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Map of Realignment eLetter

The National Scleroderma Foundation is excited to announce that we are realigning our chapters to streamline resources and increase coverage and impact. Join us in improving the lives of those affected by scleroderma. 

Our 13 chapters are:

•Florida & Puerto Rico Chapter (serving Florida & Puerto Rico)
•Heartland Chapter (serving Iowa, Kansas, Missouri, Nebraska, North Dakota, and South Dakota)
•Lower Great Lakes Chapter (serving Illinois, Indiana, Kentucky, and Ohio)
•Mid-Atlantic Chapter (serving Delaware, District of Columbia, Maryland, Pennsylvania, South & Central New Jersey, Virginia, and West Virginia)
•New England Chapter (serving Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont)
•Pacific Northwest Chapter (serving Alaska, Idaho, Oregon, and Washington)
•Rocky Mountain Chapter (serving Arizona, Colorado, Montana, New Mexico,  Utah, and Wyoming)
•South Chapter (serving Alabama, Arkansas, Louisiana, Mississippi, and Tennessee)
•Southeast Chapter (serving Georgia, North Carolina, and South Carolina)
•Texoma Chapter (serving Oklahoma and Texas)
•Tri-State Chapter (serving Connecticut, New York, and Northern New Jersey)
•Upper Great Lakes Chapter (serving Michigan, Minnesota, and Wisconsin)
•West Coast Chapter (serving California, Hawaii, and  Nevada)

Find your chapter here!

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Ways to Fundraise

Countless ways you can fundraise!

There are countless ways you can fundraise to support the work of the National Scleroderma Foundation. Whether you host your own event, become a HOPE Raiser, or start a fundraiser on Facebook, we have the tools to help you make a big impact.  

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Stepping Out to Cure Scleroderma

Stepping Out to Cure Scleroderma is celebrating 20 years!

Stepping Out to Cure Scleroderma is celebrating 20 years! You can help us commemorate this special occasion by joining a walk today.

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August recess eLetter

August recess is here!

Federal lawmakers will return to their home states and districts from now until September 4th, 2023, to meet with constituents in person. This August, our scleroderma community can mobilize and contact members of Congress in three different ways.

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Mobcast

Mogil's Mobcast with Heather Frenz

On the recent episode of Mogil's Mobcast, Ann talks with Heather Frenz, Executive Director of the Patient Safety and Clinical Competency at Albany Medical Center. 

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Research

Apply before September 15 for the 2024 Grant Cycle

The National Scleroderma Foundation is the leading nonprofit supporter of peer-reviewed, scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. Since its inception, the Foundation has committed over $30.8 million for scleroderma research, which continues as a priority of our mission.

Funding opportunities are available for early career and established investigators, and applications are due by September 15, 2023.

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Newly Diagnosed Support Group

ZOOM: Wednesday, August 14, 7 p.m. ET

Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org.

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