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What is Scleroderma?

Get more information on scleroderma and what the Tri-State Chapter along with the Scleroderma Foundation National Office are doing to get closer to a cure. 

Advocacy

U.S. Representative Pete King (R) of New York's second district, is the lead sponsor of House Bill 4638, National Commission on Scleroderma and Fibrotic Diseases Act of 2017.  If established, the commission would evaluate and make recommendations regarding improvements to the coordination and avancement of National Institutes of Health (NIH) supported research avtivities related to fibrosis and fibrotic diseases, which may include scleroderma as a prototypical condition.  The bill i sbeing reintroduced for 2019, and your voice is needed to help move it to the floor for a vote. 

Who do you know that can call or write their U.S. Representative or U.S. Senator?  A brother, friend, mother, boss, or golf buddy?  Learn more and take action on HR4638.

Scleroderma Educational Forums

Tri-State Scleroderma Educational Forums (see Calendar listings) are designed to provide updates on scleroderma related research and educational support for the treatment and management of scleroderma to people with scleroderma, family members, and caregivers.  The educational component is also of value to medical professionals toward their understanding of the disease and best practices.

All forums are free to the public. Call (800) 867-0885 or email sdtristate@sclerodermatristate.org to register for a forum.

Watch our 10 minute video "Living with Scleroderma

What is it like living with scleroderma? This video takes a look at some of the struggles that patients face when dealing with this life altering autoimmune disease. The video features actor, Jason Alexander; Football Hall of Famer, Barry Sanders; Actor and Comedian, Mark Teich; Author and Personality, Mitch Albom, and scleroderma patients... sharing their stories on how scleroderma has deeply affected their lives. For more information or to order a copy of this video (or PSA), contact the Scleroderma Foundation Tri-State Chapter at sdtristate@sclerodermatristate.org.

 Scleroderma Exchange Newsletter

Keep up to date on what the Tri-State Chapter is doing here.