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| eLetter #1001 | December 23, 2022 |
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Happy Holidays
We wish you Happy Holidays! The National Scleroderma Foundation offices will be closed through Jan. 2. We look forward to another great year serving the scleroderma community in 2023!
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Support the National Scleroderma Foundation With A Year-End Gift
2022 has been a special year of growth for the Foundation, and we’d like to invite you to consider making a year-end, tax-deductible gift to close this year strong and help sustain our mission in the new year!
With your help, we’ll be able to continue advancing medical research, promoting disease awareness, and providing support and education to people with scleroderma, their families and support networks.
To give back this holiday season, go to www.scleroderma.org/winter and make your gift today.
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Caregiver Support Group
ZOOM: 7 p.m., Eastern, monthly on the 4th Thursday
Q1 2023 dates: January 25, February 23, March 23
This group provides a source of emotional and social support and resources for those caring for a loved one with scleroderma. We will share self-care strategies and tools to reduce stress and enhance coping. We welcome adults, spouses, family members or friends in the caregiver role to attend.
In case you missed it, read “Creating Spaces for Our Caregivers” featuring Rachel Meyn Ugarte and her mother, Elizabeth and learn how this virtual group came to be.
Email support group leader Debbie Haussler at caregivers@scleroderma.org to be added to the calendar invite with the zoom link.
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The 20%: A Virtual Support Group for Males Living with Scleroderma
ZOOM: 7 p.m., Eastern Time, Wednesday, Dec. 28
Scleroderma diagnoses are less common among males. In fact, only 20% of individuals living with scleroderma are male. We have a support group especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m., ET.
SIGN UP
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NORD Rare Disease Kickoff Video
The National Organization for Rare Disorders recently hosted its Rare Disease Day Kickoff webinar. The recording is now available. Rare Disease Day is Feb. 28!
WATCH
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Mogil's Mobcast with Greg Cohen
On the recent episode of Mogil's Mobcast, Ann ends the year with an inspirational story from Greg Cohen, a fellow individual living with scleroderma. Greg shares his story on how he chose to spread awareness and raise money for scleroderma. Greg’s positive energy is contagious and uplifting!
LISTEN
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Disclaimer: The National Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
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