National Scleroderma Foundation

Call for Leadership Nominations!

Join the National Scleroderma Foundation Board of Directors in leading the Foundation into the future.

Do you have thoughts and ideas on how to help the Foundation meet its mission? Are you passionate about serving the community of people affected by scleroderma? Are you a strategic thinker focused on outcomes? Apply today at surveymonkey.com/r/nsfbodnom.

National Scleroderma Foundation Membership Countdown

Only one Month Left!

You have 1 more month to become a Champion member of the National Scleroderma Foundation for the 2023 calendar year!

Don’t miss your chance to get more involved and to get access to exclusive member benefits.

To become a Champion member ($35 per year, $45 international), go to scleroderma.org/membership.

To become a Friend member (free of charge), go to scleroderma.org/friend.

Advisory panel opportunities for the Patient-Centered Outcomes Research Institute

Are you interested in getting involved with the PCORI? The PCORI is a Health Research Alliance member organization and has opportunities to participate in advisory panels. Applications will be accepted until Mar. 31.

Apply

Thank you for participating in Rare Disease Day

Thank you for participating in #RareDiseaseDay and raising awareness for scleroderma. Although Rare Disease Day is over, you can advocate for rare diseases, including scleroderma, all year long. Check out our website to find ways to get involved!

Rare Disease Day

ICYMI: 2023 National Scleroderma Conference and Kids Get Scleroderma, Too! Scholarship Application is Now Available!

The 2023 National Scleroderma Conference and Kids Get Scleroderma, Too! scholarship application is now available! Download the form and email it. Full instructions are on the form. The deadline to apply is March 31, so don't delay. Scholarships are intended for individuals who are living with scleroderma and are in need of financial assistance to attend the conference. Priority is given to first-time conference attendees, but all are welcome to apply. We look forward to seeing you in Orlando, July 14-16!

Apply for a scholarship

Don't Miss the Clinical Trials: What You Need to Know Webinar

Do you have questions related to clinical trials? How do they work? How can I join? Are they right for me? Join Maureen D. Mayes, M.D., and the National Scleroderma Foundation for an informative webinar on “Clinical Trials: what you need to know” at 1 p.m., Eastern Time, on March 20.

Thank you to Talaris Therapeutics for sponsoring this event!

Clinical Trials

Now Accepting Applications for the 2023 Pre-Doctoral Summer Fellowship Awards

Application Deadline: April 28

The National Scleroderma Foundation's Pre-Doctoral Summer Fellowship Award Program recognizes Ph.D. students conducting research related to scleroderma. The program encourages and fosters the next generation of researchers by cultivating students' early interests in working to discover the cause and cure of scleroderma. Students may submit a proposal on research relevant to adult or pediatric scleroderma.

Pre-Doctoral Summer Fellowship

Rochester/Buffalo Scleroderma Support Group

ZOOM: 1 p.m., Eastern, Saturday, Mar. 11

Join the Tri-State Chapter for its upcoming meeting about vascular issues that impact individuals living with scleroderma. The event will be hosted by Dr. Kimberly Lakin, NYC Hospital for Special Surgery, Scleroderma Vasculitis & Myositis Center.

BIPOC (Black, Indigenous People of Color)

ZOOM: 4 p.m., Eastern, Sunday, Mar. 12

The BIPOC support group's next virtual meeting will discuss staying active with scleroderma.

Localized Scleroderma Support Group

Are you or your child living with localized scleroderma? The Foundation is starting a Virtual Localized Scleroderma Support Group. If you're interested in learning more or joining, please email localizedSG@scleroderma.org.

Lunch and Learn

The Michigan Chapter is proud to announce their new “Lunch & Learn” educational webinar series! Each month on the third Wednesday, the chapter will host its "Lunch & Learn" from noon to 1:15 p.m., Eastern Time. The first speaker will be on March 15, with Nina Ramessar, M.D., a board-certified doctor in Internal Medicine and Rheumatology. She will be talking about labs and tests related to scleroderma. This education series is virtual and open to everyone!