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Other Organizations

Disclaimer: These links are provided as a public service. Providing these links does not imply endorsement or support of any program or organization. The Scleroderma Foundation is not responsible for the content of the pages to which links are provided.

Here are some other useful links to health-related websites:


National Health Council
National Institutes of Health (NIH)
National Institute of Arthritis and Musculoskeletal and Skin Disease (NIAMS)


Scleroderma Clinical Trials Consortium
Society for Women's Health Research

Associations, Foundations and Societies

Access Dermatology
American College of Rheumatology (ACR)
American Medical Association (AMA)
American Pain Foundation
Arthritis Foundation
Association for the Study of Systemic Sclerosis and Fibrosanti Diseases
Croatian Society for Patients with Scleroderma (CSPS)

Cyprus League against Rheumatism

Danish Scleroderma & Raynaud’s Association

Finnish Scleroderma Association

French Scleroderma Patient Organization

Hungarian Scleroderma Association (Orszagos Scleroderma Kozhasznu Egyesulet)
International Rosacea Foundation
Italian Association to Scleroderma Fight

Italian Groupe for the Struggle to the Scleroderma

League for Chronic Inflammatory Connective Tissue Diseases

Lupus Foundation of America
National Eosinophilia-Myalgia Syndrome Network
AMA Association
National Family Caregivers Association (NFCA)
National Foundation for Ectodermal Dysplasia
National Marfan Foundation
National Multiple Sclerosis Society (NMSS)
National Organization for Rare Disorders (NORD)
National Osteoporosis Foundation
National Psoriasis Foundation
N.V.I.E Patient Organization for Lupus, Scleroderma, and MCTD

Norwegian Rheumatic Organization
Parry-Romberg Syndrome Resource, Inc.
Patients Association for Scleroderma (APSB)

Patient Organization for Scleroderma

Portuguese League against Rheumatic Diseases
Pro Rheumate - Group of Scleroderma Patients
Pseudoxanthoma Elasticum (PXE)

Pugliese Association Arthritis Patients

Pulmonary Fibrosis Foundation
Pulmonary Hypertension Association (PHA)
Raynaud’s Association
Raynaud’s & Scleroderma, Ireland

Raynaud’s & Scleroderma Association (RCA)
Romanian Association of Scleroderma Patients (APSR)
Scleroderma Research Foundation
Scleroderma Society of Canada
Scleroderma Society of United Kingdom (London)
Sjögren’s Syndrome Foundation (SSF)
Sociedad Latina de Hipertension Pulmonar
Spanish Scleroderma Association

Swedish Rheumatism Association

Swiss Association of Scleroderma Patients

The Arthritis Society of Canada


ABILITY Magazine
New England Journal of Medicine