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Children and Parents Needed For Study

Children with juvenile systemic sclerosis or linear scleroderma (morphea) and their parents needed for research study

Researchers from the University of New Mexico are seeking participants for a study to learn about what information is needed by children with juvenile systemic sclerosis or linear scleroderma (morphea) and their parents that should be included in an education program. To be eligible you should be a child, 8 - 20 years old, with juvenile systemic sclerosis or linear scleroderma (morphea) or a parent of a child of any age with either disease; and read, speak and understand English. If you and/or your child are interested please contact Janet Poole below. The study consists of completing questionnaires and a telephone interview with you and/or your child.  

This study was approved by the UNM Human Research Review Committee (HRRC#09-278). For more information about the study and the eligibility requirements please contact Janet Poole PhD, OTR/L at jpoole@salud.unm.edu or (505) 272-8276.

 

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