Scleroderma isn't my name

My picture shows how scleroderma is my disease but not my name. I am my own individual.

Scleroderma isn't my name

My name is Jade Emeline. I was diagnosed with linear scleroderma when I was five. I am now fourteen years old now. I'm trying to deal with my diease as a teenager. My scleroderma affects the skin on my legs and upper body. It also limits my joint mobility in my ankles. I am not comfortable with showing my skin and having people ask me questions. I have never been to the conference. My mom and I would like to attend so I can meet other kids like me and learn new ideas on dealing with my disease.

 

All active news articles