National Scleroderma Foundation

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eLetter #997 | November 25, 2022

	We’re Getting Closer to GivingTuesday, Nov. 29! In just a few short days, the National Scleroderma Foundation will celebrate GivingTuesday on Nov. 29! Every year on GivingTuesday, hundreds of people affected by scleroderma unite to support the mission of the National Scleroderma Foundation. This year, it’s up to us to make a big difference for those with scleroderma, and we hope we can count on you to make a gift or spread the word! Go to scleroderma.org/givingtuesday to make your gift, and be sure to share the link with all your friends and family. If you are too excited to wait until Tuesday to support us, you can give now! Thank you so much for your generosity.
	Happy Thanksgiving! We hope you had a wonderful Thanksgiving! In observance of the holiday, we will be closed until Monday, Nov. 28.
	Mental Health Matters: Chronic Disease and How to Support Your Mental Health VIRTUAL: 7 p.m., Eastern Time, Tuesday, Dec. 6 Join the Tri-State Chapter and the Hospital for Special Surgery for the Scleroderma, Vasculitis and Myositis Center's Winter 2022 Patient Education Forum. SIGN UP
	Stem Cell Transplant in Scleroderma: Recording is Now Available Thank you for registering for our webinar on Stem Cell Transplant in Scleroderma: Past Present, and Future. We are grateful to our speakers, Cyndy Martin; Erion Moore, II; Josie Garcia; and Drs. Richard Burt and Dinesh Khanna for sharing their experience and information related to this promising treatment. If you were unable to join us, or you’d just like to rewatch or share with friends and colleagues, the recording is now available. WATCH
	2022 National Scleroderma Foundation Education Conference Videos Are Now on YouTube Don’t worry if you missed out on this year’s virtual conference, all videos are now available on our YouTube page. These education videos cover a wide range of topics such as scleroderma clinical trials, what is preventative care, benefits of music therapy and much more! Don’t miss out on this great content delivered by scleroderma experts from around the country! WATCH
	Ohio Education Event The Ohio Chapter is having a virtual caregiver education panel at 10 a.m., Eastern, Saturday, Dec. 3. There will be a panel discussion with Debbie and Darryl Haussler, Keith and Lucille Miller, and Kevin and Mariann Boyanowski. The educational event will feature open discussions exploring emotions around scleroderma and breakout sessions with caregivers and individuals living with scleroderma. All are welcome. SIGN UP
	The 20%: A Virtual Support Group for Males Living with Scleroderma ZOOM: 7 p.m., Eastern Time, Wednesday, Nov. 23 Scleroderma diagnoses are less common among males. In fact, only 20% of individuals living with scleroderma are male. We have designed a support group, especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m., ET. SIGN UP
	A Lasting Mark Foundation Our friends at A Lasting Mark Foundation would like to spread some holiday cheer and comfort to our pediatric scleroderma community! Learn more about the incredible mission of A Lasting Mark Foundation. A Lasting Mark Foundation would like to send a Holiday Swag in a Bag to children and teens up to 18 years old living with scleroderma. To receive your special gift, fill out the form. Please be sure to use the code: Warmwishes. The deadline to order is Dec. 3. Our sincere gratitude goes to A Lasting Mark Foundation for this special gift!
	International Patients Survey on Proton Pump Inhibitors Doctors with patient input from the World Scleroderma Foundation are conducting a Patient Survey on Proton Pump Inhibitors and need your help. If you have been diagnosed by a healthcare provider with systemic sclerosis and have used or are currently using a PPI, please provide your input at the survey link. The survey is also available at the QR code shown with this news item.
	Mogil's Mobcast with Dr. Lee Shapiro On the recent episode of Mogil's Mobcast, Ann talks with Lee Shapiro, MD, Professor of Medicine in the Division of Rheumatology at Albany Medical College. Dr. Shapiro directs Albany Medical College's Scleroderma Center. He is also the founder and Chief Medical Officer of the Steffens Scleroderma Foundation. Additionally, he has been on the Medical Advisory Board of the National Scleroderma Foundation Tri-State Chapter for more than 30 years. The podcast discusses the Steffens Foundation and interpersonal education. LISTEN