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Find Support in Your Area

Is there a group in your community?  Visit our support group web-page here  If you don’t find one close to you, consider starting one yourself!  We will help you all the way!

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Save up to 87% on prescriptions!

You deserve the lowest price on your generic drugs! The SFTS RxCut Prescription Savings card is FREE with NO enrollment, activation or expiration date. PLUS with every use, a portion of the proceeds benefit the Tri-State Chapter!


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Educate Yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

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Scleroderma: The Truth by Virginia M Orzel

This film will help the audience understand Scleroderma and the struggles people face with this disease. The film includes professional interviews from Steffens Clinic in Albany, NY, as well as personal stories.

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Missed an Education Forum? You can still hear from the scleroderma experts.
The Tri-State Chapter offers an extensive resource library at www.SclerodermaVideo.com

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Take Control of Health Care Expenses with a Tri-State RxCut Prescription Savings Card!

With your FREE RxCut card, you'll have access to prescription medications at 50 to 87 percent rate reductions. The savings are made possible by RxCut® whose program is FREE to members.

Click here to learn more


About Us

Board of Directors 


Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Suzy Ballantyne

Mary Contadino 
Carla Gage 
Estelle Randolph
Frederick Shaw 
Jeffery Toromoreno 

Mark and Helene Flapan

Medical Advisory Board 

Harry Spiera, M.D. 
Robert Spiera, M.D. 

Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.


Contact Information

Bruce R. Cowan, Executive Director -bcowan@sclerodermatristate.org

Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039


Mary Beth Bobik Kadylak, Director of Patient Education & Support 

Marylouise Doyle, Communications Manager


Kyle Mills, Fundraising Manager

Candice Snider, Bookkeeper

2015 Financial Information

2015 Scleroderma Foundation, Tri-State Chapter Audited Financials

2015 IRS Form 990



Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improved methods of treatment and;
  • To enhance the public’s awareness of this disease.




2017 Educational and Research Forums



April 29, 2017
535 East 70th Street
New York, NY 10021
Richard L. Menschel Education Center
Second Floor 
 August 19, 2017 

Daemen College
4380 Main Street
Amherst, NY 14226

Click here for details

September 16, 2017   

The Bone & Joint Center
1367 Washington Ave
Albany, NY 12206

September 30, 2017

UCONN Health Center
263 Farmington Avenue
Farmington, CT 06030

October 14, 2017  Rochester Educational Opportunity Center
161 Chestnut Street
Rochester, NY 14604

October 22, 2017 Rutgers University Student Center
126 College Avenue
New Brunswick, NJ 08901
Graduate Student Lounge

November 19, 2017

Annual Research Forum
Hospital for Special Surgery
535 East 70th Street
New York, NY 10021
Richard L. Menschel Education Center
Second Floor

December 9, 2017

Mt. Sinai Beth Israel
Leon and Norma Hess Center
 for Science and Medicine

1470 Madison Avenue
New York, NY 10029



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