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Talk the Walk!

You can use your Stepping Out to Cure Scleroderma walk page to continue raising funds. You can still sign-up as a Virtual Walker and even create a team. All the tools will help you continue your mission to support the cause!

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Save up to 87% on prescriptions!

You deserve the lowest price on your generic drugs! The SFTS RxCut Prescription Savings card is FREE with NO enrollment, activation or expiration date. PLUS with every use, a portion of the proceeds benefit the Tri-State Chapter!

 

Tri-State Support Groups

Find support that fits your lifestyle

Visit our support group web-page here  If you don’t find a support group to fit your lifestyle, consider starting one yourself!  We will help you all the way!

Scleroderma_The Truth_short film

Scleroderma: The Truth by Virginia M Orzel

This film will help the audience understand Scleroderma and the struggles people face with this disease. The film includes professional interviews from Steffens Clinic in Albany, NY, as well as personal stories.

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2017 UnTeal There's A Cure _ ITEMS

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Missed an Educational Forum? You can still hear from the scleroderma experts.
The Tri-State Chapter offers an extensive resource library at www.SclerodermaVideo.com

Scleroderma: The Truth

This short film will help people better understand Scleroderma. Share it with friends and family.

Scleroderma: The Truth

 

About Us

Board of Directors 
Officers
Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Estelle Randolph
Jonathan Schorr
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board 
Chair
Robert Spiera, M.D. 

Members
Elana Bernstein, M.D.
Howard Blumstein, M.D. 

Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.
Honorary Member
Harry Spiera, M.D.

 

Contact Information

Bruce R. Cowan, Executive Director
bcowan@sclerodermatristate.org


Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free: 800-867-0885
Fax: 607-723-2039

Staff 

Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org


Marylouise Doyle, Communications Manager

mdoyle@sclerodermatristate.org


Kyle Mills, Fundraising Manager
kmills@sclerodermatristate.org


Candice Snider, Bookkeeper
csnider@sclerodermatristate.org

 

 

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

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2018 Educational and Research Forums 

Date

Location

May 19

Columbia University Medical Center - Tower 103
3959 Broadway at 165th Street, New York, NY 10032
Now on Video: Speaker 1; Speaker 2; Speaker 3

September 8
Register

Northwell Health Center
865 Northern Boulevard, Great Neck, NY 11021

September 15
Register  

The Bone & Joint Center
1367 Washington Avenue, Albany, NY 12206

October 6
Register 

Rochester Patient Education Forum
Monroe Community College

1000 East Henrietta Road, Rochester, NY

 October 26-27   
Register   

2018 KGS2!
Colorado Children’s Hospital
13123 E 16th Avenue, Aurora, CO 

November 17
Register

Annual Research Forum
Hospital for Special Surgery
535 East 70th Street, New York, NY 10021
Richard L. Menschel Education Center - Second Floor

 

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All the reasons you supported the Scleroderma Foundation through
Stepping Out to Cure Scleroderma still remain. And so does your Walk page.
Renew your mission so we can continue ours!

Walk Location Date  Registration Walk
Albany

Crossgates Mall

 June 3 6:30 pm 7:30 pm
Binghamton

Otsiningo Park

 June 3    9:00 am 10:00 am
Hartford

University of St. Joseph

 June 30   9:00 am 10:30 am 
Long Island

Wantagh Park

 June 24   9:00 am 10:30 am 
Manhattan

Riverside Park 96th St

 June 10   9:00 am 10:15 am
Poughkeepsie

Vassar College

 June 16   9:00 am 10:15 am
Ridgefield Park  

Overpeck Park 

 June 9   9:00 am 10:30 am 
Rochester

Seneca Park

 June 2   9:00 am 10:00 am
Westchester

Waterfront Park

 June 24   9:00 am 10:30 am 

 

Actelion 2018

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