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Help Spread The Word

Join us this month and support our international awareness campaign. Visit HardWord.org for more information.

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Time to Step Out!

Break out your favorite sneakers and your teal! Start Stepping Out to Cure Scleroderma today!
Find your walk and make your team here.

Educate Yourself

Find streaming videos of our educational programs all in one place. Sclerodermavideo.com

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 Scleeroderma Aware hardword

HARD WORD. HARDER DISEASE.

We’ll make it easier for you. Help us make it easier for them.

Join us this month and support our international awareness campaign. Visit HardWord.org for more information.

 Stepping Out  

Tie your sneakers and Step Out

Find your walk and start Stepping Out to Cure Scleroderma
Join us this year

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Chapter Support Group Meetings
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What is scleroderma?
View videos at sclerodermavideo.com
Latest Scleroderma Exchange Newsletter

 

About Us

Contact Information

Chapter Contacts
Jay Peak, Executive Director -jpeak@sclerodermatristate.org

SF Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039

Staff 
Jay Peak, Executive Director 
jpeak@sclerodermatristate.org
Alex Matich, Director of Development 
amatich@sclerodermatristate.org
Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@sclerodermatristate.org
Cassaundra Conant
Communications Manager
cconant@sclerodermatristate.org


2013 Financial Information

2013 Annual Report

2013 Scleroderma Foundation, Tri-State Chapter Audited Financials

2013 IRS Form 990

2012 Financial Information

2012 Annual Report

2012 Scleroderma Foundation, Tri-State Chapter Audited Financials

2012 IRS Form 990

Board of Directors

Officers

Jeff Mace, Co-President
Bruce Cowan, Co-President
Marc Krieger, Vice President 
Rosemary Markoff, Treasurer 
June Bender, Secretary


Members
Suzy Ballantyne
Maryann Caliri
Gerry Kirschner
Estelle Randolph
Fred Shaw 
Marilyn Sibley
Debra Signorelli 

Founders
Mark and Helene Flapan

 

Medical Advisory Board
Co-Chairs

Harry Spiera, M.D.
Robert Spiera, M.D.
Members
Howard Blumstein, M.D.
Avram Goldberg, M.D.
Jessica Gordon, M.D.
Barry L. Gruber, M.D.
Charles P. Melone, Jr., M.D.
Maria Luisa Padilla, M.D.
Naomi F. Rothfield, M.D.
Lee Shapiro, M.D.

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

Educational and Research Forums 2015

Date

Location

April 26, 2015 Hospital for Special Surgery
535 E 70th St. New York, NY 10021
September 12, 2015
The Bone & Joint Center  
1367 Washington Avenue, Albany, NY 12206 
October 10, 2015 The Villages at Unity
1471 Long Pond Road, Rochester, NY 14626
October 25, 2015 Rutger’s University
56 College Ave New Brunswick, New Jersey
November 14, 2014 HSS Research Forum
Hospital for Special Surgery
535 E 70th St. New York, NY 10021

 

Stepping Out Header

2015 Stepping Out to Cure Scleroderma

Walk Location Date  Registration Walk
Albany  Crossgates Mall  June 7 6:30 pm 7:30 pm 
Binghamton  Otsiningo Park June 7  9:00 am 10:00 am
Buffalo  Eastern Hills Mall  June 6 10:00 am 11:00 am 
Hartford  Blue Back Square  June 13 9:00 am 10:30 am 
Long Island  Wantagh Park  June 7 9:00 am 10:30 am 
Manhattan  Riverside Park at 96th St  June 14 9:00 am 10:15 am
Plattsburgh  Beekmantown Town Hall Park  June 14 9:00 am  10:15 am
Poughkeepsie  Vassar College  June 20 9:00 am 10:15 am
Ridgefield Park  Overpeck Park   May 31  9:00 am 10:30 am 
Rochester  Seneca Park  June 6  9:00 am 10:00 am
Stamford  Westhill High School  June 28  9:00 am 10:00 am 
Staten Island Clove Lakes Park June 20 9:00 am 10:30 am
Syracuse  Onondaga Lake Park  June 14  9:00 am 10:00 am 
Westchester Irvington Union Free High School May 31 9:00 am 10:30 am 

 

 

 



  

 

 




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