Advocates on Steps of Congress 2013
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Mom

Scleroderma has affected my life through my mom. She lived with the disease for 20 years and smiled through almost all of it!

Mom

My mom was always such a trooper and you never knew anything was wrong with her! Many people admired her for her faith in God as well as her never give up attitude! She struggled for 20 years with Scleroderma with most people never knowing. She was one of the few with both types and it caused her to have pulmonary hypertension and pulmonary fibrosis along with a multitude of other problems! On May 27th of 2012, she went to heaven and God took away the years of pain she experienced from this horrible disease! My family and I are now on a mission to raise awareness for the disease and money for the foundation! She was the most amazing person I've ever known!

 

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