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December 29, 2023 | #1055 |
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3...2...1.... Happy New Year! As we welcome 2024, we are reminded of the incredible effort and positivity our community has provided to move our mission forward for the past 25 years. We cannot wait to see what is in store for the National Scleroderma Foundation in 2024.
Our offices will be closed until January 2, but many of our services will still be available! Visit scleroderma.org to find the resources you need. We are also taking calls during our normal business hours for donations and memorials.
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The National Scleroderma Foundation Community Engagement Team recently shared a few of their mantras going into the new year at the staff development workshop, and we thought it might excite you all to know how energized we are to serve this community in 2024. Here are just a few of the personal mottos shared from our team:
- "Let's kick it up a notch!"
- "Full steam ahead!"
- "Seize the day!"
- "The best is yet to come."
- "Keep going forward."
- "This will be a year of pushing myself to be better."
- "Never gonna give you up!"
We hope everyone in this community will join us in this excitement and anticipation as we push ourselves even further in our quest to find a cure for scleroderma.
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| A little nudge before the New Year… only 2 days left to give! You have two more days left to give in 2023! Get your gift in quick at scleroderma.org/winter.
You can also call us at (800) 722-HOPE [4673] if giving over the phone is easier for you. We’re on call until the clock strikes midnight on New Year’s Eve!
Don’t forget that gifts made by Dec. 31 at midnight ET could generate income tax deductions that may help reduce your tax bill for 2023.
We can’t wait to ring in the new year together. Thank you for your support! |
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| 25th Anniversary – one moment at a time 2018 – 20 years & counting
The Foundation celebrated its 20th anniversary, much like we’re celebrating 25 years now – highlighting major achievements and the many individuals who have impacted the Foundation’s work.
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| Start off 2024 by Stepping Out to Cure Scleroderma Step into the new year by signing up for a Stepping Out to Cure Scleroderma walk. Join us in 2024 at our Stepping Out to Cure Scleroderma walks. More information to come about walks all over the country! |
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| New research study for working adults with scleroderma Adults (18 years old or older) who are working and have systemic scleroderma (systemic sclerosis): A research team is studying a virtual intervention to support people with scleroderma who are in the workforce. For more info, E-mail mthelanderhill@salud.unm.edu or jpoole@salud.unm.edu. |
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| Mogil's Mobcast with Dr. Aggarwal On the most recent episode, Ann Mogilevsky speaks with Dr. Parina Aggarwal, a practicing sleep medicine physician. They discuss the importance of sleep, the four stages of sleep, and how to sleep better with scleroderma. |
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| Webinar: CAR T Cell Therapy in Systemic Sclerosis Join Dr. Dinesh Khanna and Dr. Monalisa Ghosh for an in-depth discussion on what you need to know about the new and exciting CAR T Cell therapy. The webinar, "CAR T Cell Therapy in Systemic Sclerosis," will be held at 12 p.m. ET on Feb. 16 via Zoom. |
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| Stay tuned for the 2024 National Scleroderma Conference We cannot wait to see you all at the 2024 National Scleroderma Conference in Seattle, Washington, July 19-21! Stay tuned for more details. |
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Newly Diagnosed Support Group ZOOM: Jan. 10, 7 p.m. ET
Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org. |
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| This week in scleroderma news:
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