National Scleroderma Foundation

November 3, 2023 | #1047

Save the Date for GivingTuesday, November 28

GivingTuesday is a day we unite for one purpose: to help people with scleroderma live life to the fullest potential!

Since this year is our 25th anniversary, GivingTuesday is even more special! Thanks to Amgen Inc., GivingTuesday gifts will be matched dollar for dollar up to $25,000!

We hope you will join us by making a gift to support our critical mission work to:

Advance medical research
Promote disease awareness
Provide support and education to people with scleroderma, their family and support networks

Don’t want to wait? You can make your gift early at scleroderma.org/givingtuesday.

And don’t forget to follow us on social media for exclusive GivingTuesday updates and opportunities!

ICYMI: 2024 National Scleroderma Conference call for presenters

Is there a presenter that you would like to see at the 2024 National Scleroderma Conference? Invite them to complete our 2024 National Scleroderma Foundation Conference Call for Presenters form by Dec. 8, 2023. We want to hear from the community and make this year’s conference the best one yet! If you have any questions or are interested in presenting a clinical session, please email Education@scleroderma.org.

Selling Items on eBay?

When listing items to sell on eBay, you can donate between 10% to 100% of your profits to benefit the scleroderma community.

Simply search for the National Scleroderma Foundation (Charity ID: 355293) in the listing flow and select the percentage you'd like to donate. Donate 10% or more and your item will feature an attention-grabbing charity ribbon. Plus, you reduce your seller fees and enjoy tax savings.

Learn more and search for items for sale that benefit the Foundation!

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25th Anniversary – One moment at a time

2010 – Advocacy pays off

The U.S. House of Representatives of the 111th Congress passed the Scleroderma Research and Awareness Act, thanks to national advocacy committee work.

Winter Global Webinar: Advances in Scleroderma Research on Dec. 15

The global community of scleroderma research scientists will come together at the next Advances in Scleroderma Research – Global Webinar at 9 a.m., ET, Friday, Dec. 15, to share and discuss the latest breakthroughs from the field. The webinar is open to all interested scleroderma researchers, including students and trainees.

Learn more

Clinical trials just became simpler to join

Our partnership with Carebox and the Carebox Connect portal allows you to complete a short, six-question questionnaire and instantly see which clinical trials are potentially relevant for you. Are you looking for a clinical trial suited for you? Joining scleroderma clinical trials just became easier and more efficient for individuals living with scleroderma, their caregivers and health care professionals.

Learn more

ABLE today: What can an ABLE Account do for you?

In 2014, Congress passed the Achieving a Better Life Experience (ABLE) Act, creating a savings and investment account specifically for people with disabilities. You're invited to join the National Scleroderma Foundation and ABLE today for an informative webinar on how an ABLE account can help you save money and invest without impacting your public benefits.

ABLE today website

Newly Diagnosed Support Group

ZOOM: Wednesday, Nov. 8, 7 p.m. ET

Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org.

Black, Indigenous, People of Color (BIPOC) Support Group

ZOOM: Sunday, Nov. 12, 4 p.m. ET

The BIPOC (Black, Indigenous, and People of Color) Support Group will meet on Sunday, Nov. 12 from 4 - 5:30 p.m. Eastern. The group will will discuss "Grief and Loss" during the session. The meeting will consist of Part 1: National Staff Updates BIPOC, and Part 2: Open Discussion - Grief and Loss. If you have any questions, please contact Marilyn Sibley or Zynovia Hetherington.

Heartland 11th Annual Sclero-What? Education Day

ZOOM: Saturday, Dec. 2, 9 a.m. ET

The Heartland Chapter will host their 11th Annual Sclero-What? Education Day on Dec. 2, from 9 a.m. to noon. The virtual education day will feature a keynote address from Dr. Erika Enos, ND and guest speaker Jan Nitti. All are welcome to join.

To learn more about these groups and others offered by the Foundation, please visit our website, call our HopeLine 800-722-4673 or email info@scleroderma.org.