| | | The National Scleroderma Foundation is excited to announce that we are realigning our chapters to streamline resources and increase coverage and impact. Join us in improving the lives of those affected by scleroderma. To learn more about our chapter realignment, visit scleroderma.org/13chapters.
Our 13 chapters are:
•Florida & Puerto Rico Chapter (serving Florida & Puerto Rico)
•Heartland Chapter (serving Iowa, Kansas, Missouri, Nebraska, North Dakota, and South Dakota)
•Lower Great Lakes Chapter (serving Illinois, Indiana, Kentucky, and Ohio)
•Mid-Atlantic Chapter (serving Delaware, District of Columbia, Maryland, Pennsylvania, South & Central New Jersey, Virginia, and West Virginia)
•New England Chapter (serving Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont)
•Pacific Northwest Chapter (serving Alaska, Idaho, Oregon, and Washington)
•Rocky Mountain Chapter (serving Arizona, Colorado, Montana, New Mexico, Utah, and Wyoming)
•South Chapter (serving Alabama, Arkansas, Louisiana, Mississippi, and Tennessee)
•Southeast Chapter (serving Georgia, North Carolina, and South Carolina)
•Texoma Chapter (serving Oklahoma and Texas)
•Tri-State Chapter (serving Connecticut, New York, and Northern New Jersey)
•Upper Great Lakes Chapter (serving Michigan, Minnesota, and Wisconsin)
•West Coast Chapter (serving California, Hawaii, and Nevada)
Find you chapter here! |
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| | | Many thanks to all who support the Foundation Whether you’re a member, donor, volunteer, medical and scientific professional, staff, or leader of the Foundation, we want to thank you for your generous support this past fiscal year (July 1, 2022-June 30, 2023). Because of you, our year was filled with hundreds of mission moments that brought our community together around our mission. Here are some of the accomplishments you helped us achieve:
• 93 support groups
• 920 Champion Members
• Funding 31 scleroderma researchers, a $2.4 Million total investment
• 45 chapter-led educational events
• 600+ National Scleroderma Conference registrants |
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| | | Thank you to all National Scleroderma Conference and Kids Get Scleroderma Too! Conference attendees! Thank you to all conference attendees, vendors, and everyone who made the conference a success. This year marks the first conference in-person in three years. We are incredibly thankful for everyone who made this possible.
Don’t forget, all participants have 60 days to access sessions and slides after the conference. After 60 days, everyone will have access to recorded sessions on our YouTube channel.
Provide your conference feedback at scleroderma.org/conferencefeedback. |
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| | | National Scleroderma Foundation recognizes community leaders The National Scleroderma Foundation hosted their 2023 Volunteer Awards Recognition luncheon at the National Scleroderma Conference in Orlando, Florida. Each year the Foundation recognizes volunteers for their outstanding work in support of its mission to advance medical research, promote disease awareness, and provide support and education to people with scleroderma. This year, the Foundation conferred 14 awards. |
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| | | Congratulations to our advocates!
Congratulations to our advocates! The Defense Subcommittee released the list for the Peer Reviewed Medical Research Program (PRMRP) and scleroderma is again listed! By including scleroderma on the DOD’s eligibility list this year, researchers focusing on scleroderma will be able to compete for and secure the federal support that will help their current work succeed. |
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| | | Mogil's Mobcast with Jeffrey Brewer, PHARM.D., BCACP, FASHP On the recent episode of Mogil's Mobcast, Ann talks with Dr. Jeffrey Brewer, Director of Professional Affairs and an Associate Professor of Pharmacy Practice at the Albany College of Pharmacy and Health Sciences. Listen now at Apple Podcasts. |
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| | | Apply before September 15 for the 2024 Grant Cycle The National Scleroderma Foundation is the leading nonprofit supporter of peer-reviewed, scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. Since its inception, the Foundation has committed over $30.8 million for scleroderma research, which continues as a priority of our mission.
Funding opportunities are available for early career and established investigators, and applications are due by September 15, 2023.
Learn more at scleroderma.org/researchapply. |
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| | | Localized Support Group for Adults and Parents ZOOM: Tuesday, August 15, 7 p.m. ET
The Localized Support Group for Adults and Parents is hosting guest speaker Tom Seaman on Tuesday, August 15th at 7 pm ET.
Tom is a life coach, author, podcaster, and inspirational speaker. Tom covers a variety of topics related to health issues and adapting to adversity in life.
This presentation will be open to everyone in the scleroderma community. Please email localizedsg@scleroderma.org for the zoom link.
Learn more about Tom Seaman here. |
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