National Scleroderma Foundation

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eLetter #972 | June 3, 2022

	Know Scleroderma This week marks the launch of our "Know Scleroderma" campaign in honor of June being Scleroderma Awareness Month. The campaign will emphasize the Foundation's belief that to know scleroderma is to understand the impact of a rare disease that is life-threatening for many and can cause physical disabilities which change lives forever. Join our awareness campaign by following us on Facebook, Twitter, LinkedIn, and Instagram and sharing our awareness posts during the month of June. Scleroderma.org
	Conference Registration is Now Open You can now register for the 2022 Virtual National Scleroderma Conference. The conference will take place July 15-17 and will feature 30+ scleroderma-focused sessions presented by experts from across the country. Stay up to date on conference news by signing up to receive National Scleroderma Conference eAlerts. REGISTER Thank you to our sponsors!
	Showcase Your Company at the National Scleroderma Conference The deadline for exhibitor booth registration at the National Scleroderma Conference has been extended to June 30. It is a great opportunity to put your branding, products, and services in front of hundreds of conference attendees. You can use this online form to get started today!
	June Stakeholder Webinar ZOOM: June 16, 2022; 4 p.m. Eastern Join CEO Mary J. Wheatley for a quarterly update on National Scleroderma Foundation activities. REGISTER
	Dr. Carol Feghali-Bostwick Featured on the Science Never Sleeps Podcast What happens when the healing process goes wrong? Listen to the recent episode of Science Never Sleeps with guest Carol Feghali-Bostwick PhD to learn more. Science Never Sleeps is a podcast about the science, people, innovation, and stories behind the scenes of biomedical research at the Medical University of South Carolina. LISTEN
	Help Advocate for Strong Federal Funding June is the perfect month to take action as a scleroderma advocate and push for scleroderma research funding! Find out about our Action Alert and our campaign to urge our elected officials to support the inclusion of scleroderma in the Department of Defense’s eligible conditions list for Fiscal Year 2023. Our success will mean that scleroderma researchers will be able to compete for federal funds that will help support their groundbreaking work. Your part in the campaign is easy. Just use the link below, read about our ask, and complete the built-in form that will send letters right to your Senators and ask them to support strong federal funding for scleroderma research. We encourage you to take action by June 30, 2022. TAKE ACTION
	Now Accepting Scleroderma Research Grant Applications If you hold a faculty-equivalent position and are newly pursuing a career in scleroderma-related research, apply to our New Investigators Grant. Anyone who is an established researcher both inside and outside the field of scleroderma research who wishes to propose pilot studies to obtain preliminary data dealing with a highly innovative and/or highly relevant theme related to scleroderma should apply for our Established Investigator Grants. To learn more about our research grants or apply, visit our website. We will accept applications until September 15, 2022.
Maureen D. Mayes, MD, MPH	The Scleroderma Body: Head to Toe - Inside & Out with Dr. Maureen Mayes GOTOMEET: June 4, 2022; 11 a.m. Central The symptoms of scleroderma vary greatly from person-to-person, and not all people with scleroderma develop all complications. Maureen D. Mayes, MD, MPH will reveal the symptoms of scleroderma that may be visible when the skin is affected, and the invisible symptoms as when internal organ systems are affected. The Texas Bluebonnet Chapter will continue The Scleroderma Body series on the 3rd Saturday in September, November, January, March, and May. REGISTER
Karin Wuertz-Kozak, MS, PhD, MBA	Research Grant Awards Highlight The 2022 research grant cycle set a record for the number of applications received and the amount of funds awarded. One of our Established Investigator Awards was presented to: Karin Wuertz-Kozak, MS, PhD, MBA Rochester Institute of Technology Established Investigator Award Topic: A Novel 3D Scleroderma Skin Model to Test Therapeutic TRPC6 Modulation You can learn more about our research grant awards and recipients here.