National Scleroderma Foundation

September 29, 2023 | #1042

Support the scleroderma community when you shop

When shopping on Walmart.com and in the Walmart app, you can round up your purchase total and donate your change to the National Scleroderma Foundation at checkout through the Walmart SparkGood program. Select the Foundation as your charity at scleroderma.org/walmartsparkgood.

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Last week to provide feedback for FY 2024

This is the last week to take our 10-question pulse survey which will help us track our progress toward our FY 2024 goals. Your feedback elevates our work to improve the lives of those living with scleroderma. Thank you for moving our mission forward!

Take survey

The 2023 Walk Season is coming to a close

As we prepare to wrap up the 2023 Stepping Out to Cure Scleroderma season, we encourage you all to join our final walks in Boston and St. Louis. If you're unable to attend, please stay tuned to the website for exciting news about the 2024 season.

Last walks of the year:

Find your walk

25th Anniversary – One moment at a time

2003 – Big strides and big steps

Stepping Out to Cure Scleroderma, the Foundation's signature walks offering communities across the country the opportunity to bring awareness about scleroderma while raising critical funds, was launched.

Get connected to a clinical trial today

Searching and matching to a scleroderma clinical trials just became easier and more efficient for individuals living with scleroderma, their caregivers and health care professionals.

Now, through a partnership with Carebox and the Carebox Connect portal, all you have to do is complete a short, six-question questionnaire and you can instantly see which clinical trials are potentially relevant for you.

Learn more

Looking for an educational event near you?

Education is a key pillar of the National Scleroderma Foundation's mission. Each of our chapters is dedicated to educating their community by providing educational events. Are you interested in joining an event near you? Visit our website to learn more and connect with your chapter.

Find your chapter

Celebrating the power of podcasts

In honor of International Podcast Day on Saturday, Sept. 30, we would like to highlight Mogil's Mobcast and the incredible work the podcast has done for individuals living with scleroderma. Of her podcast, Mogil's Mobcast host, Ann Mogilevsky said, "My goal for this podcast is to help the world better understand scleroderma and provide the information I wish I had had when I first learned about my diagnosis.” Click the button below to learn more about Mogil's Mobcast.

Learn more

Stem Cell Transplantation in Scleroderma Webinar on Oct. 11

Have you signed up for the Stem Cell Transplantation in Scleroderma webinar on Oct. 11, 3 p.m. ET? This session will focus on the evolution of stem cell therapy for scleroderma, how the therapy works, what trials are currently available and the eligibility criteria. Learn about these topics and much more with Dr. Dinesh Khanna.

Parents of Children with Scleroderma Support Group

ZOOM: Wednesday, Oct. 4, 7:30 p.m. Eastern

If you care for a child living with scleroderma, do not miss the Parents of Children with Scleroderma Online Support Group! The group covers various topics to help parents navigate caring for children with scleroderma and finding support. The group meets virtually via Zoom on the first Wednesday of even months (e.g., June, August, etc.) from 7:30 - 9 p.m., and the first Wednesday of odd months (e.g., July, September, etc.) from 3 - 4:30 p.m. Email Pamela Pour for the meeting information.

Newly Diagnosed Support Group

ZOOM: Wednesday, Oct. 11, 7 p.m. Eastern

Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org.

The Rochester Patient Roundtable

ZOOM: Saturday, October 7, 1 p.m. ET

The Rochester Scleroderma Support Group will be hosting the Rochester, NY Patient Roundtable on Saturday, Oct. 7, from 1-3 p.m. ET via Zoom. The roundtable will discuss vascular issues that impact individuals living with scleroderma. Michael York, MD, will be speaking at this event. All are welcome to attend this event.