National Scleroderma Foundation

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eLetter #978 | July 15, 2022

	Welcome to the 2022 National Scleroderma Conference! We will kick off the 2022 National Scleroderma Conference today - you will not want to miss it! Are you looking for scleroderma education and opportunities to connect with others affected by scleroderma? Join us for the 2022 National Scleroderma Conference, where connection, education, and support will be the priorities of the weekend! Today, Friday, July 15, is the start of the "Connecting Our Journeys" conference, and there is still time to register online. A full list of our programs can be found on our website. After 5 p.m. Eastern today, registration will be completed by calling the National Office at 800-722-4673 Call-In Registration hours will be: Friday 7/15: 5 p.m. - 8 p.m. EST Saturday 7/16: 8:30 a.m. - 5 p.m. EST Sunday 7/17: 9 a.m. - 2 p.m. EST If you have trouble logging into the virtual platform, please email sclerodermaconference@dynamicevents.com. Thank you to our Patron Sponsors!
	SPIN Newly Diagnosed and Caregivers Virtual Support Groups Are you living with scleroderma and identify as transgender, non-binary, Two-Spirit, or another non-cisgender identity? SPIN is looking for individuals to join an advisory team to provide input on projects related to the impact of sex/gender on scleroderma. If you are interested or would like more information, please contact spingeneral@gmail.com.
	LGBTQ+ Virtual Support Group The National Scleroderma Foundation stands with LGBTQ+ members of our community across the country. If you are interested in starting/joining an LGBTQ+ scleroderma support group, please let us know!
	Newly Diagnosed and Caregivers Virtual Support Groups The National Scleroderma Foundation would like to invite members of our community who are interested in starting/joining a Newly Diagnosed or Caregivers virtual support group to please let us know! We will be creating a focus group for each support group to help determine best dates and times to meet, gauge participation, and find leaders and co-leaders for the support groups.
	Caregivers Connection Support Group ZOOM: July 16, 2022; 10 a.m. Mountain All caregivers are welcome. Sara Clement, Southern Colorado Support Group Leader, will be hosting. To attend, request the Zoom link by sending an email to Sara, at sarc56@gmail.com.
	Teens & Parents Support Group ZOOM: July 27, 2022; 6 p.m. Mountain Calling all teens looking to connect with other teens living with scleroderma. The Albuquerque support team will have Teen & Parent Support Group meetings each month on the 4th Wednesday via Zoom at 6 p.m. Mountain. The group will be led by Debra Droux, Maria Tafoya, and Jackie Martinez. Email nmsclero@gmail.com or call 505-503-3545 to receive the Zoom meeting information. We ask that a parent or caregiver be present with their teen when the meeting starts.
	The 20%: A Virtual Support Group for Males Living with Scleroderma VIRTUAL: July 27, 2022; 7- 8 p.m. Scleroderma diagnoses are less common amongst men. In fact, only 20% of individuals living with scleroderma are male. We have designed a support group, especially for males with scleroderma. In it, you will learn scleroderma tips and resources and find support from others in your position. Each meeting, we will focus on a different topic from mental health to intimacy and so much more. The group meets on the fourth Wednesday of the month (with some exceptions) from 7 to 8 p.m. REGISTER