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Find Support in Your Area

Is there a group in your community?  Visit our support group web-page here  If you don’t find one close to you, consider starting one yourself!  We will help you all the way!

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Save up to 87% on prescriptions!

You deserve the lowest price on your generic drugs! The SFTS RxCut Prescription Savings card is FREE with NO enrollment, activation or expiration date. PLUS with every use, a portion of the proceeds benefit the Tri-State Chapter!

 

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Educate Yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

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Scleroderma: The Truth by Virginia M Orzel

This film will help the audience understand Scleroderma and the struggles people face with this disease. The film includes professional interviews from Steffens Clinic in Albany, NY, as well as personal stories.

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REGISTRATION IS OPEN!

Visit our Tri-State 2018 Stepping Out To Cure Scleroderma walks schedule and join a walk in your area today!

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Missed an Educational Forum? You can still hear from the scleroderma experts.
The Tri-State Chapter offers an extensive resource library at www.SclerodermaVideo.com

Scleroderma: The Truth

This film short will help people understand Scleroderma. Also, help patients know there are people going through the same thing and know there is help.

Click here to watch

 

About Us

Board of Directors 
Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board 
Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 

Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.
Honorary Member
Harry Spiera, M.D.

 

Contact Information

Bruce R. Cowan, Executive Director
bcowan@sclerodermatristate.org


Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free: 800-867-0885
Fax: 607-723-2039

Staff 

Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org


Marylouise Doyle, Communications Manager

mdoyle@sclerodermatristate.org


Kyle Mills, Fundraising Manager
kmills@sclerodermatristate.org


Candice Snider, Bookkeeper
csnider@sclerodermatristate.org

 

 

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

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2018 Stepping Out to Cure Scleroderma

Businesses that are interested in becoming sponsors for this event, please
contact our Fundraising Manager, Kyle Mills.
KMills@SclerodermaTriState.org or 800-867-0885 
Walk Location Date  Registration Walk
Albany

Crossgates Mall

 June 3 6:30 pm 7:30 pm
Binghamton

Otsiningo Park

 June 3    9:00 am 10:00 am
Hartford

University of St. Joseph

 June 30   9:00 am 10:30 am 
Long Island

Wantagh Park

 June 24   9:00 am 10:30 am 
Manhattan

Riverside Park 96th St

 June 10   9:00 am 10:15 am
Poughkeepsie

Vassar College

 June 16   9:00 am 10:15 am
Ridgefield Park  

Overpeck Park 

 June 9   9:00 am 10:30 am 
Rochester

Seneca Park

 June 2   9:00 am 10:00 am
Westchester

Waterfront Park

 June 24   9:00 am 10:30 am 

2018 Educational and Research Forums

Date

Location

May 19
Register here
Columbia University Medical Center
Tower 103
3959 Broadway at 165th Street
New York, NY 10032
September 15   The Bone & Joint Center
1367 Washington Ave
Albany, NY 12206
September 8 Northwell Health Center
865 Northern Blvd
Great Neck, NY 11021
October 6  Rochester Patient Education Forum
(TBA) Rochester, NY
October 26-27 KGS2! ‘18
Colorado Children’s Hospital
13123 E 16th Avenue
Aurora, CO 
November 17

Annual Research Forum
Hospital for Special Surgery
535 East 70th Street
New York, NY 10021
Richard L. Menschel Education Center
Second Floor

 

 

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