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2016 SCLERODERMA PATIENT EDUCATION CONFERENCE HIGHLIGHTS

We want to thank everyone who attended our Scleroderma Patient Education Conference on Saturday, October 8th at George Washington University Hospital!

More than 60 patients and caregivers from Maryland; Washington, DC; and Virginia had the opportunity to hear informative presentations from leading medical professionals: Dr. Ronald Brown, Howard University; Dr. Kathleen Holton, American University; Dr. Laura Hummers, Johns Hopkins University Hospital; Dr. Zsuzsanna McMahan, Johns Hopkins University Hospital; Dr. Victoria Shanmugam, George Washington University Hospital; Dr. Virginia Steen, Georgetown University Hospital; and Dr. Joshua Woolstenhulme, The George Washington University.

Many thanks to everyone  for attending. It was great to see so many people, to hear your stories, and to receive your positive comments about the event. I also want to thank our presenters for sharing important information. A special thanks to Dr. Shanmugam and her staff for helping us to secure the space at George Washington University and for helping with set-up.

In case you missed the conference, or would like to have a copy of the presentations from the conference, you can click the links below to get our speakers' PowerPoint presentations in PDF format.

Dr. Brown's presentation, Dental Issues in Scleroderma

Dr. Holton's presentation, Optimizing Nutrition in Scleroderma Patients

Dr. Laura Hummers's presentation, Updates in Scleroderma Research

Dr. McMahan's presentation, Complexities of Scleroderma GI disease: Clinical Manifestations, Risk Factors, Diagnosis, and Management

Dr. Shanmugam's presentation. Wound Care and Digital Ulcers

Dr. Virginia Steen's presentation, Lung Disease in Scleroderma

Dr. Woolstenhulme's presentation, National Institutes of Health Interstitial Lung Disease and Exercise Study

 
We look forward to next year's conference!

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Highlights from the 2015 Scleroderma Patient Education Conference: Risk Factors for African Americans

Gorman Auditorium was filled with a wonderful energy and a sense of community, as more than 50 people joined us for our first Scleroderma Patient Education Conference: Risk Factors for African Americans at Georgetown University Hospital on Saturday, October 17th.

Click here to read more about our conference! We also have links to the presentations.

 

2016 Stepping Out to Cure Scleroderma Greater Baltimore 5K Walk/Run

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The 6th Annual Stepping Out to Cure Greater Baltimore 5K Walk/Run brought together more than 150 people at Atholton High School in Columbia, MD on Saturday, May 21. The morning started out rainy with clouds in the sky, but that did not dampen our spirits. People poured into the school's gymnasium with enthusiasm to sign-in, get their t-shirts and team signs, and meet their team members. By 10am, the rain had subsided and people moved out to the school's track and walked with pride! It was wonderful sense of community! Check out our photo gallery!

This year, we had more than 190 participants and 24 teams who helped us to exceed our goal by raising $31,448 for research and to support the Chapter's activities! The Chapter is very grateful for the support from all of our participants and donors. Thank to our sponsors: Actelion, Envirotest, Wegman's, Dominos, Chic Filet, and Ed Hubert Photography. We could not do this without all of you!


We also want to thank the people who helped to make this year's Walk so successful: Executive Director Carole Bernard, Board Member Mike Senisi and his wife, Alycia Markoff Senisi; Rosemary Markoff; Board President Mary Beth Tourbin; and Board Member TJ Keilty. Many thanks to the Atholton High School Athletic Boosters and SGA for sponsoring our Walk, and to Atholton High School for accommodating us in the

We look forward to next year's conference!

 

 

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About Us

Board of Directors
Mary Beth Tourbin, President
Michael Senisi, Vice President
Solomon Reed, Treasurer

Contact Information

Chapter Contact: Carole Bernard, Executive Director
Scleroderma Foundation, Greater Washington, D.C. Chapter
2010 Corporate Ridge
7th Floor, PMB#126
McLean, VA 22102
Phone: 571-291-1480
Email: cbernard@scleroderma.org

Board Members
Sharon Fine
TJ Keilty
Jennifer Loud

Medical Advisory Board

Dr. Kathleen Holton

Laura Hummers, M.D.

Virginia Steen, M.D.

Frederick Wigley, M.D.

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Photo Gallery

Look through photo galleries from previous events held by our chapter.

 

 

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Watch videos pertaining to events held by our chapter and a few fun extras. 

 


Find Us On The Web! (coming soon)

National Gold Sponsor

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National Bronze Sponsor / Conference Platinum Sponsor

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National Silver Sponsor

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National Bronze Sponsor

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Boehringer Ingelheim