December 1, 2023 | #1051

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GivingTuesday eLetter (5)

Thank you for contributing to GivingTuesday!

The National Scleroderma Foundation extends its deepest gratitude to all who supported us on GivingTuesday by making a gift or by sharing our message with others.

While we’re still tallying the final numbers, so far you’ve helped us raise a record-breaking $100,000 for the scleroderma community! 

Thank you so much for your generosity.  We couldn’t be more grateful for your help in making this year’s GivingTuesday a whopping success.

If you missed the special day, don’t worry! You can still contribute at scleroderma.org/givingtuesday.

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December

Welcome December!

December is a busy month at the National Scleroderma Foundation! Between support groups, education events and our winter recess, this month is sure to have activities for everyone. Are you looking to connect with others or learn more about our upcoming activities? Check out scleroderma.org.

Please note our offices will be closed from December 25 - January 2. 

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Thanksgiving

Thanksgiving Was Just The Start…

Thanksgiving was just the start of expressing our gratitude for you.

During the past two weeks, we’ve been in awe of some of the most significant milestones you helped us achieve.

We brought awareness to over 6,000 people at the 2023 Edison Park Turkey Trot in Chicago, IL and we brought in record-breaking donations for this amazing community on GivingTuesday.We also have our annual Staff Workshop planned for this weekend, and our Research Grant Program is in the final stages with the upcoming Peer-Review meeting just around the corner.

And none of this would be possible without you. We do it all with you in mind, and we thank you for your continued trust. 
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Get Involved
Celebrating 25 Years

25th Anniversary – One moment at a time

2014 - Collaboration in full swing

The Scleroderma Collaborative Research Grant that allowed for collaborative research between two or more established scleroderma centers was formed. Also that year, the National Patient Education Conference introduced a juvenile program.

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Stepping Out to Cure Scleroderma June 16

2024 Stepping Out to Cure Scleroderma walk season coming soon!

The 2024 Stepping Out to Cure Scleroderma season is quickly approaching. We will kick off the new season on February 24, 2024, with the Florida & Puerto Rico chapter's Coconut Creek walk. 
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Research

2024 Research Grant program review process underway

The National Scleroderma Foundation provides funding for New and Established Investigators based on investigator-directed topics, and the grant cycle is nearing completion. A cure for scleroderma remains an elusive goal, but your research could make a significant impact on the future of living with this disease. Currently, our 2024 grant cycle is in the critical peer-review process to determine our 2024 grant recipents. 

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Research Public Meeting

Advances in Scleroderma Research Global Webinar on Dec. 15

Calling all New and Established Investigators in the field of scleroderma! Join us for the Advances in Scleroderma Research – Global Webinar at 9 a.m. ET, Friday, Dec. 15.  At this event, the global community of scleroderma research scientists will come together to share and discuss the latest breakthroughs from the field. The webinar is open to all interested scleroderma researchers, including students and trainees.

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Conference Details

Tell us who you want to see at conference!

Is there a presenter that you would like to see at the 2024 National Scleroderma Conference? Invite them to complete our 2024 National Scleroderma Foundation Conference Call for Presenters form by Dec. 8, 2023. We want to hear from the community and make this year’s conference the best one yet! If you have any questions or are interested in presenting a clinical session, please email Education@scleroderma.org.

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Chapter Education
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Heartland 11th Annual Sclero-What? Education Day

ZOOM:  Saturday, Dec. 2, 9 a.m. ET 

The Heartland Chapter will host their 11th Annual Sclero-What? Education Day on Dec. 2, from 9 a.m. to noon. The virtual education day will feature a keynote address from Dr. Erika Enos, ND and guest speaker Jan Nitti. All are welcome to join.

Grupo de Apoyo Bilingüe

ZOOM:  9 de diciembre, 11 a.m. ET 

Grupo Bilingûe de Apoyo de la Fundación Nacional de Esclerodermia Acompàñanos desde cualquier lugar en el que te encuentres. Nuestro evento está diseñado para que puedas participar sin importar tu ubicación.

Fecha: 9 de diciembre, 2023
Hora: 11:00 am EST

Por favor envíe sus preguntas al correo electrónico miamiradgroup@gmail.com

To learn more about these groups and others offered by the Foundation, please visit our website, call our HopeLine 800-722-4673 or email info@scleroderma.org.

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