| | | Quarterly Stakeholder Update If you missed our April 26 stakeholders update, you can view the recording now. This update focused on our research programs, which is also the focus of the summer issue of The Voice magazine. |
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| | | May is Mental Health Awareness Month In honor of May being National Mental Health Month, we would like to highlight the importance of prioritizing mental health. For those affected by scleroderma, you might struggle with mental health issues. Our website can provide ways to help better your mental state. |
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| | | Stepping Out to Cure Scleroderma There are many reasons for joining a Stepping Out to Cure Scleroderma walk. To honor someone, to remember someone, to celebrate your own strength, and to help the National Scleroderma Foundation.
Help us raise awareness and get one step closer to finding a cure for scleroderma by joining a walk today!
To join our efforts, visit scleroderma.org/steppingout |
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| | | Join us for our Health & Safety Webinar, a training for support group leaders on policy and waiver updates. The webinar training will be 3 p.m., Eastern, Wednesday, May 10. If you are unable to attend, the webinar will be recorded. |
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| | | Are you going to Conference 2023? Do you want to attend this year’s National Scleroderma Conference but cannot go to Orlando, Florida? You can still sign up and attend the conference virtually! Visit the link and sign up today. |
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| | | Fellowship deadline extended We have extended the application deadline for the 2023 Pre‑Doctoral Summer Fellowship Awards until 5 p.m., Eastern Time, Monday, May 15, 2023. Learn more and apply today at the link. |
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| | | Teens and Parents Support Group ZOOM: 3 p.m., Eastern, Wednesday, May 24
Calling all teens looking to connect with other teens living with scleroderma. The Albuquerque support group will have Teens & Parent Support Group meetings each month on the 4th Wednesday via Zoom. The group will be led by Debra Droux, Maria Tafoya, and Jackie Martinez. Email nmsclero@gmail.com or call 505-503-3545 to receive the Zoom meeting information. We ask that a parent or caregiver be present with their teen when the meeting starts. |
| The 20%: Males Living with Scleroderma Support Group ZOOM: 7 p.m., Eastern, Wednesday, May 24
Scleroderma diagnoses are less common among males. In fact, only 20% of individuals living with scleroderma are male. We have designed a support group, especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m., ET. |
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| | Newly Diagnosed Support Group ZOOM: 7 p.m., Eastern, Wednesday, May 10
Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group, led by Ron Sasso, will help navigate these questions and support newly diagnosed individuals. If you are interested in joining the group, email newlydiagnosedsg@scleroderma.org. |
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