| | | On this Mother’s Day, we would like to honor and thank the mothers in our community, and send love and support to those remembering the mothers in their lives today. |
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| | | Stepping Out to Cure Scleroderma Sign up for a walk today and be part of the cure!
We all have to the power to be changemakers in the fight against scleroderma.
To find your walk and register, go to scleroderma.org/steppingout |
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| | | We have extended our Action Alert! Contact your Senators and ask that they support the inclusion of scleroderma in the Department of Defense’s Peer-Reviewed Medical Research Program. We ask that you reach out to your Senators no later than June 30, 2023. |
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| | | Exciting news from our Celebrity Ambassador Ashley Barron Check out this video of Celebrity Ambassador Ashley Barron – hear the news directly from her at the link below. To listen to Ashley’s special message about our upcoming conference click the link. |
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| | | Mogil's Mobcast with Tracy Frech, MD On the recent episode of Mogil's Mobcast, Ann talks with Tracy Frech, MD. They will discuss gastrointestinal manifestations that occur with systemic scleroderma. To learn more, visit the link! |
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| | | Announcing Funding Opportunities for the 2024 Grant Cycle The National Scleroderma Foundation is the leading nonprofit supporter of peer-reviewed, scleroderma research to discover the cause, understand the mechanism, and overcome scleroderma forever. Since its inception, the Foundation has committed over $30.8 million for scleroderma research, which continues as a priority of our mission.
Funding opportunities are available for early career and established investigators, and applications are due by September 15, 2023.
Learn more at scleroderma.org/researchapply. |
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| | | Teens and Parents Support Group ZOOM: 3 p.m., Eastern, Wednesday, May 24
Calling all teens looking to connect with other teens living with scleroderma. The Albuquerque support group will have Teens & Parent Support Group meetings each month on the 4th Wednesday via Zoom. The group will be led by Debra Droux, Maria Tafoya, and Jackie Martinez. Email nmsclero@gmail.com or call 505-503-3545 to receive the Zoom meeting information. We ask that a parent or caregiver be present with their teen when the meeting starts. |
| The 20%: Males Living with Scleroderma Support Group ZOOM: 7 p.m., Eastern, Wednesday, May 24
Scleroderma diagnoses are less common among males. In fact, only 20% of individuals living with scleroderma are male. We have designed a support group, especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m., ET. |
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| | Newly Diagnosed Support Group ZOOM: 7 p.m., Eastern, Wednesday, May 10
Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org. |
| ZOOM: 4 p.m., Eastern, Wednesday, May 21
The next BIPOC Support Group Meeting is on Sunday, May 21, 2023 at 4:00-5:30 Come join us and our speaker Dedra Sibley, Esq. as she discusses “Creating Legacy for your Family.” |
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| | El Grupo Bilingüe de Apoyo de la Fundación Nacional de Esclerodermia te invita a su charla virtual vía zoom “Nutrición en Esclerodermia”.
Fecha : 20 de Mayo, 2023
Hora: 11:00 am EST
Por favor envíe sus preguntas al correo electrónico miamiradgroup@gmail.com
A continuación, vínculo para registrarse al evento https://forms.gle/N7isE1z7dvcioGYQ9 |
| ZOOM: 7 p.m., Eastern, Monday, May 22
The Tri-State Chapter Support Group will meet on May 22 with guest speaker, Victoria Perry, MVP Health Care. The group will discuss Medicare and everything you need to know about it. For more information, email sdtristate@sclerodermatristate.org. |
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