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Find Support in Your Area

Is there a group in your community?  Visit our support group web-page here  If you don’t find one close to you, consider starting one yourself!  We will help you all the way!

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Save up to 87% on prescriptions!

You deserve the lowest price on your generic drugs! The SFTS RxCut Prescription Savings card is FREE with NO enrollment, activation or expiration date. PLUS with every use, a portion of the proceeds benefit the Tri-State Chapter!

 

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Educate Yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

Kids Get Scleroderma Too

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Missed an Education Forum? You can still hear from the scleroderma experts.
The Tri-State Chapter offers an extensive resource library at www.SclerodermaVideo.com

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Take Control of Health Care Expenses with a Tri-State RxCut Prescription Savings Card!

With your FREE RxCut card, you'll have access to prescription medications at 50 to 87 percent rate reductions. The savings are made possible by RxCut® whose program is FREE to members.

Click here to learn more

 

About Us

Board of Directors 

Officers

Marc Krieger, President 
Rosemary Markoff, Treasurer 
Marilyn Sibley, Secretary

Members 
Suzy Ballantyne

Mary Contadino 
Carla Gage 
Estelle Randolph
Frederick Shaw 
Jeffery Toromoreno 

Founders 
Mark and Helene Flapan

Medical Advisory Board 

Co-Chairs
Harry Spiera, M.D. 
Robert Spiera, M.D. 

Members
Howard Blumstein, M.D. 
Avram Goldberg, M.D. 
Jessica Gordon, M.D. 
Barry L. Gruber, M.D. 
Charles P. Melone, Jr., M.D. 
Maria Luisa Padilla, M.D.  
Lee Shapiro, M.D.

 

Contact Information

Bruce R. Cowan, Executive Director -bcowan@sclerodermatristate.org

Scleroderma Foundation Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039

Staff 

Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org


Marylouise Doyle, Communications Manager

mdoyle@sclerodermatristate.org


Kyle Mills, Fundraising Manager
kmills@sclerodermatristate.org


Candice Snider, Bookkeeper
csnider@sclerodermatristate.org 

2015 Financial Information

2015 Scleroderma Foundation, Tri-State Chapter Audited Financials

2015 IRS Form 990

 

 

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey, and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is threefold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

2017 Educational and Research Forums

Date                        

Location

April 29, 2017
535 East 70th Street
New York, NY 10021
Richard L. Menschel Education Center
Second Floor 
 August 19, 2017  Daemen College
4380 Main Street
Amherst, NY 14226 
September 16, 2017    The Bone & Joint Center
1367 Washington Ave
Albany, NY 12206
September 30, 2017 UCONN Health Center
263 Farmington Avenue
Farmington, CT 06030
October 14, 2017  Rochester Educational Opportunity Center
161 Chestnut Street
Rochester, NY 14604 
October 22, 2017 Rutgers University Student Center
126 College Avenue
New Brunswick, NJ 08901
Graduate Student Lounge 
November 19, 2017

Annual Research Forum
Hospital for Special Surgery
535 East 70th Street
New York, NY 10021
Richard L. Menschel Education Center
Second Floor

December 9, 2017
Mt. Sinai Beth Israel
Ambulatory Surgery Center
10 Union Square E.
New York, NY 10003 

 

 

National Gold Sponsor

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