National Scleroderma Foundation

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18TH ANNUAL STEPPING OUT TO CURE SCLERODERMA FAMILY FUN DAY WALK

I want to take this opportunity to thank everyone who stepped up to the plate for our walk. I am blessed to have an amazing team every year. Our volunteers who have been coming to our walks for many, many years are simply the best. Our committee of those who served on our board are a group of caring and kind individuals who have served the scleroderma community for up to 10 years and have made the walks successful and fun events.

Thanks to all of the teams for their participation year after year. They share the scleroderma story with friends and family from all over the country and Canada to bring awareness and knowledge. Carmen’s Crew travels from Key West and outdoes themselves every year with their fundraiser two weeks before the walk and spends the weekend in our area to remember Carmen and the impact she had on so many lives. I hope everyone enjoyed the beautiful weather and the time spent together, the first in person walk in two years. [Photos Here]

Special thanks to the team from our national office, Mary Wheatley, Ashley Pruett and Cos Mallozzi. I am so glad they got to see the support our chapter has here in South Florida and throughout the state. - Ferne Robin, Executive Director

Find a Cure for Scleroderma Through Advocacy

Make a difference in Washington, Join our Advocacy Team

Social media outlets such as Facebook, Instagram and Twitter can often serve as an important communications tool for Scleroderma sufferers and supporters alike. We'll continue to update our website with timely information, but other outlets allow for a more interactive experience while you keep in touch with family, friends, and other Scleroderma Chapters across the country.

FACEBOOK
@sclerodermasefl

INSTAGRAM
@sclerodermasefl

TWITTER
@sclerodermasefl

About Us

Advisory Council
Chair ~ Arnold Brownstein
Martin Lehmann
Noel Weinstock
Desiree James
Nancy Brownstein
John Karay
Jessica Massengale
Meryl Parr
John Chanoux

[Past President ~ Jerry Lance]
[Past President | Board Member Ruth Greenspan]

We are grateful for Jerry and Kathy Lance whose service and dedication to our chapter has been a continuing source of support to our community.

Contact Information

Ferne Robin, Executive Director
Scleroderma Foundation, Southeast Florida Chapter
3930 Oaks Clubhouse Drive #505
Pompano Beach, FL 33069
Phone: 954-798-1854
Email: seflchapter@scleroderma.org