| | | | Thank you for your support in 2023!
Thank you to everyone who supported the National Scleroderma Foundation in 2023. We cannot wait to work together this year to see what's in store for 2024.
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| | | Our 2024 membership drive is now open!
Our 2024 Membership Drive is officially open and ends March 31, 2024.
Our membership program has two levels, brings many exciting benefits, and offers a printed and/or digital subscription to our signature publication, the Scleroderma Voice magazine, to all who join.
Champion Members receive 10 member benefits for only $35 per year ($45 international), while our Friend Members receive five at no cost. To learn more about the benefits, visit www.scleroderma.org/benefits.
To become a Champion Member, renew your Champion Membership, or upgrade your Friend Membership, visit www.scleroderma.org/membership.
To sign up as a friend member, visit www.scleroderma.org/friend.
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| | | Each year, the Foundation is proud to participate in the Combined Federal Campaign (CFC), the workplace giving program of the federal government of the United States.
Many of you made your holiday gift last month and we couldn't be more grateful! But if you work as a federal employee or serve as military personnel (retirees included), or if you just want to help get 2024 off to a good start, you can donate through the CFC until Monday, January 15, 2024.
Click the link below and select charity no. 10089 to support the Foundation. |
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| | | | | Start off 2024 by Stepping Out to Cure Scleroderma Are you ready for the 2024 Stepping Out to Cure Scleroderma season? We are! Check out a few of our walk updates at our walk website. |
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| | | Research study for working adults with scleroderma Adults (18 years old or older) who are working and have systemic scleroderma (systemic sclerosis): A research team is studying a virtual intervention to support people with scleroderma who are in the workforce. For more information, e-mail mthelanderhill@salud.unm.edu or jpoole@salud.unm.edu. |
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| | | Webinar: CAR T Cell Therapy in Systemic Sclerosis Join Dr. Dinesh Khanna and Dr. Monalisa Ghosh for an in-depth discussion on what you need to know about the new and exciting CAR T Cell therapy. The webinar, "CAR T Cell Therapy in Systemic Sclerosis," will be held at 12 p.m. ET on Feb. 16 via Zoom. |
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| | | Newly Diagnosed Support Group ZOOM: Jan. 10, 7 p.m. ET
Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org. |
| Black, Indigenous, People of Color (BIPOC) Support Group ZOOM: Jan. 14, 4 p.m. ET
The BIPOC Support Group will meet on Jan. 14 with guest speaker Denzil A. Harris, MD, Assistant Professor, Divisions of Hospital Medicine and Palliative Care,University of Rochester Medical Center. The support group will discuss the topic, "It Takes a Village': Special Care for People with Serious Illness." |
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| | Localized Scleroderma Support Group ZOOM: Jan. 16, 7 p.m. ET
The Localized Support Group for Adults and Parents hosts its meeting on the 3rd Tuesday of the month at 7 p.m. ET. Please email localizedsg@scleroderma.org for the zoom link. |
| Bereavement Support Group ZOOM: Jan. 16, 7 p.m. ET
If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving or have been through a journey similar to yours. Our monthly bereavement support group will begin on Tuesday, Jan.16, from 7:00-8:30 p.m. ET. If you are interested in learning more, please email bereavement@scleroderma.org. |
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| | ZOOM: Jan. 24, 7 p.m. ET
Please join us on Wednesday, Jan. 24 at 7 p.m. ET for our support group meeting for people living with scleroderma who identify as members of the LGBTQ+ community.
Email lgbtq@scleroderma.org for the meeting link. Any questions, please email Caryn Anatriello, Manager of Advocacy and Support. |
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| | | | This week in scleroderma news:
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