Tri-State Chapter

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Scleroderma Educational Forum Yale Univerity 6/22
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Newsletter, Volume 2 2013

About Us	Contact Information Chapter Contacts Jay Peak, Executive Director -jpeak@scleroderma.org SF Tri-State, Inc. Chapter 59 Front Street Binghamton, NY 13905 Phone: 607-723-2239 Toll-free Phone: 800-867-0885 Fax: 607-723-2039 Staff Jay Peak, Executive Director jpeak@scleroderma.org Alex Matich, Director of Development - amatich@scleroderma.org Mary Beth Bobik Kadylak, Director of Patient Education & Support mbbkadylak@scleroderma.org Jocelyn Bailey, Communications Director jbailey@scleroderma.org 2012 Financial Information 2012 Scleroderma Foundation, Tri-State Chapter Audited Financials 2012 IRS Form 990 2011 Financial Information 2011 Annual Report 2011 Scleroderma Foundation, Tri -State Chapter Audited Financials 2011 IRS Form 990
Board of Directors *Officers* Jeff Mace, President Bruce Cowan, Vice President Rosemary Markoff, Treasurer June Bender, Secretary *Members* Maryann Caliri Emily Chillino Andrea Goldstein Gerry Kirschner Marc Krieger Estelle Randolph Debra Signorelli Patricia Waszmer Joanie Weick Founders Mark and Helene Flapan

Medical Advisory Board Co-Chairs Harry Spiera, M.D. Robert Spiera, M.D. *Members* Howard Blumstein, M.D. Avram Goldberg, M.D. Jessica Gordon, M.D. Barry L. Gruber, M.D. Charles P. Melone, Jr., M.D. Maria Luisa Padilla, M.D. Naomi F. Rothfield, M.D. Lee Shapiro, M.D.
Tri-State Chapter Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey and Connecticut. "Life is a journey, not a destination." Ralph Waldo Emerson Why Are We Here? Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark. Who Are We? We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you. Our Mission The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold: To provide educational and emotional support to people with scleroderma and their families; To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and; To enhance the public’s awareness of this disease.

Events

Educational and Research Forums 2013

Scleroderma Educational Forum 4/21
Hospital For Special Surgery, New York, NY
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Scleroderma Educational Forum 6/22
Yale West Campus, Building 25B, Orange, CT
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Tri-State Caregivers Forum 8/10
Binghamton Riverwalk Hotel, Binghamton, NY
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Scleroderma Educational Forum 9/14
University of Rochester Medical Center, Rochester, NY

Scleroderma Educational Forum 9/21
Albany College of Pharmacy and Health Sciences Student Center, Albany, NY

Scleroderma Educational Forum 10/5
UConn Medical Center, Farmington, CT

Scleroderma Educational Forum - Joint with Delaware Valley Chapter 10/26
Robert Wood Johnson University Hospital, New Brunswick, NJ

Scleroderma Research Forum 11/16
Hospital For Special Surgery, New York, NY

2013 Stepping Out to Cure Scleroderma

Donations can be made towards the 2013 Stepping Out to Cure Scleroderma Walks until December 31, 2013

Location	Date	Walk/5K Run	Check in Begins	Walk / Run Begins
Rochester		Seneca Park, Rochester, NY	Walk memories	made. Thank you!
Binghamton		Otsiningo Park, Binghamton, NY	Walk memories	made. Thank you!
Long Island		Wantagh Park, Wantagh, NY	Walk memories	made. Thank you!
Albany		Crossgates Mall, Albany, NY	Walk memories	made. Thank you!
Hartford		West Hartford Res, West Hartford, CT	Walk memories	made. Thank you!
Plattsburgh		Beekmantown Town Hall Park, Beekmantown, NY	Walk memories	made. Thank you!
Manhattan		Riverside Park New York, NY	Walk memories	made. Thank you!
Ridgefield Park		Overpeck Park, Ridgefield Park, NJ	Walk memories	made. Thank you!
Syracuse		Onondaga Lake Park, Liverpool, NY	Walk memories	made. Thank you!
Poughkeepsie		Vassar College, Poughkeepsie, NY	Walk memories	made. Thank you!
Buffalo		Knights of Columbus, Cheektowaga, NY	Walk memories	made. Thank you!
Stamford	6/30/13	Westhill High School, Stamford, Ct	9:00 a.m.	10:00 a.m.