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Omaha, Nebraska Stepping Out Walk and Family Day 

Nebraska - You can still DONATE

Des Moines, Iowa Stepping Out Walk and Family Day

Iowa - You can still DONATE


Heartland Chapter Fifth Annual


Patient Education Day
October 21, 2017 


Let's put an end to "Sclero-What?"

This year's event will be held at Grand View University in the Student Center at  1418 Morton Ave. in Des Moines, Iowa 50316

Registration before October 14 is FREE!
Registration after October 14 is $10.

Participation is limited to the first 150 people registered.

Speakers this year are:

Sandy Hong, MD is a pediatric rheumatologist in Iowa City, Iowa and is affiliated with University of Iowa Hospitals and Clinics. She received her medical degree from University of California San Francisco School of Medicine and has been in practice 16 years.

Shelley Van Pelt, RN, MSN, CNS is on the board of the Scleroderma Foundation Washington Evergreen Chapter and serves as the medical education and outreach coordinator. She has a master’s in nursing with 29 years of experience. Shelley’s presentation will be about scleroderma related health issues and nutrition to improve daily quality of life and happiness.

Britta Dimler “How to Live a Toxic free Life” with essential oils.

Dani Steinwandt will present her winning speech about living with scleroderma from her viewpoint as an adolescent.

Dr. Marcus Snow joined Nebraska Medicine in 2015, the same year he announced his goal of building clientele and staff for a Scleroderma Clinic in Omaha. Dr. Snow is in his 9th year in practice here in Omaha (5 ½ in private practice and 2 ½ at UNMC/Nebraska Medicine) in Omaha. He sees patients on a regular basis at Village Pointe Clinic and travels to Columbus, NE for clinic twice a month. His medical interests include general rheumatology (with special interest in scleroderma and Raynaud's Phenomenon).

Dr. Sundar Balasubramanian is a cell biology researcher and founder of PranaScience Institute. He is currently studying mechanisms involved in resistance to cancer therapy at the Medical University of South Carolina (MUSC). He is also a yoga biology researcher. A pioneer in the area of research combining Pranayama and salivary stimulation, he discovered Yogic breathing promotes salivary secretion, and it contains factors that are important for our healthy living. Dr. Sundar led a class in “Yogic Breathing for Symptom Management in Scleroderma” at the 2017 Scleroderma Foundation National Patient Education Conference.

Carole Deyoe…Previously available by prescription only... (pharmacist, comedian, scleroderma patient and carnivore) releases her sense of humor over-the-counter when she hits the stage. Originally from the New Jersey suburbs, Carole is a transplanted country girl whose act takes you through her life with sarcasm and wit. She shares one-of-a-kind insights which are often caring, often contemptuous - often both at the same time - but always funny. Audiences love her clever observations and performing is her favorite drug (edging out the Tilt-a-Whirl)

Save the date for a great patient education opportunity in the Heartland Chapter!

We hope you will join us!

From the Heartland: Jackie Latka

Read her story, originally published in the Fall 2013 issue of the Voice >>

Find a Support Group Near You

More info about the Heartland Chapter's
support groups >>


Heartland Chapter Formed

Read the full press release >>

About Us

Board of Directors

Open, President
Pat Fila, Vice President
Paige Scholer, Secretary
Shari Janssen, Treasurer

Rebekah Bell
Laurie Czyz
Pat Fila
Shari Janssen
Nancy Scheufele
Paige Scholer
Karen Steinwandt
Wendy Welch


Contact Information

Chapter Contact:
Daniel Burke, Executive Director

Email: HeartlandChapter@scleroderma.org

P.O. Box 63
Bouton, IA 50039
Phone: (515) 661-8089


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