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Find Support in Your Area

Is there a group in your community?  Visit our support group web-page here  If you don’t find one close to you, consider starting one yourself!  We will help you all the way!

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Tri-State Accomplishments for 2016!

please consider making an investment in the Tri-State Chapter this year with a meaningful donation. Click here for more information.

 

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Educate Yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

Kids Get Scleroderma Too

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2017 Walk Logo Tri-State 

Here's your chance to get involved in our main fundraising event! We look forward to seeing you at a walk near you!

Businesses and corporations that are interested in becoming sponsors for this event, please contact our Fundraising Manager, Kyle Mills at KMills@SclerodermaTriState.org or 800-867-0885

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2017 UnTeal There's A Cure _ ITEMS

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Missed a 2016 Educational Forum? You can still hear from the scleroderma experts.
The Tri-State Chapter offers an extensive resource library at www.SclerodermaVideo.com

Scleroderma: The Truth

This film short will help people understand Scleroderma. Also, help patients know there are people going through the same thing and know there is help.

Click here to watch

 

About Us

Board of Directors 

Officers

Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Estelle Randolph
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board 

Co-Chairs
Harry Spiera, M.D. 
Robert Spiera, M.D. 

Members
Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

 

Contact Information

Bruce R. Cowan, Executive Director -bcowan@sclerodermatristate.org

Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039

Staff 

Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org


Marylouise Doyle, Communications Manager

mdoyle@sclerodermatristate.org


Fundraising Managers:
Mallory Evans, mevans@sclerodermatristate.org 
Kyle Mills, kmills@sclerodermatristate.org


Candice Snider, Operations Specialist
csnider@sclerodermatristate.org 

2015 Financial Information

2015 Scleroderma Foundation, Tri-State Chapter Audited Financials

2015 IRS Form 990

 

 

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

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2017 Stepping Out to Cure Scleroderma

Businesses and corporations that are interested in becoming sponsors for this event, please
contact our Fundraising Manager, Kyle Mills at KMills@SclerodermaTriState.org
or 800-867-0885 

 

Walk Location Date  Registration Walk
Albany Crossgates Mall June 4   6:30 pm 7:30 pm 
Binghamton Otsiningo Park June 4    9:00 am 10:00 am
Buffalo Eastern Hills Mall June 3   10:00 am 11:00 am 
Hartford University of St. Joseph June 10   9:00 am 10:30 am 
Long Island Wantagh Park June 4   9:00 am 10:30 am 
Manhattan Riverside Park at 96th St June 11   9:00 am 10:15 am
Poughkeepsie Vassar College June 17   9:00 am 10:15 am
Ridgefield Park   Overpeck Park  June 11   9:00 am 10:30 am 
Rochester Seneca Park June 3   9:00 am 10:00 am
Stamford NOW AT Irvington Union Free High School June 11   9:00 am 10:30 am 
Staten Island Franklin D. Roosevelt Boardwalk & Beach June 25   9:00 am 10:30 am
Syracuse Onondaga Lake Park June 11   9:00 am 10:00 am 
Westchester Irvington Union Free High School   June 11   9:00 am 10:30 am 

2017 Educational and Research Forums

Date                        

Location

April 29, 2017
535 East 70th Street
New York, NY 10021
Richard L. Menschel Education Center
Second Floor 
 August 19, 2017  Daemen College
4380 Main Street
Amherst, NY 14226 
September 16, 2017         The Bone & Joint Center
1367 Washington Ave
Albany, NY 12206
October 14, 2017 Rochester Educational Opportunity Center
161 Chestnut St
Rochester, NY 14604
TBD Mt. Sinai Beth Israel
Ambulatory Surgery Center

10 Union Square E.
New York, NY 10003 
October 22, 2017 Rutgers University Student Center
126 College Avenue
New Brunswick, NJ 08901
Graduate Student Lounge 
TBD

UCONN Health Center
263 Farmington Ave
Farmington, CT 06030

November 19, 2017
Annual Research Forum
Hospital for Special Surgery
535 East 70th Street
New York, NY 10021
Richard L. Menschel Education Center
Second Floor 

 

 

National Gold Sponsor

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National Bronze Sponsor / Conference Platinum Sponsor

Bayer logo

National Silver Sponsor

Gilead Logo

National Bronze Sponsor

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Saul & Eleanor Lerner Foundation, Inc.

 

      
 
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