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Welcome to the Tri-State Chapter Website!

We serve the states of New York, northern New Jersey and Connecticut. Please contact us if you'd like to learn more about support groups and other resources to help people living with scleroderma!
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Chapter Support Group Meetings

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Get Ready to Walk!

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Find out where your closest walk is to Step Out to Cure Scleroderma by clicking on Events above, or find information here.
Yale University West Campus

Educational Forums

Scleroderma Educational Forum Yale Univerity 6/22
Register Now

 

 

 

 

News

What is scleroderma?
View videos at sclerodermavideo.com
Newsletter, Volume 2 2013

 

Stay Connected with the Tri-State Chapter

Find us on Facebook
Follow us on Twitter

 

Watch our 10 minute video "Living with Scleroderma"

 

 

About Us

Contact Information

Chapter Contacts
Jay Peak, Executive Director -jpeak@scleroderma.org

SF Tri-State, Inc. Chapter
59 Front Street
Binghamton, NY 13905
Phone: 607-723-2239
Toll-free Phone: 800-867-0885
Fax: 607-723-2039
 

Staff 
Jay Peak, Executive Director 
jpeak@scleroderma.org
Alex Matich, Director of Development - amatich@scleroderma.org
Mary Beth Bobik Kadylak, Director of Patient Education & Support 
mbbkadylak@scleroderma.org
Jocelyn Bailey, Communications Director
jbailey@scleroderma.org 

2012 Financial Information

2012 Scleroderma Foundation, Tri-State Chapter Audited Financials

2012 IRS Form 990

2011 Financial Information

2011 Annual Report

2011 Scleroderma Foundation, Tri -State Chapter Audited Financials

2011 IRS Form 990

Board of Directors

Officers

Jeff Mace, President
Bruce Cowan, Vice President
Rosemary Markoff, Treasurer
June Bender, Secretary

Members

Maryann Caliri
Emily Chillino
Andrea Goldstein
Gerry Kirschner
Marc Krieger
Estelle Randolph
Debra Signorelli
Patricia Waszmer
Joanie Weick

Founders
Mark and Helene Flapan

 

Medical Advisory Board
Co-Chairs

Harry Spiera, M.D.
Robert Spiera, M.D.
Members
Howard Blumstein, M.D.
Avram Goldberg, M.D.
Jessica Gordon, M.D.
Barry L. Gruber, M.D.
Charles P. Melone, Jr., M.D.
Maria Luisa Padilla, M.D.
Naomi F. Rothfield, M.D.
Lee Shapiro, M.D.

Tri-State Chapter

Welcome to the Scleroderma Foundation Tri-State Chapter website. We serve the states of New York, New Jersey and Connecticut.

"Life is a journey, not a destination."  Ralph Waldo Emerson

Why Are We Here?

Ignorance is not bliss when dealing with scleroderma! For most of us when we became ill, there was little or no real information that we could explore to ease our anxiety or educate ourselves. We had never heard of scleroderma and there were few in the medical community who knew much about it or how to treat us. Most of us felt scared, isolated, and totally in the dark.

Who Are We?

We are men and women who happen to have scleroderma and live in New York, New Jersey, or Connecticut. Thousands of people live with scleroderma. Most of us, perhaps just like you, have found the world of scleroderma to be strange, and at times, scary. We have a vast array of medical problems due to scleroderma, and varying degrees of life experience dealing with those problems. Some of us are new to this world; others have been living with scleroderma in one form or another for 5, 10, 20, 30, 40, and yes, even 50 years or more. We are here for each other and for you.

Our Mission

The mission of the Scleroderma Foundation/Tri-State, Inc. Chapter is three fold:

  • To provide educational and emotional support to people with scleroderma and their families;
  • To stimulate and support research designed to identify the cause and cure of scleroderma as well as improve methods of treatment and;
  • To enhance the public’s awareness of this disease.

 

 

 

Events

 

Educational and Research Forums 2013

Scleroderma Educational Forum     4/21
Hospital For Special Surgery, New York, NY
Register Here  

Scleroderma Educational Forum     6/22
Yale West Campus, Building 25B, Orange, CT
Register Here 

Tri-State Caregivers Forum     8/10
Binghamton Riverwalk Hotel, Binghamton, NY

Scleroderma Educational Forum   9/14
University of Rochester Medical Center, Rochester, NY 

Scleroderma Educational Forum    9/21
Albany College of Pharmacy and Health Sciences Student Center, Albany, NY

Scleroderma Educational Forum    10/5
UConn Medical Center, Farmington, CT

Scleroderma Educational Forum - Joint with Delaware Valley Chapter     10/26
Robert Wood Johnson University Hospital, New Brunswick, NJ

Scleroderma Research Forum    11/16
Hospital For Special Surgery, New York, NY 

 

2013 Stepping Out to Cure Scleroderma

Location  Date Walk/5K Run Check in Begins Walk / Run Begins
Rochester 6/01/13 Seneca Park, Rochester, NY 9:00 a.m. 10:00 a.m.
Binghamton 6/02/13 Otsiningo Park, Binghamton, NY 9:00 a.m. 10:00 a.m
Long Island 6/02/13 Wantagh Park, Wantagh, NY 9:00 a.m. 10:30 a.m.
Albany 6/02/13 Crossgates Mall, Albany, NY 6:30 p.m. 7:30 p.m.
Hartford 6/08/13 West Hartford Res, West Hartford, CT 9:00 a.m. 10:30 a.m.
Plattsburgh 6/09/13 Beekmantown Town Hall Park, Beekmantown, NY 9:00 a.m. 10:15 a.m.
Manhattan 6/09/13 Riverside Park New York, NY 9:00 a.m. 10:30 a.m.
Ridgefield Park 6/09/13 Overpeck Park, Ridgefield Park, NJ 8:30 a.m. 9:30 a.m.
Syracuse 6/09/13 Onondaga Lake Park, Liverpool, NY 9:00 a.m. 10:00 a.m.
Poughkeepsie 6/15/13 Vassar College, Poughkeepsie, NY 9:00 a.m. 10:15 a.m.
Buffalo 6/15/13 Knights of Columbus, Cheektowaga, NY 10:00 a.m. 11:00 a.m.
Stamford 6/30/13 Westhill High School, Stamford, Ct 9:00 a.m. 10:00 a.m.

 



Find your Tri-State Chapter Here! Contact National Here!

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