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| Today is the last day to suggest speakers/content for our next Annual Conference! |
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| 2023 is quickly coming to a close! Although 2023 is quickly coming to a close, there is still time to find educational resources, learn more about the amazing research we fund, or find a support group. Interested in learning more? Visit our website!
Please note our offices will be closed from December 25 - January 2. |
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| Add these helpful Foundation email addresses to your contacts Are you wondering who to email about your National Scleroderma Foundation-related questions? Here is a simple guide for how to reach us.
Support@scleroderma.org
- Questions about signs, symptoms, getting a diagnosis or where to find scleroderma care.
- Information about support groups – where to find support groups, how to join a support group or how to become a support group facilitator.
Education@scleroderma.org
- Questions about national conference, Kids Get Scleroderma, Too conference, national education programs and webinars.
- Suggestions for educational topics
Research@scleroderma.org
- Questions about the Foundation’s research grant program, the Global Research Webinar, Early Career Investigator Workshop and Fellowship program.
If you're still unsure where to direct your question or have a general inquiry, email info@scleroderma.org. |
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| 25th Anniversary – one moment at a time 2015 - Investing in Research
For the first time in the Foundation's history, it earmarked more than $2 million to fund research projects. Between ongoing grants and new awards, the Foundation remains committed to awarding approximately $2 million, as funds allow.
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| Step out with us in 2024! The 2024 Stepping Out to Cure Scleroderma season is quickly approaching. We will kick things off on February 24, 2024, with the Florida & Puerto Rico chapter's Coconut Creek walk, followed by exciting events in various other chapters. |
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| Advances in Scleroderma Research – Global Webinar on Dec. 15 The Advances in Scleroderma Research – Global Webinar will be held at 9 a.m. ET, Friday, Dec. 15. At this event, the global community of scleroderma research scientists will come together to share and discuss the latest breakthroughs from the field. The webinar is open to all interested scleroderma researchers, including students and trainees. |
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| Mogil's Mobcast with Dr. Todd Brennan On the most recent episode, Ann Mogilevsky speaks with Dr. Todd Brennan, a podiatry specialist. They discuss issues with feet due to scleroderma, medication, and what an individual with scleroderma can do to help with feet complications. |
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ZOOM: 9 de diciembre, 11 a.m. ET
Grupo Bilingûe de Apoyo de la Fundación Nacional de Esclerodermia Acompàñanos desde cualquier lugar en el que te encuentres. Nuestro evento está diseñado para que puedas participar sin importar tu ubicación.
Fecha: 9 de diciembre, 2023
Hora: 11:00 am EST
Por favor envíe sus preguntas al correo electrónico miamiradgroup@gmail.com |
| Newly Diagnosed Support Group ZOOM: Wednesday, Dec. 13, 7 p.m. ET
Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org. |
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BIPOC Support Group Holiday Pajama Jam ZOOM: Dec. 17, 4 p.m. ET
You are invited to the BIPOC (Black, Indigenous, People of Color) Support Group Holiday Pajama Jam. This social event offers a great opportunity to connect with members in a relaxing atmosphere. Our holiday social will include music, a trivia game, stories, and prizes. Don’t forget to wear your holiday pajamas!
We encourage you to register in advance for this event. Upon registering, you will receive a confirmation email containing information about joining the meeting.
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| This week in scleroderma news:
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