| | | One of our core values at the National Scleroderma Foundation is diversity. We know that our greatest strength comes from those who make up our scleroderma community. We embrace the unique ideas and perspectives each member of our community brings to the Foundation with the confidence that it makes us better. It is in that spirit we wish everyone happy Pride month! |
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| | | Join us for Scleroderma Awareness Month June is Scleroderma Awareness Month! All month long, Lets Talk About Scleroderma and elevate the conversation supporting those battling this chronic disease. To join us all month long, visit scleroderma.org/tealtalk
#TealTalk Thank you to our Awareness Month Sponsor! |
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| | | Last chance to join us for #TealTalk Series This is your last week to join us for our #TealTalk series of roundtable discussions and live conversations!
Tune in live on Facebook on Tuesday, June 27 at 12 pm ET to hear from Demetra Newton of the Georgia Chapter.
And last but certainly not least, meet others in the scleroderma community at our last #TealkTalk Table on World Scleroderma Day (Thursday, June 29) at 12 pm ET. Register here. |
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| | | Stepping Out to Cure Scleroderma is celebrating 20 years! Stepping Out to Cure Scleroderma is celebrating 20 years! With more than 36 walks in 2023, there is a walk for everyone.
Find your walk today by visiting scleroderma.org/steppingout. |
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| | | Make a gift to scleroderma research Together, we can overcome scleroderma forever. But we need your help.
In honor of World Scleroderma Day, June 29, we invite you to make a gift to support scleroderma research. You can even make your gift in honor or in memory of yourself or a loved one.
Your gift to research will ensure that we remain on the cutting edge of scleroderma science so that our medical and scientific professionals can develop more precise therapies and treatments for our community.
Get your gift in by World Scleroderma Day, June 29 at scleroderma.org/supportresearch.
Thank you for your support! |
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| | | Last chance to take action before June 30!
We have extended our Action Alert! Contact your Senators and ask that they support the inclusion of scleroderma in the Department of Defense’s Peer-Reviewed Medical Research Program. We ask that you reach out to your Senators no later than June 30, 2023. |
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| | | Send us pictures of your light ups and proclamations
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| | | Less than a month until the 2023 National Scleroderma Conference and Kids Get Scleroderma, Too! Conference The 2023 National Scleroderma Conference and KGS2 are right around the corner! Don’t miss out on speakers such as Elizabeth Volkmann, MD, Michael York, MD and Virginia Steen, MD. Learn more and sign up at scleroderma.org/conference. |
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| | | Save the date for the III International Scleroderma Conference In Commemoration of World Scleroderma Day, the National Scleroderma Foundation, the Spanish Association of Scleroderma and Esclerosalud - Scleroderma y Raynaud Civil Association of Argentina invites you to a zoom webinar:
Topic: III International Scleroderma Conference
When: Jun 29, 2023 11:00 AM Eastern Time (US and Canada)
Register in advance for this webinar
After registering, you will receive a confirmation email containing information about joining the webinar.
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Em comemoração ao Dia Mundial da Esclerodermia, a Fundação Nacional da Esclerodermia, a Associação Espanhola de Esclerodermia e Esclerosalud - Escleroderma y Raynaud Associação Civil da Argentina convida-te para um webinar do Zoom.
Assunto: III Jornada Internacional de Esclerodermia
Quando: 29 jun. 2023
Horário: 11:00 da manhã Horário da Costa Leste (EUA e Canadá)
Inscreva-se antecipadamente para este webinar
Após a inscrição, receberá um e-mail de confirmação contendo informações sobre como entrar no webinar.
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En Conmemoración al Día Mundial de la Esclerodermia, la Fundación Nacional de Esclerodermia, la Asociación Española de Esclerodermia y Esclerosalud - Esclerodermia y Raynaud Asociación Civil de Argentina los invita al seminario web Zoom:
Cuándo: 29 jun 2023 11:00 a. m. Hora del este (EE. UU. y Canadá)
Tema: III Jornada Internacional de Esclerodermia
Regístrese con anticipación para este seminario web
Luego de la inscripción, recibirá un correo electrónico de confirmación con información para unirse al seminario web. |
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| | | Funding opportunities for the 2024 Grant Cycle The National Scleroderma Foundation is the leading nonprofit supporter of peer-reviewed, scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. Since its inception, the Foundation has committed over $30.8 million for scleroderma research, which continues as a priority of our mission.
Funding opportunities are available for early career and established investigators, and applications are due by September 15, 2023.
Learn more at scleroderma.org/researchapply. |
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| | | Inspire: Monday, June 26 to Friday, June 30
Dr. Jessica Gordon, an Associate Attending Physician in the Division of Rheumatology at Hospital for Special Surgery and an Associate Professor of Clinical Medicine at Weill Cornell Medicine will be answering your questions Monday, June 26 through Friday, June 30. We encourage you to start posting your questions now! Please be sure to follow the post and look out for responses.
Ask the Expert is LIVE! Visit Inspire to post and see Dr. Gordon's responses. |
| The Minnesota and Michigan Chapter Monthly RestorACTIVE Educational Webinar Series ZOOM: 4 p.m., Eastern, Monday, June 26
The Michigan and Minnesota Chapters are proud to welcome Rachel Lando and her RestorACTIVE program! Rachel will be leading the RestorACTIVE (RA) interactive series. RA is a movement option created by patients for patients to discover tools to manage chronic pain or discomfort, move and feel better, and build the resilience to return to a well-loved life. Classes are accessible for all levels, whether you prefer to train on the mat, in a chair, or in bed.
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| | Teens and Parents Support Group ZOOM: 6 p.m., Mountain, Wednesday, June 28
Calling all teens looking to connect with other teens living with scleroderma. The Albuquerque support group will have Teens & Parent Support Group meetings each month on the 4th Wednesday via Zoom. The group will be led by Debra Droux, Maria Tafoya, and Jackie Martinez. Email nmsclero@gmail.com or call 505-503-3545 to receive the Zoom meeting information. We ask that a parent or caregiver be present with their teen when the meeting starts. |
| The 20%: Males Living with Scleroderma Support Group ZOOM: 7 p.m., Eastern, Wednesday, June 28
Scleroderma diagnoses are less common among males. In fact, only 20% of individuals living with scleroderma are male. We have designed a support group, especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m. Eastern. |
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| | ZOOM: 7 p.m., Eastern, Wednesday, June 28
Please join us on Wednesday, June 28th at 7 pm ET for the first support group meeting for people living with scleroderma who identify as members of the LGBTQ+ community.
Email lgtbq@scleroderma.org for the meeting link. Any questions, please email Caryn Anatriello, Manager of Advocacy and Support at canatriello@scleroderma.org.
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