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Welcome to the Southeast Florida Chapter Website!

Our chapter was founded in February 1989. Our mission is to help educate our patients and the community about scleroderma.

To donate directly, please mail checks to 3930 Oaks Clubhouse Drive #505, Pompano Beach FL 33069.

E-Newsletter Signup

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Thanks to everyone who connected and contributed to our 1st Annual Virtual 5K. We've received pictures and posts from south Florida to Quebec City, St. Louis to Buenos Aires; running, walking, biking, even skate boarding.

We asked Facebook friends and family to register and hold a walk - their method, their madness and it worked. Bike riding in the Everglades, bridge crossing in Quebec to the safety of a studio treadmill.

Grassroots "fun"- raising events such as our 5K are an important source of funds and necessary to spread our message of Support, Education and Research

 

Chapter Support Group Meetings

Click here for more information >>

 

Find a Cure for Scleroderma Through Advocacy

Make a difference in Washington - join our Advocacy Team >>

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FACEBOOK
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@seflscleroderma TWITTER
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#sclerodermasefl
INSTAGRAM

About Us

OFFICERS 
President ~ Arnold Brownstein
Vice President ~ Noel Weinstock
Secretary ~ Christine Catoggio
Treasurer ~ Stacy Alonso
[Past President ~ Jerry Lance]

We are grateful for Jerry and Kathy Lance whose service and dedication to our chapter has been a continuing source of support to our community.

Contact Information

Ferne Robin, Executive Director
Scleroderma Foundation, Southeast Florida Chapter
3930 Oaks Clubhouse Drive #505 
Pompano Beach, FL 33069
Phone: 954-798-1854 
Email: sclerodermasefl@gmail.com

BOARD MEMBERS
Marjorie Aloni
Lonny Anger
Courtney Caliendo
Rachel Ebert
John Karay
Martin Lehmann
Jessica Massengale
Melanie McMillion
Chris Miller
Lori Notis

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch a video featuring a young woman's battle with Scleroderma

 

Find Us On The Web!

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