| | | On June 19, the National Scleroderma Foundation recognizes Juneteenth, in honor of the day enslaved people learned they were free in the United States. Our offices will be closed on June 19. |
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| | | On this Father’s Day, we would like to honor and thank the fathers in our community, and send love and support to those remembering the fathers in their lives today. |
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| | | Join us for Scleroderma Awareness Month June is Scleroderma Awareness Month! All month long, Lets Talk About Scleroderma and elevate the conversation supporting those battling this chronic disease. To join us all month long, visit scleroderma.org/tealtalk
#TealTalk Thank you to our Awareness Month Sponsor! |
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| | | ICYMI: #TealTalk Events This Week On Tuesday, June 20, we’ll welcome Dr. Elizabeth Volkmann of the University of California Los Angeles to our #TealTalk Live at 12 pm ET on Facebook. You won’t want to miss hearing Dr. Volkmann, an expert in systemic sclerosis and connective tissue disease-related interstitial lung disease.
On Thursday, June 22, you can also meet and talk with other members of the scleroderma community at our #TealTalk Table at 12 pm ET. Register here! |
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| | | Stepping Out to Cure Scleroderma is celebrating 20 years! Help raise awareness and funding to support our critical mission work.
Become a team captain today!
Find your walk today by visiting scleroderma.org/steppingout. |
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| | | Send us pictures of your light ups and proclamations
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| | | We have extended our Action Alert! Contact your Senators and ask that they support the inclusion of scleroderma in the Department of Defense’s Peer-Reviewed Medical Research Program. We ask that you reach out to your Senators no later than June 30, 2023. |
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| | | One month until the 2023 National Scleroderma Conference and Kids Get Scleroderma, Too! Conference One month until the 2023 National Scleroderma Conference and KGS2! Here is a sneak peek at some of the amazing sessions we will be hosting.
✅ African Americans & Scleroderma – DeAnna Baker Frost, MD, PhD
✅ Severe Lung Disease and Lung Transplantation in Scleroderma – Francesco Boin, MD
✅ Stay Active, Keep Moving with Scleroderma – Rachel Lando
To make sure you don’t miss out on these and many other opportunities, sign up at scleroderma.org/conference. |
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| | | Save the date for the III Jornada Interacional De Escleroderma In Commemoration of World Scleroderma Day, the National Scleroderma Foundation, the Spanish Association of Scleroderma and Esclerosalud - Scleroderma y Raynaud Civil Association of Argentina invites you to a zoom webinar:
Topic: III International Scleroderma Conference
When: Jun 29, 2023 11:00 AM Eastern Time (US and Canada)
Register in advance for this webinar:
https://us02web.zoom.us/webinar/register/WN_akd62EKoSUKKvaJWIn_2sg
After registering, you will receive a confirmation email containing information about joining the webinar.
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Em comemoração ao Dia Mundial da Esclerodermia, a Fundação Nacional da Esclerodermia, a Associação Espanhola de Esclerodermia e Esclerosalud - Escleroderma y Raynaud Associação Civil da Argentina convida-te para um webinar do Zoom.
Assunto: III Jornada Internacional de Esclerodermia
Quando: 29 jun. 2023
Horário: 11:00 da manhã Horário da Costa Leste (EUA e Canadá)
Inscreva-se antecipadamente para este webinar:
https://us02web.zoom.us/webinar/register/WN_akd62EKoSUKKvaJWIn_2sg
Após a inscrição, receberá um e-mail de confirmação contendo informações sobre como entrar no webinar.
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En Conmemoración al Día Mundial de la Esclerodermia, la Fundación Nacional de Esclerodermia, la Asociación Española de Esclerodermia y Esclerosalud - Esclerodermia y Raynaud Asociación Civil de Argentina los invita al seminario web Zoom:
Cuándo: 29 jun 2023 11:00 a. m. Hora del este (EE. UU. y Canadá)
Tema: III Jornada Internacional de Esclerodermia
Regístrese con anticipación para este seminario web:
https://us02web.zoom.us/webinar/register/WN_akd62EKoSUKKvaJWIn_2sg
Luego de la inscripción, recibirá un correo electrónico de confirmación con información para unirse al seminario web. |
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| | | Announcing funding opportunities for the 2024 Grant Cycle The National Scleroderma Foundation is the leading nonprofit supporter of peer-reviewed, scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. Since its inception, the Foundation has committed over $30.8 million for scleroderma research, which continues as a priority of our mission.
Funding opportunities are available for early career and established investigators, and applications are due by September 15, 2023.
Learn more at scleroderma.org/researchapply. |
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| | | Inspire: Monday, June 26 to Friday, June 30
Dr. Jessica Gordon, an Associate Attending Physician in the Division of Rheumatology at Hospital for Special Surgery and an Associate Professor of Clinical Medicine at Weill Cornell Medicine will be answering your questions Monday, June 26 through Friday, June 30. We encourage you to start posting your questions now! Please be sure to follow the post and look out for responses by visiting https://www.inspire.com/groups/scleroderma-foundation/ |
| ZOOM: 7 p.m., Eastern, Thursday, June 22
The Caregiver Support Group will meet on May 25 with guest speaker, Kim Brehmer, Regional Coordinator for Lutheran Social Services (LSS). The group will discuss, "Taking Care of You." For more information, email support group leader Debbie Haussler at caregivers@scleroderma.org.
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| | Teens and Parents Support Group ZOOM: 3 p.m., Eastern, Wednesday, June 28
Calling all teens looking to connect with other teens living with scleroderma. The Albuquerque support group will have Teens & Parent Support Group meetings each month on the 4th Wednesday via Zoom. The group will be led by Debra Droux, Maria Tafoya, and Jackie Martinez. Email nmsclero@gmail.com or call 505-503-3545 to receive the Zoom meeting information. We ask that a parent or caregiver be present with their teen when the meeting starts. |
| The 20%: Males Living with Scleroderma Support Group ZOOM: 7 p.m., Eastern, Wednesday, June 28
Scleroderma diagnoses are less common among males. In fact, only 20% of individuals living with scleroderma are male. We have designed a support group, especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m. Eastern.
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| | Adults Living with Localized Scleroderma and Parents Support Group ZOOM: 7 p.m., Eastern, Tuesday, June 20
The Adults Living with Localized Scleroderma and Parents Support Group will meet on June 20 at 7 p.m. Eastern. For meeting details and zoom link, please email LocalizedSG@scleroderma.org. |
| ZOOM: 7 p.m., Eastern, Wednesday, June 28
Please join us on Wednesday, June 28th at 7 pm EST for the first support group meeting for people living with scleroderma who identify as members of the LGBTQ+ community.
Email lgtbq@scleroderma.org for the meeting link. Any questions, please email Caryn Anatriello, Manager of Advocacy and Support at canatriello@scleroderma.org.
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