Happy Holidays

We wish you Happy Holidays! The National Scleroderma Foundation offices will be closed through Jan. 2. We look forward to another great year serving the scleroderma community in 2023!

One More Day | One Last Way | Get Your Gift in Today!

You have one more day to show your support one last way for the scleroderma community in 2022!

Don’t wait until the last minute! Make your gift today at www.scleroderma.org/winter.

Your year-end gift is tax-deductible to the fullest extent permitted by law. Plus, the Foundation has a 4-star rating from Charity Navigator, so you can make your gift with confidence.

Thank you so much for your commitment to our mission and to people with scleroderma, their family and support networks.

BIPOC Support Group

ZOOM: 4 p.m., Eastern Time, Friday, Jan. 13

Learn important information and connect with others during the BIPOC support group's next virtual meeting.

SIGN UP

Caregiver Support Group

ZOOM: 7 p.m., Eastern, monthly on the fourth Thursday 

Q1 2023 dates: Jan. 25, Feb. 23, March 23

This group provides a source of emotional and social support and resources for those caring for a loved one with scleroderma. We will share self-care strategies and tools to reduce stress and enhance coping. We welcome adults, spouses, family members or friends in the caregiver role to attend.

In case you missed it, read “Creating Spaces for Our Caregivers” featuring Rachel Meyn Ugarte and her mother, Elizabeth and learn how this virtual group came to be.

Email support group leader Debbie Haussler at caregivers@scleroderma.org to be added to the calendar invite with the zoom link.

NORD Rare Disease Kickoff Video

The National Organization for Rare Disorders recently hosted its Rare Disease Day Kickoff webinar. The recording is now available. Rare Disease Day is Feb. 28!

WATCH

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