Support Group 7-22-15

Find Support in Your Area

Is there a group in your community?  Visit our support group web-page here  If you don’t find one close to you, consider starting one yourself!  We will help you all the way!

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Tri-State Accomplishments for 2016!

please consider making an investment in the Tri-State Chapter this year with a meaningful donation. Click here for more information.

 

Educate Yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

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2017 Walk Logo Tri-State 

Here's your chance to get involved in our main fundraising event! We look forward to seeing you at a walk near you!

Click the Upcoming Events tab for the Stepping Out to Cure Scleroderma 2017 walk schedule.

 Scleroderma: The Truth

This film short will help people understand Scleroderma. And also help patients know there are people going through the same thing and know there is help.

 

Tri-State EDU LOGO

Missed a 2016 Educational Forum? You can still hear from the scleroderma experts.
The Tri-State Chapter offers an extensive resource library at www.SclerodermaVideo.com

Bruce R. Cowan

Scleroderma Foundation Tri-State Chapter Appoints Bruce Cowan Executive Director 

Binghamton, NY December 1, 2016:

The Board of Directors of the Tri-State Chapter has appointed Bruce Cowan its new Executive Director to lead the chapter from the Binghamton NY office.

Click here for the press release

 

About Us

Board of Directors 

Officers

Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Estelle Randolph
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board 

Co-Chairs
Harry Spiera, M.D. 
Robert Spiera, M.D. 

Members
Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

 

Contact Information

Chapter Contacts
Bruce R. Cowan, Executive Director -bcowan@sclerodermatristate.org

Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039

Staff 
Bruce R. Cowan, Executive Director 
bcowan@sclerodermatristate.org
Alex Matich, Director of Development 
amatich@sclerodermatristate.org

Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org
Marylouise Doyle, Communications Manager

mdoyle@sclerodermatristate.org
Mallory Evans, Fundraising Manager

mevans@sclerodermatristate.org
Candice Snider, Operations Specialist
csnider@sclerodermatristate.org 

2015 Financial Information

2015 Scleroderma Foundation, Tri-State Chapter Audited Financials

2015 IRS Form 990

2014 Financial Information

2014 Scleroderma Foundation, Tri-State Chapter Audited Financials

2014 IRS Form 990

 

 

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

New 2017 Walk email header

2017 Stepping Out to Cure Scleroderma

Walk Location Date  Registration Walk
Albany Crossgates Mall June 4   6:30 pm 7:30 pm 
Binghamton Otsiningo Park June 4    9:00 am 10:00 am
Buffalo Eastern Hills Mall June 3   10:00 am 11:00 am 
Hartford University of St. Joseph June 10   9:00 am 10:30 am 
Long Island Wantagh Park June 4   9:00 am 10:30 am 
Manhattan Riverside Park at 96th St June 11   9:00 am 10:15 am
Poughkeepsie Vassar College June 17   9:00 am 10:15 am
Ridgefield Park   Overpeck Park  June 4   9:00 am 10:30 am 
Rochester Seneca Park June 3   9:00 am 10:00 am
Stamford Westhill High School June 25   9:00 am 10:00 am 
Staten Island Franklin D. Roosevelt Boardwalk & Beach June 25   9:00 am 10:30 am
Syracuse Onondaga Lake Park June 11   9:00 am 10:00 am 
Westchester Irvington Union Free High School   June 11   9:00 am 10:30 am 

2017 Educational and Research Forums

Date                        

Location

April 23, 2017
 Hospital for Special Surgery
 535 East 70th Street
 New York, NY 10021
 Richard L. Menschel Education Center
 Second Floor 
 TBD    Stony Brook University Hospital
 101 Nicols Rd
 Stony Brook, NY 11794
 Lobby Conference Room 
TBD

 Geisinger Wilkes-Barre
 1000 East Mountain Blvd
  WIlkes-Barre, PA 18711

TBD          The Bone & Joint Center
 1367 Washington Ave
 Albany, NY 12206
TBD  Yale University, West Campus
 141 Frontage Rd
 Building B25
 Orange, CT 06477 
TBD  Rochester Educational Opportunity Center
 161 Chestnut St
 Rochester, NY 14604
TBD  Mt. Sinai Beth Israel
 Ambulatory Surgery Center

 10 Union Square E.
 New York, NY 10003 
TBD  Rutgers University Student Center
 126 College Avenue
 New Brunswick, NJ 08901
 Graduate Student Lounge 
TBD  KGS2 - Kids Get Scleroderma Too!
 HackensackUMC, John Theuer Cancer Center
 92 Second St
 Hackensack, NJ 07601 
TBD
 Research Forum
 Hospital for Special Surgery
 535 East 70th Street
 New York, NY 10021
 Richard L. Menschel Education Center
 Second Floor 

 

 

     
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