National Scleroderma Foundation

Homepage | Forward to a Friend | Make a Donation

eLetter #968 | May 6, 2022

	Mother’s Day Message The National Scleroderma Foundation fights for all people with scleroderma, but on Mother’s Day, especially, we remember and recognize all mothers in our community including mothers with scleroderma, mothers who are caregivers, and mothers who are working to honor their own mothers. We are here for you. Thank you for all you do!
	Help Advocate for Strong Federal Funding Are you looking for ways to advocate for scleroderma research funding? Learn about our Action Alert and how we are urging elected officials to support the inclusion of scleroderma in the Department of Defense PRMRP’s (Peer-Reviewed Medical Research Program’s) eligible conditions list in FY 2023. You can join us by using the link and completing the built-in email generator to contact your Senators about supporting strong federal funding for scleroderma research. TAKE ACTION
Dr. Giuseppina Alessandra Farina	In Memoriam \| Giuseppina Alessandra Farina, MD, PhD We would like to honor and remember one of our beloved researchers, Dr. Giuseppina Alessandra Farina. Her energy, enthusiasm, and passion for improving the lives of those with scleroderma will be deeply missed. We are grateful and humbled by her years of partnership with the National Scleroderma Foundation. During her career, Dr. Farina focused on identifying scleroderma's cause and Epstein Barr Virus' role in scleroderma pathogenesis. As a faculty member of Boston University's Department of Medicine, a Pulmonologist, and an Arthritis & Autoimmune Diseases Research Center member, Dr. Farina was an inspiration to scleroderma research. A full memoriam is available on our website.
	National Scleroderma Conference The 2022 Virtual National Scleroderma Conference will take place July 15-17 and will feature 30+ scleroderma-focused sessions presented by experts from across the country. Stay up to date on conference news by signing up to receive National Scleroderma Conference eAlerts. SIGN UP
Monica Mukherjee, MD, MPH	Research Grant Awards Highlight The 2022 research grant cycle set a record for the number of applications received and the amount of funds awarded. One of our Established Investigator Awards was presented to: Monica Mukherjee, MD, MPH Johns Hopkins University Established Investigator Award Research Topic: Echocardiographic Risk Prediction of Mildly Elevated Pulmonary Pressures in Systemic Sclerosis You can learn more about our research grant awards and recipients here.
	BIPOC Support Group Meeting VIRTUAL: May 15, 2022; 4 p.m. Eastern Learn about important topics such as wills, power of attorney, health proxy, and Social Security Disability filing from Mike Levengood, Attorney at Law, during the BIPOC support group's May 15 virtual meeting. REGISTER
	Buffalo and Rochester Support Group Meeting VIRTUAL: May 14, 2022; 1 p.m. Eastern The Rochester Support Group invites you to their Move to the Beat of Your Own Body event with Ms. Sarah Otis on Saturday, May 14, 2022, from 1-3 p.m. Eastern. This is a virtual and interactive activity. REGISTER
	Become a Member Today For only $25 a year ($35 USD for those living outside of the USA), you can support our mission and gain special access to our quarterly magazine, the Voice, along with a discounted registration fee to our annual National Scleroderma Conference. Become a member yourself or give the gift of membership to a friend or family member by completing our online membership form or calling us toll-free at (800) 722-HOPE [4673]. MEMBERSHIP
Advertisement