Advocates on Steps of Congress 2013
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Scleroderma Awareness Month and World Scleroderma Day

June is Scleroderma Awareness Month

For more than 20 years, the Scleroderma Foundation, its Chapters and Support Groups have recognized June as Scleroderma Awareness Month, marking it with annual awareness and fundraising events, as well as obtaining presidential, state and local proclamations.  The Scleroderma Foundation has joined the Federation of European Scleroderma Associations (FESCA), the Scleroderma Society of Canada, and other international scleroderma organizations in recognizing June 29 as World Scleroderma Awareness Day.

On June 29, the world’s scleroderma community comes together to recognize World Scleroderma Day. On this day in 1940, internationally-renowned Swiss painter Paul Klee died. He had scleroderma and his artwork was widely influenced by his experience with the disease. We take this time to remember the the life and death of Paul Klee, as well as all those who struggle with scleroderma. We work together with scleroderma organizations around the world to help fight for better treatments and improved care for people living with scleroderma.

Learn more about World Scleroderma Day here >>

How You Can Help

There are many different ways that you can help join the fight. Here are just a few examples:

  • Wear teal. Teal is the color associated with scleroderma awareness.
  • This year, our goal is to have scleroderma trend online. Please take the time on June 29 to post on Facebook or Twitter, using the hashtag #scleroderma in your message.
  • We also urge you to contact your local media to let them know that scleroderma is an important subject to you, and you’d like them to produce more stories about the disease to help educate the public about this devastating and mysterious illness.
  • For individuals who live in the U.S., please take this opportunity to tell your Congressional leaders about the Scleroderma Research and Awareness Act. Get started at www.scleroderma.org/advocacy
  • Learn more about scleroderma and Scleroderma Awareness Month at www.sclerodermaawareness.org

 

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