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November 10, 2023 | #1048
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Help us spread the word about GivingTuesday
We are so excited to rally our community to support people living with scleroderma on GivingTuesday, November 28, especially since our partners at Amgen are providing $25,000 in matching funds!
Want to help us spread the word?
Send a short video of yourself (portrait orientation) telling us why you?re supporting our mission for GivingTuesday and why others should give.
Send your video to our Senior Manager of Development, Lauren Galván, at LGalvan@scleroderma.org and you may see yourself on social media on the big day!
Don?t forget ? you can also make your own gift at www.scleroderma.org/givingtuesday.
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Did you miss our Fall Stakeholder Update last week? You can watch the recording now on our YouTube channel and learn more about our vision for the future.
You can watch or listen to past updates on YouTube as well- all linked here.
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November is Pulmonary Hypertension Awareness Month
Are you living with Pulmonary Arterial Hypertension? The Foundation is working on a special project to help raise awareness about Systemic sclerosis-associated pulmonary arterial hypertension (SSc-PAH), and we need your help!
We are working to identify patient champions to participate in digital outreach materials, including your experience living with PAH. Champions are needed to participate in photo and video shoots, and written stories.
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25th Anniversary ? One moment at a time
2010 ? Reaching new audiences
The first African American Scleroderma Patient Education Program was held in Washington, D.C., with more than 70 people in attendance.
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Winter Global Webinar: 'Advances in Scleroderma Research' ? Dec. 15
The global community of scleroderma research scientists will come together at the next Advances in Scleroderma Research ? Global Webinar at 9 a.m., ET, Friday, Dec. 15, to share and discuss the latest breakthroughs from the field. The webinar is open to all interested scleroderma researchers, including students and trainees.
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Continuing Education Programs
The National Scleroderma Foundation offers Continuing Medical Education (CME) and Continuing Nursing Education (CNE) as a vital tool in advancing awareness and understanding of scleroderma and its comorbid conditions among health care providers.
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Tell us who you want to see at Conference
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Mogil's Mobcast featuring Erion Moore
On the most recent episode, Ann Mogilevsky speaks with Erion Moore, an individual living with scleroderma who is a leader in the scleroderma community and serves on the National Scleroderma Foundation's Patient Advisory Board.
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Webinar: 'Empowering People with Disabilities Through ABLE Accounts' ? Dec. 13
Join the Foundation for an exciting and dynamic national webinar on ?Empowering People with Disabilities through ABLE Accounts? with experts from ABLE today on Dec. 13 at 2 p.m. ET. Learn all about ABLE Accounts: what they are, what benefits they carry, how much you can contribute, available investment options and more.
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Black, Indigenous, People of Color (BIPOC) Support Group
ZOOM: Sunday, Nov. 12, 4 p.m. ET
The BIPOC (Black, Indigenous, and People of Color) Support Group will meet on Sunday, Nov. 12 from 4 - 5:30 p.m. Eastern. The group will will discuss "Grief and Loss" during the session. The meeting will consist of Part 1: National Staff Updates BIPOC, and Part 2: Open Discussion - Grief and Loss. If you have any questions, please contact Marilyn Sibley or Zynovia Hetherington.
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Bereavement Support Group
ZOOM: Tuesday, Nov.14, 7 p.m. ET
If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving or have been through a journey similar to yours. Our monthly bereavement support group will begin on Tuesday, Nov. 14 from 7:00-8:30 p.m. ET. If you are interested in learning more, please email bereavement@scleroderma.org.
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ZOOM: 18 de noviembre, 2023
Tema: Rehabilitación Integral en Esclerodermia
Fecha: 18 de noviembre, 2023
Hora: 11:00 am EST
Por favor envíe sus preguntas al correo electrónico miamiradgroup@gmail.com
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Heartland 11th Annual Sclero-What? Education Day
ZOOM: Saturday, Dec. 2, 9 a.m. ET
The Heartland Chapter will host their 11th Annual Sclero-What? Education Day on Dec. 2, from 9 a.m. to noon. The virtual education day will feature a keynote address from Dr. Erika Enos, ND and guest speaker Jan Nitti. All are welcome to join.
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This week in scleroderma news:
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