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November 24, 2023 | #1050 |
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| We hope you had a Happy Thanksgiving Although yesterday was officially Thanksgiving, we still wanted to take this opportunity to thank you for your unwavering trust and support. We give thanks for the opportunity to serve you and wish everyone in our scleroderma community a very safe, happy and healthy holiday weekend. Please note: Our offices are closed today but will reopen first thing Monday morning. |
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| GivingTuesday is THIS WEEK! You’re invited to join us in honoring everyone impacted by scleroderma for GivingTuesday!
We are especially grateful that Amgen will match your gift dollar for dollar up to $25,000 to celebrate our 25th Anniversary!
DOUBLE your impact now at scleroderma.org/givingtuesday, and please help spread the word so we can raise as much support for the scleroderma community as we possibly can.
Thank you so much for your generosity! |
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| Exciting opportunity to see scleroderma documentary, 'Angel Applicant' Former Oregon member Ken Meyer made a film over the last 10 years about his journey with scleroderma and how the art of Paul Klee has helped him to cope. The title of the film is Angel Applicant, and it has been included in numerous film festivals this year. The film is currently playing at the DOC NYC film festival, and they are offering an online streaming ticket which can be purchased for $15 and watched between now and Nov. 26. |
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| There is still time to share your story for Pulmonary Hypertension Awareness Month! There is still time to participate in our special project for PAH!
Are you living with Pulmonary Arterial Hypertension? The Foundation is working on a special project to help raise awareness about Systemic sclerosis-associated pulmonary arterial hypertension (SSc-PAH), and we need your help!
We are working to identify patient champions to participate in digital outreach materials, including your experience living with PAH. Champions are needed to participate in photo and video shoots, and written stories.
Interested in participating? Click here to tell us a little more about yourself! A member of our team will reach out with next steps. |
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| 25th Anniversary – One moment at a time 2013 – Doubling down on scleroderma research
Research remained a priority in 2013, as the first New Investigator Conference was held. The event nurtured the next generation of scleroderma investigators (researchers) and provided career mentoring in a supportive environment. Annual awards continue today to ensure a pipeline of researchers dedicated to furthering treatment and finding a cure for the disease.
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| The countdown begins to the 2024 Stepping Out to Cure Scleroderma walk season! Can you believe the 2024 Stepping Out to Cure Scleroderma season is only three months away? We will kick off the new season on February 24, 2024, with the Florida & Puerto Rico chapter's Coconut Creek walk. |
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| Calling all researchers: Upcoming Advances in Scleroderma Research – Global Webinar on Dec. 15 If you are a researcher in the field of scleroderma, join us for the Advances in Scleroderma Research – Global Webinar at 9 a.m. ET, Friday, Dec. 15. At this event, the global community of scleroderma research scientists will come together to share and discuss the latest breakthroughs from the field. The webinar is open to all interested scleroderma researchers, including students and trainees. |
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| Don't miss the 'Empowering People with Disabilities Through ABLE Accounts' Webinar on Dec. 13 Are you attending the national webinar on “Empowering People with Disabilities through ABLE Accounts” with experts from ABLE today on Dec. 13 at 2 p.m. ET? Learn all about ABLE Accounts: what they are, what benefits they carry, how much you can contribute, available investment options and more. |
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Your Voice Counts: How Improving Patient-Provider Communication Can Improve Health Outcomes ZOOM: Wednesday, Nov. 29, 1 p.m. ET
The Tri-State Chapter and Hospital of Special Surgery will host "Your Voice Counts: How Improving Patient-Provider Communications Can Improve Health Outcomes" webinar on Wednesday, Nov. 29 from 1-2 p.m. Eastern. The webinar will feature presenters Mary Rose Murray Carey, LCSW and Baptiste Nicolas, LCSW.
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| ZOOM: Wednesday, Nov. 29, 7 p.m. ET
Please join us on Wednesday, Nov. 29 at 7 p.m. ET for our support group meeting for people living with scleroderma who identify as members of the LGBTQ+ community.
Email lgbtq@scleroderma.org for the meeting link. Any questions, please email Caryn Anatriello, Manager of Advocacy and Support. |
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Scleroderma Young Adults Seeking Connection (SYNC) Support Group ZOOM: Friday, Dec. 1, 7 p.m. ET
The SYNC support group will meet on Dec. 1. If you are interested in joining, please email Amanda Lippincott |
| Heartland 11th Annual Sclero-What? Education Day ZOOM: Saturday, Dec. 2, 9 a.m. ET
The Heartland Chapter will host their 11th Annual Sclero-What? Education Day on Dec. 2, from 9 a.m. to noon. The virtual education day will feature a keynote address from Dr. Erika Enos, ND and guest speaker Jan Nitti. All are welcome to join. |
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ZOOM: 9 de diciembre, 11 a.m. ET
Tema: El Yoga beneficia al Cuerpo
Fecha: 9 de diciembre, 2023
Hora: 11 a.m. ET
Por favor envíe sus preguntas al correo electrónico miamiradgroup@gmail.com |
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| This week in scleroderma news:
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