Scleroderma Connections #1006
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Mary Signature Photo 25th Anniversary

Quarterly stakeholder updates recording available

National Scleroderma Foundation CEO Mary J. Wheatley, IOM, CAE, recently reviewed key mission metrics with Foundation stakeholders. Watch this quarter’s update at the link below on our YouTube channel.

You can sign up now for our 2023 sessions!

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Gift of Membership

Give the Gift of Membership

Did you know you could give someone the gift of a Champion membership to the National Scleroderma Foundation? 
For only $35 per year ($45 international), your loved one will receive 10 member benefits including: 

•    A printed subscription to our Scleroderma Voice magazine
•    An exclusive opportunity to meet our CEO
•    And more!

To give a loved one the gift of membership, call our office at (800) 722-HOPE [4673] or complete the Champion membership form at scleroderma.org/membership.

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stepping out

Join us for the 2023 Stepping Out to Cure Scleroderma walk season!

We are excited to share that the 2023 walk season has launched with a new look celebrating 20 years of our community gathering to participate in Stepping Out to Cure Scleroderma awareness walks.  We hope you will celebrate with us and join one of our many walks scheduled across the country both in person and virtually.  

To find your walk, visit sclerdoerma.org/steppingout. Check back often. Walks continue to be added regularly to this site.

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Pulmonary Fibrosis Foundation

The Pulmonary Fibrosis Foundation

Are you looking for information about interstitial lung disease? Check out the Pulmonary Fibrosis Foundation. Visit their website at the link to learn more. 

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medical generic

2023 Pre‑Doctoral Summer Fellowship Awards

The National Scleroderma Foundation is now accepting applications for the 2023 Pre‑Doctoral Summer Fellowship Awards. Applications are due 5 p.m. Eastern Time, Friday, April 28. Learn more about the application process at the link.

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SYNC Feb. Support
Parents of Children with Scleroderma

SYNC Support Group

ZOOM: 7 p.m., Eastern Time, Friday, Feb. 10 

The group will feature a dating and relationship discussion along with self-care tips. Contact Amanda at alippincott@scleroderma.org  or Tiare at ttolzmann@scleroderma.org.

Parents of Children with Scleroderma

ZOOM: 7:30 p.m., Eastern Time, Wednesday, Feb. 1

If you care for a child living with scleroderma, do not miss the Parents of Children with Scleroderma Online Support Group! The group covers various topics to help parents navigate caring for children with scleroderma and finding support. The group meets virtually via Zoom on the first Wednesday of even months (e.g., June, August, etc.) from 7:30 - 9 p.m. and the first Wednesday of odd months (e.g., July, September, etc.) from 3 - 4:30 p.m. Email Pamela Pour for the meeting information.

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