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National Conference and KGS2

Less than a week until conference!

The 2023 National Scleroderma Conference and Kids Get Scleroderma Too! Conference are less than a week away. Whether you are virtual or in person in Orlando, Florida, join us July 14, 15, and 16 for conference. This year's educational conference will cover a spectrum of topics related to scleroderma. 

Are you or someone you love living with scleroderma? Don't miss this opportunity to learn more from doctors, experts and community leaders, while connecting with other who understand your experience.

Sign up now at scleroderma.org/conference.

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Light Up

Thank you for sending us pictures of your light ups and proclamations

Thank you to everyone who worked hard to light up their community and receive proclamations!

Share photos from proclamations and light-ups you have secured, please complete this form: scleroderma.org/awareness_light_up_photo_submit

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Mental Health America

2023 BIPOC Mental Health Toolkit in commemoration of Bebe Moore Campbell National Minority Mental Health Awareness Month!

Mental Health America is excited to announce the release of our highly anticipated 2023 BIPOC Mental Health Toolkit in commemoration of Bebe Moore Campbell National Minority Mental Health Awareness Month!

This year, our theme is Culture, Community, & Connection. Our lives are deeply intertwined with the environments around us. Who and what we are surrounded by impacts our mental health and overall wellness. In particular, Black, Indigenous, and people of color (BIPOC) populations are faced with disproportionate amounts of historical trauma and displacement that have challenged how these communities remain sustainable and continue to thrive. Despite countless attempts to take away power, erase histories, and diminish future successes, BIPOC communities continue to prosper. Culture, community, and connection are pillars that support and uplift BIPOC individuals when the dangers of oppression and systemic racism threaten the environments where BIPOC individuals live, work, play, and thrive. Download The 2023 BIPOC Mental Health Month Toolkit.

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Mobcast

Mogil's Mobcast with Donna Dinkin

On the recent Mogil's Mobcast, Ann talks with Donna Dinkin, an author who lives with scleroderma. The two will talk about their commonalities and Donna's memoir, "Thursdays with Eugene: A Memoir of Living While You Think You're Dying." Listen now on Apple Podcast. 

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Research Public Meeting

Apply now for the 2024 Grant Cycle

The National Scleroderma Foundation is the leading nonprofit supporter of peer-reviewed, scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. Since its inception, the Foundation has committed over $30.8 million for scleroderma research, which continues as a priority of our mission.

Funding opportunities are available for early career and established investigators, and applications are due by September 15, 2023.

Learn more at scleroderma.org/researchapply.

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Newly Diagnosed Support Group

ZOOM: Wednesday, July 12, 7 p.m. ET

Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org.

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Prometheus Biosciences Study For NSF
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