|
|
|
| NOTICE: Upcoming office closure Our offices will be closed Oct. 9 in observance of Indigenous Peoples' Day. Staff will return calls and emails when offices open on Oct. 10. |
|
|---|
|
|
| REMINDER for federal employees and military personnel The Combined Federal Campaign is the official workplace giving campaign for the federal community.
If you are part of the federal community (or a retiree), you have the opportunity to support the Foundation through the CFC.
Give through payroll deductions, credit/debit card payments or e-check/bank transfers by selecting charity #10089 at the link below. |
|
|---|
|
|
|
|
| Last walk of the 2023 Stepping Out to Cure Scleroderma season Can you believe there's only one walk left in the 2023 Stepping Out to Cure Scleroderma walk season? If you didn't get to walk with us in 2023, don't worry. Our 2024 season will kick off this February in Southeast Florida. |
|
|---|
|
|
| 25th Anniversary – One moment at a time 2004 – Making connections
The growth of internet access expanded opportunities to connect to others living with scleroderma. The Foundation launched “Get Connected,” which served as the organization’s first discussion board. The platform offered access to support and inspiration. |
|
|---|
|
|
| Looking for a clinical trial? Have you struggled with finding and matching with a clinical trial? Joining scleroderma clinical trials just became easier and more efficient for individuals living with scleroderma, their caregivers and health care professionals.
Now, through a partnership with Carebox and the Carebox Connect portal, all you have to do is complete a short, six-question questionnaire and you can instantly see which clinical trials are potentially relevant for you. |
|
|---|
|
|
| WEBINAR: 'Living with an Interstitial Lung Disease' Living with and managing an interstitial lung disease (ILD), like pulmonary fibrosis, can be both challenging and overwhelming. Join the American Lung Association, with support from Boehringer Ingelheim, and in partnership with the National Scleroderma Foundation, for a patient-focused webinar geared towards patients who have been living with an ILD. Hear from Erica Farrand, MD, a pulmonologist with the University of California, San Francisco, as well as Demi, an individual living with ILD. |
|
|---|
|
|
| 'Stem Cell Transplantation in Scleroderma' webinar is next week The "Stem Cell Transplantation in Scleroderma" webinar will be held Oct. 11, 3 p.m. ET. This session will focus on the evolution of stem cell therapy for scleroderma, how the therapy works, what trials are currently available and the eligibility criteria. Learn about these topics and much more with Dr. Dinesh Khanna. |
|
|---|
|
|
|
The Rochester Patient Roundtable ZOOM: Saturday, October 7, 1 p.m. ET
The Rochester Scleroderma Support Group will be hosting the Rochester, NY Patient Roundtable on Saturday, Oct. 7, from 1-3 p.m. ET via Zoom. The roundtable will discuss vascular issues that impact individuals living with scleroderma. Michael York, MD, will be speaking at this event. All are welcome to attend this event. |
| Newly Diagnosed Support Group ZOOM: Wednesday, Oct. 11, 7 p.m. Eastern
Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org.
|
|
|---|
|
|
Cuidado Dental en Esclerodermia ZOOM: 21 de octubre, 2023
Tema: Cuidado Dental en Esclerodermia
Fecha: 21 de octubre, 2023
Hora: 11:00 am EST
Email: miamiradgroup@gmail.com
|
| |
|---|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
If you no longer wish to receive this weekly message from the National Scleroderma Foundation, you may unsubscribe. |
|
|---|
|
|
