National Scleroderma Foundation

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eLetter #973 | June 10, 2022

	To Know Scleroderma is to Advocate for a Future Without Scleroderma “I was very afraid that I wasn’t going to live to be 15, which I am now. I wasn’t going to be able to learn to drive or do any of that. My treatment was hard and fast. After about two years, my lungs no longer have mosaic patterning," Grace Pour, 2015 scleroderma diagnosis. #knowscleroderma. Share our awareness posts throughout June on Facebook, Twitter, LinkedIn, and Instagram.
	Join A Stepping Out to Cure Scleroderma Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance our mission. By joining a walk, you help us take one step closer to finding a cure for scleroderma. Don't miss this fun and exciting opportunity to make a difference in the life of someone affected by this disease! Click here to find and register for a walk near you. Thank you to our Champion Sponsors!
	Conference Registration is Now Open You can now register for the 2022 Virtual National Scleroderma Conference. The conference will take place July 15-17 and will feature 30+ scleroderma-focused sessions presented by experts from across the country. Stay up to date on conference news by signing up to receive National Scleroderma Conference eAlerts. REGISTER Thank you to our Patron Sponsors!
	Showcase Your Company at the National Scleroderma Conference The deadline for exhibitor booth registration at the National Scleroderma Conference has been extended to June 30. It is a great opportunity to put your branding, products, and services in front of hundreds of conference attendees. You can use this online form to get started today!
	June Stakeholder Update Webinar ZOOM: June 16, 2022; 4 p.m. Eastern Join CEO Mary J. Wheatley for a quarterly update on National Scleroderma Foundation activities. REGISTER
	Help Advocate for Strong Federal Funding June is the perfect month to take action as a scleroderma advocate and push for scleroderma research funding! Find out about our Action Alert and our campaign to urge our elected officials to support the inclusion of scleroderma in the Department of Defense’s eligible conditions list for Fiscal Year 2023. Our success will mean that scleroderma researchers will be able to compete for federal funds that will help support their groundbreaking work. Your part in the campaign is easy. Just use the link below, read about our ask, and complete the built-in form that will send letters right to your Senators and ask them to support strong federal funding for scleroderma research. We encourage you to take action by June 30, 2022. TAKE ACTION
Deepa Soundara Rajan, MD	Research Grant Awards Highlight The 2022 research grant cycle set a record for the number of applications received and the amount of funds awarded. One of our Established Investigator Awards was presented to: Deepa Soundara Rajan, MD University of Pittsburgh New Investigator Award Topic: “Are Somatic Mutations Underlying Craniofacial Scleroderma Phenotypes?” You can learn more about our research grant awards and recipients here.
	Now Accepting Scleroderma Research Grant Applications If you hold a faculty-equivalent position and are newly pursuing a career in scleroderma-related research, apply to our New Investigators Grant. Anyone who is an established researcher both inside and outside the field of scleroderma research who wishes to propose pilot studies to obtain preliminary data dealing with a highly innovative and/or highly relevant theme related to scleroderma should apply for our Established Investigator Grants. To learn more about our research grants or apply, visit our website. We will accept applications until September 15, 2022.
	New Mogil's Mobcast Episode with Ashley Barron If you are interested in learning more about National Scleroderma Foundation Celebrity Ambassador Ashley Barron, listen to the recent episode of Mogil's Mobcast. In this episode, Ashley will chat about her upbringing, her family, her musical career, her loss of her mother to scleroderma and her scleroderma journey. At the end of the episode, Mogil's Mobcast will also feature Ashley's newly released single, "The Wind." LISTEN
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