(in memory of Lynn & Bob Rasmussen)
Co-Leader: Carla Gage
Tel: (518) 573-0259
Co-Leader: Raymond Littlejohn, Jr.
Tel: (518) 271-7025
Email: Albany@scleroderma.org
Meeting Place: Sunnyview Hospital
1270 Belmont Ave, Schenectady, NY 12308
Time: 2:00 pm
Dates: 3/11, 4/8, 5/13, 6/10, 10/14, 11/11, 12/9
Support Group flyer

Binghamton
Assistant Leader: Rosemary Markoff
Tel: (607) 727-6280
Email: Binghamton@scleroderma.org
Meeting Place: Lourdes Hospital- Lecture Hall (except Feb)
169 Riverside Drive, Binghamton, NY  13905 
Time: 6:30 pm
Dates: 2/4 (East/West Dining Room), 4/6, 6/1, 8/3, 10/5, 12/7
Support Group flyer

Buffalo
Leader: Kathy Leutze
Tel: (716) 689-8258
Email: Buffalo@scleroderma.org
Assistant Leader: Betzi Sheff
Tel: (716) 391-1146
Meeting Place: Our Lady of Peace Church - Community Center
10950 Main Street, Clarence, NY 14031
Time: 11:00 am
Dates: 1/28, 4/18, 5/20, 7/15, 9/16, 11/18
Support Group flyer

Cooperstown
Leader: Rebecca Davidson-Nielsen
Tel: (607) 547-5099
Email: Cooperstown@scleroderma.org
Assistant Leader: Marilyn Waterhouse
Tel: (607) 432-7115
Meeting Place: Jackie's Restaurant 
3688 Main Street, Milford, NY 13807
Time: 9:00 am
Dates: 1/14, 2/11, 3/11, 4/8, 5/13, 6/10, 7/8, 8/12, 9/9, 10/14, 11/11, 12/9
Support Group flyer

Greater Rochester
Leader: Marilyn Sibley
Tel: (585) 723-1026 or (585) 234-0398
Email: Rochester@scleroderma.org 
Meeting Place: University of Rochester Medical Center - Conference Room ACF-A/B
601 Elmwood Ave, Rochester, NY 14642
Time:1:00 pm
Dates: 3/11, 5/13, 9/9, 11/11
Support Group flyer

Long Island
(Spanish Speaking Leaders)
Leader: Beatriz Nunez
Tel: (631) 949-8265
Email: LongIsland@scleroderma.org
Assistant Leader: Myrna Carrasquillo 
Tel: (631) 398-3024
Meeting Place: Northwell Health Southside Hospital - Room 5T
301 East Main St, Bay Shore, NY 11706
Time: 10:00 am
Dates: 3/18, 5/20, 7/15, 9/16, 11/18
Support Group flyer

Nassau/Queens
Leader: Heidy Dornau
Tel: (917) 572-8154
Email: NassauQueens@scleroderma.org
Assistant Leader: Heather Hinkley
Tel: (631) 974-0072
Meeting Place: St. Philip & St. James Church - Parish Hall, back door
432 Lakeville Rd, Lake Success, NY  11040
Time: 1:00 pm
Dates: 4/1, 5/6, 6/3, 9/9, 10/7, 11/4, 12/2
Support Group flyer

New York City
Co-Leader: Tiese Mahabir
Tel: (917) 821-4831
Co-Leader: Zeba Hyder
Tel: (212) 777-2832
Email: NYC@scleroderma.org
Meeting Place: Hospital for Special Surgery - 2nd floor
535 East 70th St, New York, NY 10021
Time: 6:00 pm
Dates: 3/1 (Conf Rm C), 4/5 (Conf Rm C), 5/3 (Conf Rm C), 6/7 (Conf Rm C), 7/5 (Conf Rm C), 8/3 (Conf Rm A), 9/6 (Conf Rm A), 10/4 (Conf Rm C), 11/1 (Conf Rm C), 12/6 (Conf Rm C)
Support Group flyer

Staten Island
Leader: Jeanne Ryan
Tel: (917) 531-6564
Email:  StatenIsland@scleroderma.org
Meeting Place: Northwell Health System - Board Rm
375 Seguine Avenue, Staten Island, NY 10305
Time: 1:00 pm
Dates: 4/16, 5/21, 11/19, 12/17
Support Group flyer

Support Volunteers
These volunteers help to provide support to those that would like to converse on the phone or meet one on one in areas where there are no local support groups to attend.

Adirondack Region (NY)
Support Contact: Wendy Faubert
Tel: (518) 566-1280
Email: Plattsburgh@scleroderma.org

Central NY Region
Support Contact: Suzanne Craft
Tel: (315) 953-4011
Email: CentralNY@scleroderma.org

2017 ScleroMen logo
ScleroMen Facebook Group

Because scleroderma manifests itself in a unique way in men, their issues and concerns are unique as well. This support system provides a means for men with scleroderma to connect with each other - share stories, seek advice and ask questions - in a caring and supportive environment. Join ScleroMen and become part of an understanding and educated group of men finding ways to deal with scleroderma and its complications. The ScleroMen Facebook page is closed, only men with scleroderma may join by request.

Co-Leaders: Andrew Botieri (508) 982-7523 and Lee Korotzer
ScleroMen@Scleroderma.org

2017 Scleroderma Super Starz
Scleroderma Super Starz Facebook Group

Scleroderma Super Starz provides emotional and educational support to teens and young adults (13-40 years old) as well as their families & caregivers. The Super Starz will focus on sharing experiences and providing an opportunity to network, to post disease-related information, and share common concerns. This group will be a safe, non-judgmental forum for members to speak openly and share ideas for coping with the struggles faced by those with scleroderma in an environment of mutual support.

Leader: Amy Gietzen (716) 479-0756
SclerodermaSuperStarz@Scleroderma.org

2017 Tri-State Connect logo
Tri-State Connect provides support and education for scleroderma patients, family members and caregivers over the telephone. Meetings are generally held on the 3rd Tuesday of the month. Each call features a guest speaker followed by a Q&A. Meeting recordings are posted on our website within a week so they are available in case you miss a call - join us!
Find past recordings here
Download a flyer
Tel: 607-723-2239    Email: TSconnect@scleroderma.org
2017 Meeting Schedule
Time:  2:00 pm     Dates: 2/21, 4/18, 6/20, 8/15, 10/17, 12/19

Join meetings from your computer, tablet or smartphone: https://www.gotomeet.me/SFTriState
Dial in using your phone: 1 (224) 501-3412 Access Code: 262-512-989

inspire logo

Inspire.com On-Line

Convenient for anyone that does not live near one of our group meeting places or cannot attend meetings. Here you can post general questions and share advice with others. Make a friend request to MBCady for personal replies.

Support Groups are so important because they keep us connected with those we serve. If you are interested in starting a new group in an area that is currently underserved, please call the Tri-State Chapter (800) 867-0885 or email mbbkadylak@sclerodermatristate.org. Thank you!