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| Conference registration is now open! Registration for the 2023 National Scleroderma Conference is now open! Join us July 14-16, at the Signia by Hilton Orlando Bonnet Creek in Orlando, Florida, for workshops, panel discussions, educational sessions and more. |
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| Get the latest from our CEO! This week, CEO Mary J. Wheatley, IOM, CAE, shares the latest National Scleroderma Foundation news for the month of March. Read about how the Stepping Out to Cure Scleroderma walk season is going and much more. |
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| ICYMI: Call for Leadership Nominations! Join the National Scleroderma Foundation Board of Directors in leading the Foundation into the future.
Do you have thoughts and ideas on how to help the Foundation meet its mission? Are you passionate about serving the community of people affected by scleroderma? Are you a strategic thinker focused on outcomes? Apply today at surveymonkey.com/r/nsfbodnom. |
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| Champion Members of the Foundation receive a promo code discounting the registration fee to the National Scleroderma Conference.
Be sure to sign up before our 2023 Champion membership drive closes on March 31 to receive your promo code.
To become a Champion member ($35 per year, $45 international), go to scleroderma.org/membership.
To become a Friend member (free of charge), go to scleroderma.org/friend. |
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| 20 years of Stepping Out to Cure Scleroderma Our signature awareness event, Stepping Out to Cure Scleroderma, is celebrating 20 years in 2023! Join us in celebrating this huge milestone by signing up today!
Did you know that we are still accepting sponsors for the 2023 season? Do you own a business or work for a company that is interested in becoming a national or local sponsor? Your support will add fuel to our mission to find a cure for scleroderma. Contact us at SpecialEvents@scleroderma.org to learn more. |
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| HealthWell Foundation financial assistance
If you are living with systemic sclerosis with interstitial lung disease (SSc-ILD), you may be eligible for financial assistance. The HealthWell Foundation has opened a new fund that will provide up to $9,000 in medication copayment or insurance premium assistance to eligible patients. To determine eligibility and apply for financial assistance, visit the link. |
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| Apply for the 2023 National Scleroderma Conference and Kids Get Scleroderma, Too! Scholarship!
The 2023 National Scleroderma Conference and Kids Get Scleroderma, Too! scholarship application is now available! Download the form and email it. Full instructions are on the form. The deadline to apply is March 31, so don't delay. Scholarships are intended for individuals who are living with scleroderma and are in need of financial assistance to attend the conference. Priority is given to first-time conference attendees, but all are welcome to apply. We look forward to seeing you in Orlando, July 14-16! |
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| Don't miss the Clinical Trials: What You Need to Know webinar Do you have questions related to clinical trials? How do they work? How can I join? Are they right for me? Join Maureen D. Mayes, M.D., and the National Scleroderma Foundation for an informative webinar on “Clinical Trials: what you need to know” at 1 p.m., Eastern Time, on March 20.
Thank you to Talaris Therapeutics for sponsoring this event! |
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| Advances in Scleroderma Research Global Webinar The global community of scleroderma research scientists will come together at the next Advances in Scleroderma Research – Global Webinar at 9 a.m., Eastern Time, Friday, March 31, to share and discuss the latest breakthroughs from the field. The webinar is open to all interested scleroderma researchers, including students and trainees! |
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Localized Scleroderma Support Group Are you or your child living with localized scleroderma? The Foundation is starting a Virtual Localized Scleroderma Support Group. If you're interested in learning more or joining, please email localizedSG@scleroderma.org. |
| BIPOC (Black, Indigenous People of Color) ZOOM: 4 p.m., Eastern, Sunday, Mar. 12
The BIPOC support group's next virtual meeting will discuss staying active with scleroderma. |
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