National Scleroderma Foundation

September 8, 2023 | #1039

Only 1 week left to submit scleroderma research grant applications

A cure for scleroderma remains an elusive goal, but your research could make a significant impact on the future of living with this disease. The National Scleroderma Foundation provides funding for New and Established Investigators based on investigator-directed topics, and the grant cycle is nearing completion.

Funding opportunities are available for early career and established investigators, and applications are due by Sept. 15, 2023.

Apply now

25th Anniversary – One moment at a time

1999 – Start Spreadin' the News

The Foundation introduced its first issue of the Scleroderma Newsline, a publication to keep the scleroderma community informed of news important to them, including profiles of individuals with the disease and details of organization happenings.

Help shape the future of the Foundation

As we work to track our progress toward our FY 2024 goals, we ask that you please take a quick 10-question pulse survey at scleroderma.wiki/pulseQ1.

We appreciate your feedback!

Who inspires you to Step Out to Cure Scleroderma?

Whether you do it for your family, your friends, the fun or the FIGHT, we encourage you to get out there and join us as we continue Stepping Out to Cure Scleroderma!

Find your walk

Connect with others who understand your journey

Looking for a support group? Our support groups are growing and expanding nationwide. Check out our local support group to one near you!

Upcoming monthly virtual support group meetings:

Newly Diagnosed: 2nd Wednesday, 7 p.m. ET
Localized Adults & Parents: 3rd Tuesday, 7 p.m. ET
The 20%: Males Living with Scleroderma: 4th Wednesday, 7 p.m. ET
LGBTQ+: 4th Wednesday, 7 p.m. ET
Parents & Teens: 4th Wednesday, 6 p.m. MT
Caregivers: 4th Thursday, 7 p.m. ET

Learn more

Plans are underway for the 2024 National Scleroderma Conference

We cannot wait to see you all at the 2024 National Scleroderma Conference in Bellevue, Washington (just 9 miles east of Seattle)! What are you looking forward to most at Conference? Email us to share your greatest expectations.

Mogil's Mobcast with Jameela Goudarzi

On the latest episode of Mogil's Mobcast, Ann Mogilevsky talks about self-care with Jameela Goudarzi, a family nurse practitioner specializing in primary care and family medicine at the Medical University of South Carolina.

Listen now

Fall Global Webinar: Advances in Scleroderma Research

The global community of scleroderma research scientists will come together at the next Advances in Scleroderma Research – Global Webinar at 9 a.m., ET, Friday, Sept. 15, to share and discuss the latest breakthroughs from the field. The webinar is open to all interested scleroderma researchers, including students and trainees.

Learn more

Newly Diagnosed Support Group

ZOOM: Wednesday, Sept. 13, 7 p.m. ET

Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org.

BIPOC
Support Group

ZOOM: Sunday, Sept. 10, 4 p.m. ET

The BIPOC (Black, Indigenous, and People of Color) Support Group will meet on Sunday, Sept. 10 from 4 - 5:30 p.m. Eastern. The group will will discuss mental health and awareness in an open discussion.

Localized Adults & Parents Support Group

ZOOM: Tuesday, Sept. 19, 7 p.m. ET

The Localized Support Group for Adults and Parents hosts its meeting on the 3rd Tuesday of the month at 7 p.m. ET. Please email localizedsg@scleroderma.org for the zoom link.

New support group available for those who have lost a loved one to scleroderma

The National Scleroderma Foundation will now offer a professionally led support group to help family members and friends who have lost a loved one to scleroderma contend with the many emotions associated with grief.

If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will begin on Tuesday, September 19 from 7:00-8:30 pm ET. If you are interested in learning more, please email bereavement@scleroderma.org.