Tri-State Chapter

I want to:

Sign-up for Updates

What's Happening
About Us
Events
Sponsors

Chapter Support Group Meetings

Get Ready to Walk!

Find out where your closest walk is to Step Out to Cure Scleroderma by clicking on Events above, or find information here .

Educational Forums

Scleroderma Educational Forum Yale Univerity 6/22
Register Now

News

What is scleroderma?
View videos at sclerodermavideo.com
Newsletter, Volume 2 2013

Stay Connected with the Tri-State Chapter

Find us on Facebook
Follow us on Twitter

Watch our 10 minute video "Living with Scleroderma"

About Us	Contact Information Chapter Contacts Jay Peak, Executive Director -jpeak@scleroderma.org SF Tri-State, Inc. Chapter 59 Front Street Binghamton, NY 13905 Phone: 607-723-2239 Toll-free Phone: 800-867-0885 Fax: 607-723-2039 Staff Jay Peak, Executive Director jpeak@scleroderma.org Alex Matich, Director of Development - amatich@scleroderma.org Mary Beth Bobik Kadylak, Director of Patient Education & Support mbbkadylak@scleroderma.org Jocelyn Bailey, Communications Director jbailey@scleroderma.org 2012 Financial Information 2012 Scleroderma Foundation, Tri-State Chapter Audited Financials 2012 IRS Form 990 2011 Financial Information 2011 Annual Report 2011 Scleroderma Foundation, Tri -State Chapter Audited Financials 2011 IRS Form 990
Board of Directors *Officers* Jeff Mace, President Bruce Cowan, Vice President Rosemary Markoff, Treasurer June Bender, Secretary *Members* Maryann Caliri Emily Chillino Andrea Goldstein Gerry Kirschner Marc Krieger Estelle Randolph Debra Signorelli Patricia Waszmer Joanie Weick Founders Mark and Helene Flapan

Medical Advisory Board Co-Chairs Harry Spiera, M.D. Robert Spiera, M.D. *Members* Howard Blumstein, M.D. Avram Goldberg, M.D. Jessica Gordon, M.D. Barry L. Gruber, M.D. Charles P. Melone, Jr., M.D. Maria Luisa Padilla, M.D. Naomi F. Rothfield, M.D. Lee Shapiro, M.D.
Tri-State Chapter Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey and Connecticut. "Life is a journey, not a destination." Ralph Waldo Emerson Why Are We Here? Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark. Who Are We? We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you. Our Mission The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold: To provide educational and emotional support to people with scleroderma and their families; To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and; To enhance the public’s awareness of this disease.

Events

Educational and Research Forums 2013

Scleroderma Educational Forum 4/21
Hospital For Special Surgery, New York, NY
Register Here

Scleroderma Educational Forum 6/22
Yale West Campus, Building 25B, Orange, CT
Register Here

Tri-State Caregivers Forum 8/10
Binghamton Riverwalk Hotel, Binghamton, NY

Scleroderma Educational Forum 9/14
University of Rochester Medical Center, Rochester, NY

Scleroderma Educational Forum 9/21
Albany College of Pharmacy and Health Sciences Student Center, Albany, NY

Scleroderma Educational Forum 10/5
UConn Medical Center, Farmington, CT

Scleroderma Educational Forum - Joint with Delaware Valley Chapter 10/26
Robert Wood Johnson University Hospital, New Brunswick, NJ

Scleroderma Research Forum 11/16
Hospital For Special Surgery, New York, NY

2013 Stepping Out to Cure Scleroderma

Location	Date	Walk/5K Run	Check in Begins	Walk / Run Begins
Rochester	6/01/13	Seneca Park, Rochester, NY	9:00 a.m.	10:00 a.m.
Binghamton	6/02/13	Otsiningo Park, Binghamton, NY	9:00 a.m.	10:00 a.m
Long Island	6/02/13	Wantagh Park, Wantagh, NY	9:00 a.m.	10:30 a.m.
Albany	6/02/13	Crossgates Mall, Albany, NY	6:30 p.m.	7:30 p.m.
Hartford	6/08/13	West Hartford Res, West Hartford, CT	9:00 a.m.	10:30 a.m.
Plattsburgh	6/09/13	Beekmantown Town Hall Park, Beekmantown, NY	9:00 a.m.	10:15 a.m.
Manhattan	6/09/13	Riverside Park New York, NY	9:00 a.m.	10:30 a.m.
Ridgefield Park	6/09/13	Overpeck Park, Ridgefield Park, NJ	8:30 a.m.	9:30 a.m.
Syracuse	6/09/13	Onondaga Lake Park, Liverpool, NY	9:00 a.m.	10:00 a.m.
Poughkeepsie	6/15/13	Vassar College, Poughkeepsie, NY	9:00 a.m.	10:15 a.m.
Buffalo	6/15/13	Knights of Columbus, Cheektowaga, NY	10:00 a.m.	11:00 a.m.
Stamford	6/30/13	Westhill High School, Stamford, Ct	9:00 a.m.	10:00 a.m.