National Scleroderma Foundation

NEXT WEEK: Quarterly Stakeholder Update

Join us next week for our Quarterly Stakeholder Updates on Jan. 25! We will discuss the progress made in our exciting work to strengthen our organization, to build capacity for growth in support of individuals affected by scleroderma, to expand our education programs and to build greater resources for research funding.

You can sign up now for our 2023 sessions!

Want a Subscription to the Scleroderma Voice Magazine?

One of the benefits of being a member of the Foundation is a subscription to our signature quarterly publication, Scleroderma Voice magazine.

Published four times each year, Champion members ($35 domestic, $45 international) receive a printed subscription and friend members (free of charge) receive digital subscription.

Become a member now!

Become a Champion Member

Become a Friend

Become a support group leader

Curious about becoming a Support Group Leader? Our group leaders go through a SPIN-SSLED Program which is a 13-week training program providing leaders with information and resources to help them feel more comfortable, confident and supported in their roles, and contribute to a more positive support group experience. Visit the link to learn more!

Learn about SPIN-SSLED

Save the date for the 2023 National Scleroderma Conference

We're excited to meet with you in-person or virtually for the 2023 National Scleroderma Conference! We're busy working behind the scenes to make this year's gathering great! Keep up with details as they become available on our website. Registration will open soon!

Conference website

Mogil's Mobcast with Dr. Michael Hughes

On this episode of Mogil’s Mobcast, Ann talks to Dr. Michael Hughes. Dr. Hughes is a consulting rheumatologist at Salford Royal Hospital, a national UK referral center for Systemic Scleroderma/Sclerosis and an Honorary Senior Clinical Lecturer at The University of Manchester. They discuss Raynauds, calcinosis and digital ulcers.

Listen to the episode

ICYMI: ImmunoCARE Study

Scripps Research, in partnership with Cue Health, is launching ImmunoCARE, a study focused on reducing severe COVID-19 outcomes within the immunocompromised population. Their hypothesis is that access to sensitive, at-home nucleic acid amplification tests, telemedicine and rapid delivery of antiviral treatments will reduce transmission and improve outcomes for immunocompromised individuals.

By engaging individuals who face higher COVID-19 risks due to their immunocompromised status, they hope to learn how to minimize unwanted outcomes of potential exposures and focus on opportunities that empower patients.

Learn more about the study.

Caregiver Support

ZOOM: 7 p.m., Eastern, monthly on the fourth Thursday

Q1 2023 dates: Jan. 25, Feb. 23, March 23

Email support group leader Debbie Haussler at caregivers@scleroderma.org to be added to the calendar invite with the Zoom link.

Bilingual Support Group - Family Planning and Pregnancy in Scleroderma

El Grupo Bilingüe de Apoyo de la Fundación Nacional de Esclerodermia te invita a su evento educativo vía zoom “Planificación Familiar y Embarazo en Esclerodermia”.

Fecha : 28 de Enero, 2023

Hora: 10 a.m., EST

9 a.m., CST (Costa Rica, México)

10 a.m., COT (Colombia, Ecuador, Panamá, Perú, USA)

11 a.m., BOT (Bolivia, Rep. Dominicana, Venezuela)

noon, ART (Argentina, Chile)

4 p.m., CET (España)

Por favor envíe sus preguntas al correo electrónico miamiradgroup@gmail.com

A continuación, vínculo para registrarse al evento

https://forms.gle/whKofcwMcmgfRhnbA