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November 17, 2023 | #1049 |
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| Exciting opportunity to see scleroderma documentary, 'Angel Applicant' Former Oregon member Ken Meyer made a film over the last 10 years about his journey with scleroderma and how the art of Paul Klee has helped him to cope. The title of the film is Angel Applicant, and it has been included in numerous film festivals this year. The film is currently playing at the DOC NYC film festival, and they are offering an online streaming ticket which can be purchased for $15 and watched between now and Nov. 26. |
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| Check out CEO Mary Wheatley's update on all things National Scleroderma Foundation! Learn about GivingTuesday, #ACR2023 in San Diego, and much more. |
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| #GivingTuesday Is Just Around The Corner! GivingTuesday is on Nov. 28 and your gift will DOUBLE thanks to our $25,000 match from Amgen!
That means your
- $25 becomes $50
- $100 becomes $200
- $500 becomes $1,000!
We know the holidays are a busy time. If you don’t want to forget to take advantage of this special opportunity, go to scleroderma.org/givingtuesday to make your gift now.
To learn more about our matching gift from Amgen, click here. |
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| Pulmonary Hypertension Awareness Month – Share your story! Are you living with Pulmonary Arterial Hypertension? The Foundation is working on a special project to help raise awareness about Systemic sclerosis-associated pulmonary arterial hypertension (SSc-PAH), and we need your help!
We are working to identify patient champions to participate in digital outreach materials, including your experience living with PAH. Champions are needed to participate in photo and video shoots, and written stories.
Interested in participating? Click here to tell us a little more about yourself! A member of our team will reach out with next steps. |
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| 25th Anniversary – One moment at a time 2012 – Lighting up the nation
Awareness work continued in 2012, as Canadian and U.S. officials helped turn Niagara Falls teal. Since then, annual events have been held nationwide during National Scleroderma Awareness Month to light up in teal landmarks from coast to coast. |
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| Stepping Out to Cure Scleroderma walks – coming soon! Are you ready for the 2024 Stepping Out to Cure Scleroderma walk season? We will kick off the new season on February 24, 2024, with the Florida & Puerto Rico chapter's Coconut Creek walk. |
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| Upcoming Advances in Scleroderma Research – Global Webinar on Dec. 15 Calling all researchers in the field of scleroderma! The global community of scleroderma research scientists will come together at the next Advances in Scleroderma Research – Global Webinar at 9 a.m., ET, Friday, Dec. 15, to share and discuss the latest breakthroughs from the field. The webinar is open to all interested scleroderma researchers, including students and trainees. |
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| Coming soon: 'Empowering People with Disabilities Through ABLE Accounts' Webinar – Dec. 13 Are you attending the national webinar on “Empowering People with Disabilities through ABLE Accounts” with experts from ABLE today on Dec. 13 at 2 p.m. ET? Learn all about ABLE Accounts: what they are, what benefits they carry, how much you can contribute, available investment options and more. |
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Localized Scleroderma Support Group ZOOM: Tuesday, Nov. 21, 7 p.m. ET
The Localized Support Group for Adults and Parents hosts its meeting on the 3rd Tuesday of the month at 7 p.m. ET. Please email localizedsg@scleroderma.org for the zoom link. |
| Bereavement Support Group ZOOM: Tuesday, Nov. 21, 7 p.m. ET
If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving or have been through a journey similar to yours. Our monthly bereavement support group will begin on Tuesday, Nov. 21 from 7:00-8:30 p.m. ET. If you are interested in learning more, please email bereavement@scleroderma.org. |
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The 20%: A Virtual Support Group for Males Living with Scleroderma ZOOM: Wednesday, Nov. 22, 7 p.m. ET
Scleroderma diagnoses are less common among males. In fact, only 20% of individuals living with scleroderma are male. We have designed a support group, especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m. ET. |
| ZOOM: Thursday, Nov. 23, 9 a.m. ET
If you're going to be in the Chicago area and looking for a good cause to participate in on Thanksgiving, join our friends at the Edison Park Turkey Trot, and help raise awareness and funds for the National Scleroderma Foundation.
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Your Voice Counts: How Improving Patient-Provider Communication Can Improve Health Outcomes ZOOM: Wednesday, Nov. 29, 1 p.m. ET
The Tri-State Chapter and Hospital of Special Surgery will host "Your Voice Counts: How Improving Patient-Provider Communications Can Improve Health Outcomes" webinar on Wednesday, Nov. 29 from 1-2 p.m. Eastern. The webinar will feature presenters Mary Rose Murray Carey, LCSW and Baptiste Nicolas, LCSW.
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| ZOOM: Wednesday, Nov. 29, 7 p.m. ET
Please join us on Wednesday, Nov. 29 at 7 p.m. ET for our support group meeting for people living with scleroderma who identify as members of the LGBTQ+ community.
Email lgbtq@scleroderma.org for the meeting link. Any questions, please email Caryn Anatriello, Manager of Advocacy and Support. |
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Heartland 11th Annual Sclero-What? Education Day ZOOM: Saturday, Dec. 2, 9 a.m. ET
The Heartland Chapter will host their 11th Annual Sclero-What? Education Day on Dec. 2, from 9 a.m. to noon. The virtual education day will feature a keynote address from Dr. Erika Enos, ND and guest speaker Jan Nitti. All are welcome to join. |
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| This week in scleroderma news:
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