| | | Get the latest from our CEO! This week, CEO Mary J. Wheatley, IOM, CAE, shares the latest National Scleroderma Foundation news for the month of June. Read about Scleroderma Awareness Month and much more. |
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| | | Join us for Scleroderma Awareness Month June is Scleroderma Awareness Month! All month long, Lets Talk About Scleroderma and elevate the conversation supporting those battling this chronic disease. To join us all month long, visit scleroderma.org/tealtalk
#TealTalk |
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| | | #TealTalk events this week Our #TealTalk series is officially underway, and we are excited to host a #TealTalk Live this Tuesday, June 13 at 12 pm EST and another #TealTalk Table on Thursday, June 15 also at 12 pm EST.
Register for our #TealTalk Table series at scleroderma.org/tealtalktable.
And join us live on our Facebook page this Tuesday, June 13 when we’ll welcome Deisree “Desi” James of the National Scleroderma Foundation Southeast Florida Chapter |
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| | | Stepping Out to Cure Scleroderma is celebrating 20 years! Stepping Out to Cure Scleroderma is celebrating 20 years! Help us commemorate this milestone by signing up for a walk or making a donation.
You, too, can be a changemaker in the fight against scleroderma!
Find your walk today by visiting scleroderma.org/steppingout. |
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| | | We have extended our Action Alert! Contact your Senators and ask that they support the inclusion of scleroderma in the Department of Defense’s Peer-Reviewed Medical Research Program. We ask that you reach out to your Senators no later than June 30, 2023. |
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| | | The Kids Get Scleroderma, Too! Conference Does your child have scleroderma? Join us at the Kids Get Scleroderma, Too! Conference in Orlando, Florida, July 14-16. This annual conference is a great opportunity to learn more about scleroderma-related topics and connect with other individuals with similar experiences. Sign up now at scleroderma.org/conference. |
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| | | Mogil's Mobcast with Michelle Morgan On part two of the recent two-part episode of Mogil's Mobcast, Ann continues her talk with Michelle Morgan, a registered dietician nutritionist. They discuss dry mouth, swallowing, GERD (Gastroesophageal Reflux Disease), Gastroparesis, SIBO (Small intestinal bacterial overgrowth), diarrhea, constipation, fecal incontinence, and Low FODMAP Diets during this episode. Listen now at Apple Podcast. |
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| | | Save the date for the III Jornada Interacional De Escleroderma Join us on June 29, 2023 from 11 am – 2:30 pm EST for the III Jornada Interacional de Esclerodermia. |
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| | | Announcing funding opportunities for the 2024 Grant Cycle The National Scleroderma Foundation is the leading nonprofit supporter of peer-reviewed, scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. Since its inception, the Foundation has committed over $30.8 million for scleroderma research, which continues as a priority of our mission.
Funding opportunities are available for early career and established investigators, and applications are due by September 15, 2023.
Learn more at scleroderma.org/researchapply. |
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| | | BIPOC Special Meeting: Mental Health and Wellness ZOOM: 4 p.m., Eastern, Sunday, June 11
Guest Speaker: Nicole Wilson, Lecturer at the University of Washington-School of Social Work, MEd, MSW
Following the presentation, there will be breakout rooms to continue the conversation. Register in advance for this webinar. |
| ZOOM: 7 p.m., Eastern, Thursday, June 22
The Caregiver Support Group will meet on May 25 with guest speaker, Kim Brehmer, Regional Coordinator for Lutheran Social Services (LSS). The group will discuss, "Taking Care of You." For more information, email support group leader Debbie Haussler at caregivers@scleroderma.org.
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