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| Our Fall issue of The Voice is available on our website! Our digital copy of the latest Scleroderma Voice magazine is now available here! This issue focuses on our mission pillar of education, and contains highlights from our National Scleroderma Conference in July and other educational programs of note.
We are grateful for our celebrity ambassador, Ashley Barron, for gracing our cover once again, and for her collaboration with #RAREis and Sing Me A Story, which will be unveiled publicly in the coming weeks! |
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| 25th Anniversary – One moment at a time 2007 – DOD official
The Foundation got a boost that year as scleroderma became eligible for Department of Defense research funding due to a Congressional act that deemed the disease of impact to military personnel and their beneficiaries.
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| Clinical trials just got easier Joining scleroderma clinical trials just became easier and more efficient for individuals living with scleroderma, their caregivers and health care professionals. Our partnership with Carebox and the Carebox Connect portal allows you to complete a short, six-question questionnaire and instantly see which clinical trials are potentially relevant for you. |
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| October 28th is a big day for scleroderma education |
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| 'Living with an Interstitial Lung Disease' Webinar will be held Oct. 24 Are you living with interstitial lung disease (ILD)? Managing ILD, like pulmonary fibrosis, can be both challenging and overwhelming. Join the American Lung Association, with support from Boehringer Ingelheim, and in partnership with the National Scleroderma Foundation, for a patient-focused webinar geared towards patients who have been living with an ILD. The webinar will be held Oct. 24, at 3 p.m. ET. Hear from Erica Farrand, MD, a pulmonologist with the University of California, San Francisco, as well as Demi, an individual living with ILD. |
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| Quarterly Stakeholder Update Oct. 25 Attend the upcoming quarterly stakeholder update presented by CEO Mary J. Wheatley, IOM, CAE on Oct. 25 at 3 p.m. ET. Learn about progress in our exciting work to strengthen our organization and build capacity for growth in support of individuals affected by scleroderma, to expand our education programs, and to build greater resources for research funding. |
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Bereavement Support Group ZOOM: Tuesday, Oct. 17, 7 p.m. ET
If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving or have been through a journey similar to yours. Our monthly bereavement support group will begin on Tuesday, Oct. 17 from 7:00-8:30 pm ET. If you are interested in learning more, please email bereavement@scleroderma.org. |
| Localized Adults & Parents Support Group ZOOM: Tuesday, Oct. 17, 7 p.m. ET
The Localized Support Group for Adults and Parents hosts its meeting on the 3rd Tuesday of the month at 7 p.m. ET. Please email localizedsg@scleroderma.org for the zoom link. |
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Cuidado Dental en Esclerodermia ZOOM: 21 de octubre, 2023
El Grupo Bilingüe de Apoyo de la Fundación Nacional de Esclerodermia le extiende una cordial invitación a nuestra charla virtual vía Zoom en conmemoración del Mes de la Higiene Dental. Acompáñenos mientras exploramos el importante tema “Cuidado Dental en Esclerodermia”.
Cuándo: 21 oct 2023 11:00 a. m. Hora del este (EE. UU. y Canadá)
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| This week in scleroderma news:
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