Homepage | Forward to a Friend | Make a Donation |
|
eLetter #996 | November 18, 2022 |
|
|
Wishing you and yours a Happy Thanksgiving!
Giving thanks to everyone in the scleroderma community for your tireless work spreading awareness, educating others about scleroderma, advancing research for a cure, and supporting everyone affected by this disease. We are grateful for YOU!
|
|
Healthy for the Holidays
COVID-19 and flu cases are on the rise across the country. Take precautions ahead of those holiday gatherings. To stay safe, make sure your vaccinations are up to date, wear a mask at indoor gatherings, stay home if you’re sick and follow guidance from the CDC. Check with your health care provider for information specific to you.
Data on flu cases: https://www.cdc.gov/flu/weekly/index.htm Data on COVID-19 cases: https://covid.cdc.gov/covid-data-tracker/#datatracker-home
|
|
GivingTuesday is Nov. 29
GivingTuesday is a day we unite for one purpose-to help people with scleroderma live their life to the fullest potential!
This year, GivingTuesday is on Tuesday, Nov. 29, so be sure to mark your calendars!
We hope that you will join us by making a gift to support our critical mission work to advance medical research, promote disease awareness and provide support and education to people with scleroderma, their families and support networks.
Making your gift early is easy! Visit scleroderma.org/givingtuesday to give now.
|
|
#ACR22 Recap
We had a wonderful time at #ACR22 this past weekend! ACR stands for the American College of Rheumatology. It was the largest gathering of scleroderma specialists in the world. Visit the link to read an #ACR22 recap.
READ
|
|
Ohio Education Event
The Ohio Chapter is having a virtual caregiver education panel at 10 a.m., Eastern, Saturday, Dec. 3. There will be a panel discussion with Debbie and Darryl Haussler, Keith and Lucille Miller, and Kevin and Mariann Boyanowski. The educational event will feature open discussions exploring emotions around scleroderma and breakout sessions with caregivers and individuals living with scleroderma. All are welcome.
SIGN UP
|
|
Caregivers Connection
ZOOM: 10 a.m., Mountain Time, Saturday, Nov. 19
Sara Clement, Southern Colorado Support Group Leader, will host the Caregivers Connection Support Group Meeting on Nov. 19. All caregivers are welcome to join. To attend, request the Zoom link by sending an email to Gary Keschl at garykeschl@gmail.com.
|
|
The 20%: A Virtual Support Group for Males Living with Scleroderma
ZOOM: 7 p.m., Eastern Time, Wednesday, Nov. 23
Scleroderma diagnoses are less common among males. In fact, only 20% of individuals living with scleroderma are male. We have designed a support group, especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m., ET.
SIGN UP
|
|
A Lasting Mark Foundation
Our friends at A Lasting Mark Foundation would like to spread some holiday cheer and comfort to our pediatric scleroderma community! Learn more about the incredible mission of A Lasting Mark Foundation. A Lasting Mark Foundation would like to send a Holiday Swag in a Bag to children and teens up to 18 years old living with scleroderma. To receive your special gift, fill out the form. Please be sure to use the code: Warmwishes. The deadline to order is Dec. 3. Our sincere gratitude goes to A Lasting Mark Foundation for this special gift!
|
|
International Patients Survey on Proton Pump Inhibitors
Doctors with patient input from the World Scleroderma Foundation are conducting a Patient Survey on Proton Pump Inhibitors and need your help. If you have been diagnosed by a healthcare provider with systemic sclerosis and have used or are currently using a PPI, please provide your input at the survey link. The survey is also available at the QR code shown with this news item.
|
|
We Are Hiring!
We're hiring for an executive director in the Rocky Mountain Chapter! Candidates must reside in Colorado or Utah. Learn more about this great opportunity to serve the scleroderma community at the link below.
APPLY
|
Advertisement |
|
|
|
|
|
|
|
Disclaimer: The National Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported in the eLetter. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
|
|
|