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Find Support in Your Area

Is there a group in your community?  Visit our support group web-page here  If you don’t find one close to you, consider starting one yourself!  We will help you all the way!

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Save up to 87% on prescriptions!

You deserve the lowest price on your generic drugs! The SFTS RxCut Prescription Savings card is FREE with NO enrollment, activation or expiration date. PLUS with every use, a portion of the proceeds benefit the Tri-State Chapter!


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Educate Yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

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Scleroderma: The Truth by Virginia M Orzel

This film will help the audience understand Scleroderma and the struggles people face with this disease. The film includes professional interviews from Steffens Clinic in Albany, NY, as well as personal stories.

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Missed an Education Forum? You can still hear from the scleroderma experts.
The Tri-State Chapter offers an extensive resource library at www.SclerodermaVideo.com

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Take Control of Health Care Expenses with a Tri-State RxCut Prescription Savings Card!

With your FREE RxCut card, you'll have access to prescription medications at 50 to 87 percent rate reductions. The savings are made possible by RxCut® whose program is FREE to members.

Click here to learn more


About Us

Board of Directors 


Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Suzy Ballantyne

Mary Contadino 
Carla Gage 
Estelle Randolph
Frederick Shaw 
Jeffery Toromoreno 

Mark and Helene Flapan

Medical Advisory Board 

Harry Spiera, M.D. 
Robert Spiera, M.D. 

Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.


Contact Information

Bruce R. Cowan, Executive Director -bcowan@sclerodermatristate.org

Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039


Mary Beth Bobik Kadylak, Director of Patient Education & Support 

Marylouise Doyle, Communications Manager


Kyle Mills, Fundraising Manager

Candice Snider, Bookkeeper

2015 Financial Information

2015 Scleroderma Foundation, Tri-State Chapter Audited Financials

2015 IRS Form 990



Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improved methods of treatment and;
  • To enhance the public’s awareness of this disease.




Stepping Out to Cure Scleroderma Walk Schedule


2018 Date

Registration/Walk start


Albany, NY

June 3

6:30 pm  /  7:30 pm

Crossgates Mall

Binghamton, NY

June 3

9:00 am  /  10:00 am

Otsiningo Park

Hartford, CT

June 30

9:00 am  /  10:30 am

University of St Joseph

Long Island, NY

June 24

9:00 am  /  10:30 am

Wantagh Park

Manhattan, NY

June 10

9:00 am  /  10:15 am

Riverside Park 96th St

Poughkeepsie, NY

June 16

9:00 am  /  10:15 am

Vassar College

Ridgefield Park, NJ

June 9

9:00 am  /  10:30 am

Overpeck Park

Rochester, NY

June 2

9:00 am  /  10:00 am

Seneca Park

Westchester, NY

June 24

9:00 am  /  10:30 am

Waterfront Park


2018 Patient Education Forum Schedule


2018 Date



New York, NY

May 19

Columbia Presbyterian Morgan Stanley Children’s Hospital

3959 Broadway at 165th St

Albany, NY

September 15

Bone and Joint Center

1367 Washington Ave

Long Island, NY

September (TBA)

Northwell Health

100 E 77th Street

Rochester, NY

October 6



Aurora, CO

October 26-27

KGS2! ‘18 - Colorado Children’s Hospital

13123 E 16th Avenue

New York, NY

November 17

Annual Research Forum - Hospital for Special Surgery

Richard L. Menschel Education Center - Second Floor, 535 East 70th Street


Diamond National Sponsor

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National Bronze Sponsor / Conference Platinum Sponsor

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National Silver Sponsor

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National Bronze Sponsor

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Boehringer Ingelheim

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