| | | In honor of Independence Day Happy 4th of July! In observance of Independence Day, our offices will be closed Monday, July 3, and Tuesday, July 4. Staff will respond to calls and messages once the office reopens on July 5. |
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| | | Thank you for joining Scleroderma Awareness Month As June's Scleroderma Awareness Month comes to a close, we thank you for joining us all month long for Lets Talk About Scleroderma and elevating the conversation around scleroderma. To check out all of our Scleroderma Awareness Month content, visit scleroderma.org/tealtalk
#TealTalk Thank you to our Awareness Month Sponsor! |
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| | | A Big #TealTalk Thank You Thank you so much to everyone who joined us for our first-ever #TealTalk series this past month. We enjoyed getting to know you and we look forward to continuing our #TealTalk program in the future. For those who participated in our #TealTalk Tables, please complete the feedback form you were sent via email. If you would like to provide general feedback on #TealTalk, send an email to Lauren Galvan, our Annual Giving & Stewardship Manager, at lgalvan@scleroderma.org. |
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| | | Stepping Out to Cure Scleroderma is celebrating 20 years! There is still time to celebrate 20 years of Stepping Out to Cure Scleroderma! Help us commemorate this milestone by signing up for a walk or making a donation.
Find your walk today by visiting scleroderma.org/steppingout. |
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| | | Last Chance to Donate to Research This Fiscal Year! Today is the last day in our fiscal year, and we invite you to make a gift to support scleroderma research.
Your gift to research will help us make advances in discovering the cause, understanding the mechanism, and overcoming scleroderma forever.
Get your gift in by 12 am ET to help us close our fiscal year strong! Make your gift at scleroderma.org/supportresearch. |
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| | | Thank you for sending us pictures of your light ups and proclamations
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| | | Less than a month until the 2023 National Scleroderma Conference and Kids Get Scleroderma, Too! Conference The 2023 National Scleroderma Conference and KGS2 are right around the corner! Don’t miss out on speakers such as Elizabeth Volkmann, MD, Michael York, MD and Virginia Steen, MD. Learn more and sign up at scleroderma.org/conference. |
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| | | 2023 BIPOC Mental Health Toolkit in commemoration of Bebe Moore Campbell National Minority Mental Health Awareness Month! Mental Health America is excited to announce the release of our highly anticipated 2023 BIPOC Mental Health Toolkit in commemoration of Bebe Moore Campbell National Minority Mental Health Awareness Month!
This year, our theme is Culture, Community, & Connection. Our lives are deeply intertwined with the environments around us. Who and what we are surrounded by impacts our mental health and overall wellness. In particular, Black, Indigenous, and people of color (BIPOC) populations are faced with disproportionate amounts of historical trauma and displacement that have challenged how these communities remain sustainable and continue to thrive. Despite countless attempts to take away power, erase histories, and diminish future successes, BIPOC communities continue to prosper. Culture, community, and connection are pillars that support and uplift BIPOC individuals when the dangers of oppression and systemic racism threaten the environments where BIPOC individuals live, work, play, and thrive. Download The 2023 BIPOC Mental Health Month Toolkit. |
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| | | Mogil's Mobcast with Daniel Kayajian On the recent Mogil's Mobcast, Ann talks with Daniel Kayajian, a medical based speech pathologist (SLP). The two will talk about the three stages of swallowing, signs of swallowing issues, how to diagnose them, problems that may occur with scleroderma patients, and some suggestions to help with those issues. Listen now on Apple Podcast. |
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| | | Apply now for the 2024 Grant Cycle The National Scleroderma Foundation is the leading nonprofit supporter of peer-reviewed, scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. Since its inception, the Foundation has committed over $30.8 million for scleroderma research, which continues as a priority of our mission.
Funding opportunities are available for early career and established investigators, and applications are due by September 15, 2023.
Learn more at scleroderma.org/researchapply. |
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| | | Parents of Children Living with Scleroderma Support Group ZOOM: Wednesday, July 5, 3 p.m. ET
If you care for a child living with scleroderma, do not miss the Parents of Children with Scleroderma Online Support Group! The group covers various topics to help parents navigate caring for children with scleroderma and finding support. The group meets virtually via Zoom on the first Wednesday of even months (e.g., June, August, etc.) from 7:30 - 9 p.m., and the first Wednesday of odd months (e.g., July, September, etc.) from 3 - 4:30 p.m. Email Pamela Pour for the meeting information. |
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| | | | | | | | | | | | | If you no longer wish to receive this weekly message from the National Scleroderma Foundation, you may unsubscribe. |
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